lutetium 177

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lutetium 177

by shitzu on Wed Jun 25, 2008 12:00 AM

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I am searching for info. for husband for the lutetium 177 treatment offered at Erasmus M.C., Netherlands. The phone # on site doesn't seem to work and I had no response from e-mail. Anyone who has had this treatment, I would appreciate info. on costs, etc., contact info. My husband has carcinoid cancer/6 yrs ago diagnosed. No other options.

Thanks

RE: lutetium 177

by Jackdanville on Mon Aug 25, 2008 12:00 AM

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On 6/25/2008 shitzu wrote:

I am searching for info. for husband for the lutetium 177 treatment offered at Erasmus M.C., Netherlands. The phone # on site doesn't seem to work and I had no response from e-mail. Anyone who has had this treatment, I would appreciate info. on costs, etc., contact info. My husband has carcinoid cancer/6 yrs ago diagnosed. No other options.

Thanks


I just got back from Rotterdam and first round of treatment.  I was very impressed with the professional approach and care provided (although the food was very spartian in the hospital).  The cost of the treatment is Euro 2,500 or about $4000 U.S.  The main costs are transportation and hotel.  All in I figured about U.S. $11,000 per treatment (from SFO and staying at five star hotel in Rotterdam).

Many comments from others being treated for second, third and fourth infusions were very positive.  One spoke of a patient who arrived in a wheel chair for his first infusion and walked into the hospital for his second only 9 weeks later.

While one doesn't know the results of treatment until after four infusions and a scan, I have a very good feeling about my (now longer term) future.

Good luck with your decisions.

RE: lutetium 177

by Wesley1 on Thu Sep 25, 2008 12:00 AM

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Hi Shitzu,

 Here is an update on the treatment at Erasmus.  The only way you can get in is if you are referred by a physician that has sent patients there in the past.  I know of two.  Dr. Odosorio @ Holden Cancer Center, University of Iowa and Dr. Strosberg @ Moffitt Cancer Center in Tampa Fl. 

They now require payment for all of the treatments upfront, 10017 euros.  Today that is about 15K depending upon the exchange rate.  Travel and room and board  will run you about 2K per trip.   I have my first treatment scheduled for end of october.  There are other options.  Contact ENETS and ask about PRRT treatments available in europe.  I think there are 5.  The other facilites offer the Lu 177 treatment and they also may combine the treatement with another agent Y 90.  I was contacted by Dr. Baum from Zentralklinik Bad Berka 99437 Bad Berka, Germany.  They charge the same 10 K euros.  If you can get to this meeting(TORONTO INTERNATIONAL CARCINOID NEUROENDOCRINE PATIENT PHYSICIAN CONFERENCE & SYMPOSIUM.  October 16-19, 2008)  he will be there. 

I think this (PRRT) is a much better option than having surgical interventions if at all possible.  It depends on how much octreotide uptake you have on a octreotide scan.  Better uptake = to better results from treatment.    This/these modalities are currently getting 2 -3 years progression free survival for 80% of the participants.  Maybe, by that time they will have gotten farther along in the research on mtor inhibitors and vegf pathway signaling.   

God Bless and take care.

Wes

 

RE: lutetium 177

by judy_2 on Tue Sep 30, 2008 12:00 AM

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I am going to Erasmus in Rotterdam for the lutetium treatment in mid October. How did you feel afterwards? Did you require a companion? Could I go alone? Any opinions on accomodations, dining, sites, or transportation while there? My treatment will be covered but not the exspenses.

Diagnosed by general surgeon1 1/2 years ago while hospitalized with complete small bowel obstruction. After a week on nasosuction discharged to cofirm and determine extent of disease. Mostly this was to circumnavigate around cancer agency rejecting my surgical consult it took 5 months for him to find a surgeon interested in my case and possible liver resection. Had a small bowel wedge resection but hepatic lesions inoperable. Found a good oncologist outside of cancer agency . Their oncologist said I was wasting his time. Sandostatin injections helped tremendously. Tried chemo once, extremely ill not to mention useless.then referred to Erasmus.

Started having some obstruction symptoms 15 years ago not IBS. Severe symptoms started 10 years ago.  Today  my main complaint is abdominal pain, difficulty standing and walking (due to pain), and nausea. Gabapentin has helped significantly (stopped losing weight due to nausea.)     

 

      ..  .  

RE: lutetium 177

by Wesley1 on Thu Oct 02, 2008 12:00 AM

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Judy,

When you get back would you please let me know how everything went. I have an appointment at the end of the month,   Where did you stay, do you have any suggestions that would make it more comfortable?  What was the weather like?  If you get this before you go, I have a few links I can pass on that you may find helpful.

 Wes

RE: lutetium 177

by Gary1 on Sat Nov 08, 2008 12:00 AM

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Is there any difference between the Lu-177 treatments in Basel vs. Rotterdam? It looks like the cost is cheaper in Rotterdam. Someone posted about $4000 US vs about $7800 in Basel. We have been approved for Basel for March 3rd 2009. Does anyone know how long the list is in Rotterdam?

RE: lutetium 177

by shellbelly64 on Sat Nov 22, 2008 12:00 AM

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Yes please let us know the difference in the facilities. We are looking into these procedures. My bf has a primary in lung with metastasize to the lung and bone. any help is appreciated!

RE: lutetium 177

by jeenee828 on Sun Jan 11, 2009 12:00 AM

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My brother and I are leaving Rotterdam tomorrow after he received the LU - 177 Treatment at Erasmus Hospital. Yes, it costs 10,107 euros. I did understand that Netherlands closed this study off to foreigners in August (we got in under the wire). However, potential interested parties should continue to ask if they are accepting new patients as rules may be changed/lifted.

RE: lutetium 177

by Sergey on Sun Mar 22, 2009 12:00 AM

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Do you know if there is a time period needed before getting the Lutetium 177 treatment if a patient tales Samotastatin treatment without Lutetium 177?

  (Samotastatin delivers Lutetium 177 to the same cells/places, but samotastatin is not radioactive, it just slows down the growth; used in USA) 

RE: lutetium 177-Holland

by traveldude on Wed Mar 25, 2009 12:00 AM

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Hi,

 

Can someone help me please?

I have been trying to contact the Erasmus Centre in Rotterdam in Hollnad but wasn,t able, does someone have a valid contact , please!!!!





Last January my brother was
diagnosed with neuroendocrine cancer in the pancreas metastasized to the liver.



We was already
operated to the tumor in pancreas was resected as well as the metastases in the
liver in Portugal.



As there isn’t much
information about neuroendocrine cancer and according from what I read in
several sites often many oncologists do not know much about it or to deal with
it, I read in some sites (http://www.cancercompass.com ) Erasmus in Rotterdam
institution has had very good and encouraging results.



According to what I
read in most cases after the metastasis and tumor were resected they will come
back soon or later, I would like to know what do I need to do in order for my
brother to be able to be considered for treatment in this institution , what
are the requirements and fees?



Being a member of EU (Portugal) is
there any agreements with Portuguese health service, protocol?



Thanks a lot.



 

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