NOTICE: As of June 15, this community will have a new web address: compass.cancerfighter.com. You will no longer be able to access the site at CancerCompass.com For more information, please read the full blog post.

 

IMRT vs. Prostatectomy

26 Posts | Page(s): 1 2 3  Next 

IMRT vs. Prostatectomy

by Hopeful203 on Tue Jul 29, 2008 12:00 AM

Quote | Reply

I was just informed yestreday that 2 of my 12 biopsy cores came back positive with a Gleason score of 8 (4+4) and the other one 7 (3+4). My PSA was just under 9 and the DRE could not detect anything.  The urologist I am seeing is a surgeon and he recommended surgery due to my age.  I have thought about it and as a result of my being freaful of being "put to sleep"  (bad reason I suppose) I decided on IMRT.  This feels like a very bad dream to me so I'm not really sure if I'm completely understanding, or hearing, everything my urologist is saying. 

What I am trying to understand in order to wrap my mind around this diagnosis, is, how curable is PC?  I feel like I've been told my life is over. Any feedback suggestions, support, information would be much appreciated.

 

RE: IMRT vs. Prostatectomy

by DocTV on Wed Jul 30, 2008 12:00 AM

Quote | Reply

Postate Cancer is completely curable. You have not mentioned your age as radiation therapy is something that is generally not recommended for young men. I was 60 years old at the time I was diagnosed with prostate cancer in Oct 2007. This was as statement that I was given by a urologist who specialized in HIFU which is High Intensity Focused Ultrasound. There are two types of HIFU systems -- Sonablate 500 and Ablatherm. Although both systems require the patient to be prefectly still during the procedure, the Sonablate does not require the patient to be under a mild sedation, while the Ablatherm does. Both system administer as spinal so you don't feel anything however, since the procedure burns the prostate tissue in very small threads ( 1.5 to 2 mm square by 10 to 24mm long depending upon the system) you can't move as the instrument is so precise in its targeting. There are lots of safeguards to shut it down if any movement is detected. There is no incisions as the ultrasound probe is inserted into the rectum and the sound waves pass through the rectal wall and are focused in the postate. I had a Sonablate treatment on March 29, 2008 and I was awake for the entire procedure. I am like you in that I do not like general anesthetics but also in my cause it takes me a long time to completely come out of the anesthesia about twice as long as normal people.

    If you go to www.yananow.net website and in mentor experiences, you can read stories of men from all the various treatment options and what they have to say about their procedure. If you go to mentor experiences and under HIFU you can find my story under TV

RE: IMRT vs. Prostatectomy

by Hopeful203 on Wed Jul 30, 2008 12:00 AM

Quote | Reply

 

On 7/30/2008 DocTV wrote:

Postate Cancer is completely curable. You have not mentioned your age as radiation therapy is something that is generally not recommended for young men. I was 60 years old at the time I was diagnosed with prostate cancer in Oct 2007. This was as statement that I was given by a urologist who specialized in HIFU which is High Intensity Focused Ultrasound. There are two types of HIFU systems -- Sonablate 500 and Ablatherm. Although both systems require the patient to be prefectly still during the procedure, the Sonablate does not require the patient to be under a mild sedation, while the Ablatherm does. Both system administer as spinal so you don't feel anything however, since the procedure burns the prostate tissue in very small threads ( 1.5 to 2 mm square by 10 to 24mm long depending upon the system) you can't move as the instrument is so precise in its targeting.

Thanks much for the reply -- seeing the word "curable" is very comforting. I just came back from my bone scan and according to the technician the scan was fine without any suggestion of cancer.  This will be confirmed on Friday when I see my urologist. 

I have read about HIFU and the Proton treatment.  I have a good job and insurance, but I don't know that I could afford either of them.  I'll look into it more before seeing my urologist. Oh, regarding my age, I turned 57 in April of this year.

 

RE: IMRT vs. Prostatectomy

by DocTV on Wed Jul 30, 2008 12:00 AM

Quote | Reply
I can't remember but one of the postings in this site or www.yananow.net site was able to get his insurance to pay for the HIFU treatment. Apparently, his comment was that insurance companies were discovering that there are less problems and cost afterwards with HIFU

RE: IMRT vs. Prostatectomy

by Dlynn1210 on Wed Jul 30, 2008 12:00 AM

Quote | Reply

 

On 7/30/2008 DocTV wrote:

I can't remember but one of the postings in this site or www.yananow.net site was able to get his insurance to pay for the HIFU treatment. Apparently, his comment was that insurance companies were discovering that there are less problems and cost afterwards with HIFU

On the Today show this morning they featured a reporter that is recovering from prostate cancer.  He had Proton Therapy (sorry I didn't listen too closely as I have a different type of cancer).  They said something about a TV program that is airing tonight regarding his journey with this and his treatment.  He had to wait 4 months to be accepted at Loma Linda Hosp for the program. 

As for prostate cancer, my father was diagnosed when he was 56 also.  He is now 84 and while he has had major heart problems through the years and is now dealing with Alzheimers, he has never had any reoccurrence of the prostate cancer.  He is what I call a definite success story with regard to prostate cancer and we know so much more now than we did when he had it. 

The discussion you are talking about was on this site.  Someone had said they heard that one insurance company was paying for HIFU now.  Another responded back that maybe it was because there were less problems afterward.  A response back on both of these statements was that they were incorrect because HIFU had not been approved by FDA and an insurance company does not cover anything not approved by FDA.  The first person responded back that they were now getting conflicting responses from the insurance company.  It sounded as if it was due to whoever they were talking to on that particular phone call.  He was talking about the percentage on a particular med that they were willing to pay.  That was the last I read on that particular forum.

Diana

 

RE: IMRT vs. Prostatectomy

by Hopeful203 on Wed Jul 30, 2008 12:00 AM

Quote | Reply
I went to the web site you suggested and there was a link on it he main page to the site http://www.prostatepointers.org.  It seems the only point the site is making is that it doesn't matter if a person is treated or not, the results are going to be the same.  The site gives quote after quote supposedly from places such as the Mayo Clinic saying there is no evidence that treatment will prolong life.  Would you, or someone mind looking at the site and interpreting its message and the validity of what is being said?

RE: IMRT vs. Prostatectomy

by Dlynn1210 on Wed Jul 30, 2008 12:00 AM

Quote | Reply

 

On 7/30/2008 Hopeful203 wrote:

I went to the web site you suggested and there was a link on it he main page to the site http://www.prostatepointers.org.  It seems the only point the site is making is that it doesn't matter if a person is treated or not, the results are going to be the same.  The site gives quote after quote supposedly from places such as the Mayo Clinic saying there is no evidence that treatment will prolong life.  Would you, or someone mind looking at the site and interpreting its message and the validity of what is being said?

Hopeful 203

My dad had surgery with no radiation and he is still with us 28 years later.  He was diagnosed at 56 yrs old and is now 84 yrs old.  He recently said that he was watched close for 7 years - not sure how accurate that time limit is though as he has beginning Alzheimers. 

Diana

RE: IMRT vs. Prostatectomy

by Steven_Paul on Wed Jul 30, 2008 12:00 AM

Quote | Reply

 

On 7/29/2008 Hopeful203 wrote:

I was just informed yestreday that 2 of my 12 biopsy cores came back positive with a Gleason score of 8 (4+4) and the other one 7 (3+4). My PSA was just under 9 and the DRE could not detect anything.  The urologist I am seeing is a surgeon and he recommended surgery due to my age.  I have thought about it and as a result of my being freaful of being "put to sleep"  (bad reason I suppose) I decided on IMRT.  This feels like a very bad dream to me so I'm not really sure if I'm completely understanding, or hearing, everything my urologist is saying. 

What I am trying to understand in order to wrap my mind around this diagnosis, is, how curable is PC?  I feel like I've been told my life is over. Any feedback suggestions, support, information would be much appreciated.

 


Dear Hopeful,

I agree PC is curable.  Having surgery two weeks ago and getting back my pathology report yesterday, with it looking very clean, I feel I made the right choice.  Remember, you need to make the choice of treatment which you feel works best for you.  Do your homework, ask a lot of questions.  Speak to others who have been there or are there now and this will help you in a big way.  Whichever way you go, I still feel the experience of the doctor is the most important thing.

Hang in there and try not to rush into anything.  Good luck and keep us informed.

steve

RE: IMRT vs. Prostatectomy

by Bert60 on Thu Jul 31, 2008 12:00 AM

Quote | Reply

Hopeful

I am 13 months past my surgery, and thank God I have had all good blood tests since my surgery.  I was DX on March 21, 2007 with a Gleeson 7 (3+4), and a PSA of 2.4.  DRE determined a lump on one side.

I was told surgery was my best option (age 60), but I was not to keen on being cut.  Went out to the Cancer treatment center of America to look at HDR, was not a canadate for that treatment, but could have IMRT.  The Radaolgist told me with IMRT if the cancer returns surgery is NOT a option.  There is a treatment called salvage surgery that can be performed as a last resort.

You have ONE chance to get this right.  Looking back I am extremely happy with the surgery, and that the prostate is OUT.  Being asleep for a few hours during surgery is better than having to deal 7 weeks of IMRT treatment. 

You might want to read Dr. Scardino's book on PC. I got my copy on amazon, good read!

Best of luck!

RE: IMRT vs. Prostatectomy

by cjs291 on Thu Jul 31, 2008 12:00 AM

Quote | Reply

I don't know what your age is but I will give input with regards to my fathers PC. He was diagnosed 8 years ago at the age of 67 with a low grade cancer.His PSA at the time was at ~6 or 7. He opted for the Radioactive seed implants and everything was fine,his PSA lowered dramitically and life went on. He developed bladder cancer about 4 years ago, but this according to the Urologist was not related in anyway to the PC,a different cancer altogether. They biopsied his prosate 6 months ago while removing a tiny bladder tumor because his PSA was begining to climb, and it was negative. His PSA rose from 6.9 to 70 to 200 to more recently 255. His bone scan in March was negative as was the CT of his vital organs and Prostiscan.They began him on hormonoe therepy in May, then in June, just 3 months later, he had another CT that showed micro met's throughout his skeletal! Please, I don't mean to frighten you, this is OUR reality. Learning more about the disease and how testosterone dependant it is as far as proliferation,I'mnow  wondering if the route he took was the best one. Educating yourself and listeing to others is a good start.Also,keep your immune system strong, go to Doctor Lorraine Day's website.  Take Care and God Bless, cjs 

 

26 Posts | Page(s): 1 2 3  Next 
Subscribe to this message board discussion

Latest Messages

View More

We care about your feedback. Let us know how we can improve your CancerCompass experience.