up-date on my mom

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up-date on my mom

by azureangel on Thu Jun 19, 2008 12:00 AM

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Well, we now know my mom is stage 4.  The Cancer has spread to her liver and lymph nodes.  Two days ago she had a port surgically placed for the chemo, and she will also be receiving radiation.  She has lost a lot of weight and I am worried that she will not make it through theses treatments.  Mom has decided to follow her doctor's orders, and is not interested in second opinions, clinical trials, or anything else, so we are not pushing her.  Can someone please tell me what to expect, and how long she can continue with stage 4?  I do not want to ask the doctors in front of her, and she has not asked either.  We are so worried and upset over this.  Our mom is a wonderful beautiful woman and we love her so much.

RE: up-date on my mom

by Carl42a on Sat Jun 21, 2008 12:00 AM

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On 6/19/2008 azureangel wrote:

Well, we now know my mom is stage 4.  The Cancer has spread to her liver and lymph nodes.  Two days ago she had a port surgically placed for the chemo, and she will also be receiving radiation.  She has lost a lot of weight and I am worried that she will not make it through theses treatments.  Mom has decided to follow her doctor's orders, and is not interested in second opinions, clinical trials, or anything else, so we are not pushing her.  Can someone please tell me what to expect, and how long she can continue with stage 4?  I do not want to ask the doctors in front of her, and she has not asked either.  We are so worried and upset over this.  Our mom is a wonderful beautiful woman and we love her so much.


I feel so sorry for you, your family and your mum. It is a truly wicked disease, I know as I lost my own mum one week ago today so the feelings are still pretty raw for me at the moment.

I hope and pray for all your sakes that your dear mother is granted more time than mine was...obviously different people will survive for longer or shorter times than others, but my mum was diagnosed as stage 4 in March and lived for just three short months.

Try to be strong for her...my heart goes out to you because I know what you are going to be going through in the coming weeks.

It is only a small consolation I know, but your mum, just as mine is now, will be in a better place...free of pain and suffering,..that wont stop your heart from breaking as mine is now...but I pray you will find the strength to cope with what is going to be the most difficult time of your life. 

 

 

RE: up-date on my mom

by Momhasgbc on Tue Jul 15, 2008 12:00 AM

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Hi,

I'm sorry to read your message about your mom.  What to expect really depends on what her chemo regimen is and how advanced her cancer is.  My advice is for you to meet with the infusion nurse manager to talk about the actual treatment and what side effects to expect.  Stage 4 sounds so horrible, but all I think it really means is that it's spread to other organs and can't be removed through an operation.  It's not necessarily an immediate death sentence. 

My mom (62) was diagnosed in Nov 08, had surgery where they removed what they could (part of her liver, entire gall bladder, several lymph nodes), but was left with the cancer and has been on chemo since Jan with a one month break in June/July.  She just started back up this week.  She regularly takes a blood test called CA19-9 and the results trend helps her and her doctor know about the progress of the disease.  Her chemo is Gemzar/Xeloda which is a popular combination for GB cancer and she's had only some gastro effects - but nothing like hair loss and constant nausea.  She recently finished radiation (5 weeks) and it made her so exhausted she couldn't get out of bed some days.  She's fine now though and her numbers are back in the normal range for the CA19-9. 

Everyone's case is different, but I hope that you will persevere and encourage your mom to fight.  The dr can prescribe something to help her with her appetite if she needs to get hungry. 

 Feel free to contact me privately if you want discuss more of the specifics.  I remember feeling pretty lost in the beginning and it seemed like no one shared our exact circumstances.  I hope you can share good news with us in 6 months too.

Wishing you and your mom all the best,

Marie

RE: up-date on my mom

by dllfb on Sun Sep 07, 2008 12:00 AM

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Only God knows time .....  my friends dad was given two weeks...it's been six months ..he just had his last chemo and last week's cat showed no more lesions where he had them in the liver, lymphns and lungs.  So as I said...only God knows...

Please let us know how your mother is doing...we havent' seen you post lately and we are hoping things are going well.

RE: up-date on my mom

by azureangel on Mon Sep 08, 2008 12:00 AM

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On 9/7/2008 dllfb wrote:

Only God knows time .....  my friends dad was given two weeks...it's been six months ..he just had his last chemo and last week's cat showed no more lesions where he had them in the liver, lymphns and lungs.  So as I said...only God knows...

Please let us know how your mother is doing...we havent' seen you post lately and we are hoping things are going well.


I am so sorry to report that my mother passed away on 08-10-08.  I did send a post about two weeks ago.  I think it is getting harder instead of easier.  I guess I was just numb for awhile.  I dream of her every night, and miss her so so much.  Thank you for your concern, it means the world to me.

RE: up-date on my mom

by dllfb on Thu Sep 18, 2008 12:00 AM

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So sorry to read this.  God Bless you and yours at this trying time.

Take care!

RE: up-date on my mom

by cybergeek004 on Fri Oct 17, 2008 12:00 AM

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Dear sir can you tell me what chemo drugs you were on? I have the same situation. 

RE: up-date on my mom

by trehouse60 on Sat Oct 18, 2008 12:00 AM

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There is a story related by another poster to the board - I don't remember who, but I am sure they won't mind me borrowing the story to tell you: 

"when the dr said stage IV cancer with mets, I asked him how long I had. The dr said,'I don't know, but I sure don't see any expiration date on you.' "

There are many people who are given a diagnosis of stage IV cancer, mets to liver and other organs, not expected to live long, yet years later are still living to tell about that experience,  Yet some others fade very quickly.  I don't know anyone who can say why one survives and the other does not.  Some common factors that people/family members of those with longevity have mentioned are a very positive attitude and self-commitment to living with cancer rather than dying from cancer, a refusal to give in and keeping on with normal activities, emphasis on raw foods and supplements, and reliance on sustaining spiritual beliefs and principles, and maintaining a sense of humor and laughter.   Therefore I would encourage your mother in those things of which she is capable.

If your mom is at all amenable to the idea - there is a natural therapy that is reported to be effective for helping people with advanced cancer to regain weight and stop wasting away.  It's called hydrazine sulfate, and this page talks in-depth about how it works, how to use it, and where to get it:

 http://www.cancertutor.com/Cancer/Hydrazine.html

 If your mom is interested in using it, PLEASE reread this web page very carefully several times, as there are specific foods people taking hydrazine must avoid.

 If your mom is willing to take supplements but doesn't want to do a set protocol like the hydrazine, you might talk to her about MSM (methylsulfonylmethane ) - this is a supplement that will help prevent cancer cells from producing lactic acid which contributes to weight loss and wasting away.  MSM is a very safe over-the-counter supplement available in many health food stores (This is also talked about on the web page I gave you - Webster Kehr recommends a specific vendor, as he thinks it's very important to get a pure product that doesn't have extraneous fillers in it.)

There is also mention of some super-juices on this page:  noni, mangosteen, and goji, plus essence health blend.  If you get mangosteen for your mom, limit her to 3 or 4 ounces a day, as mangosteen is wonderful nutritionally but hard on a damaged liver. 

I am also impressed with a product called Juice Plus:

https://www.juiceplus.com/nsa/pages/Welcome.soa

juicing raw fruits and vegetables and making smoothies are ways to get vital nutrition to your mom with a minimum expenditure of her energy for eating and digestion. There are many good message threads on the board about juicing and how to fix smoothies.  I recommend that any juice or smoothie preparation you make for her should include brewer's yeast and powdered lecithin, and be sweetened with crystallized fructose (you can get all of these at a health food store.)

As for preparing yourself, your mom and family should she not seem to do well with chemo, this is an excellent article published by a hospice organization:  http://www.virtualtrials.com/btlinks/death.cfm

I will be keeping you, your mom and family in my thoughts. Please remember to take good care of yourself during this difficult time.

Sincerely, 

Tre

 

RE: up-date on my mom

by dllfb on Sat Oct 18, 2008 12:00 AM

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I will ask her today.
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