Signet Ring Cell Carcinoma

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Signet Ring Cell Carcinoma

by Larry__a_ho_Model_Railroader on Sat Aug 06, 2005 12:00 AM

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I have just been diagnosed with signet ring cell carcinoma. I was told that is is very rare and agressive and does not respond well to chemo. My oncologist at Hershey Medical center is going to try to kill it with Oxaliplatin and Capecitabione - which works well on colo/rectal cancer - but this is not what I have. Does any one know info about this rare form of cancer and possible forms of treament??

Signet Ring Carcinoma - Appendical Cancer

by Cansurvivor on Wed Feb 22, 2006 12:00 AM

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I was dignosed with Signet Ring Carcinoma in my Appendix four years ago. I also have gone through Oxciliplatin (sp?) Chemotheraphy and it worked for me. When I was first dignosed I went to the Mayo Clinic in Rochester MN and they suggested treating it like a colon cancer. It is a vary rare cancer and all treatments where guess work. I was on Camptasar (sp?) for the first year, but I had many complications from the treatments. Then Oxciliplatin became available so I started on that. I took it for about a year, until I developed reactions (breathing troubles) from it, so they took me off and gave me a break. I have been off chemo for two years now and my cancer has not spread or grown or anything, so they are letting me go until something gives them reason to continue treatment. I would love to know if anyone else has experienced this type of cancer.

my Wife Was Diagnosed With The Same ca

by Jackginny on Fri Apr 28, 2006 12:00 AM

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Hello, My wife was diagnosed with Signet Ring Call cancer of the bladder last month. She had extensive surgery to remove her bladder on April 5. It is in her lymph nodes. My son found this message board. I was wondering how you are doing. Do you have any advise for my wife. Thank you for any updates.

i Took Oxciliplatin

by Cansurvivor on Sat Apr 29, 2006 12:00 AM

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Larry: I was diagnosed with Signet Ring four years ago. I took Camptasar chemo regiment but it didn't do anything, so my docs switched me to Oxciliplatin. I took it and it started to shrink, but then after a while I had an allergic reaction to it and I had to discontinue my treatments. I have not had treatments for two years now. My cancer is in remission. I was wonder how your treatments were going?

Hope

by Cansurvivor on Sat Apr 29, 2006 12:00 AM

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John: I was diagnosed with Signet Ring Carcinoma four years ago. Mine was in my appendix, but had developed a Kruckenberg Tumor on my right overy. It has also spread into a lymph node behind my pancreas. My doctors started me on chemo with Camptasar and 5FU without any results. Then I switched to Oxciliplatin and 5FU and had success with that. I was on Oxciliplatin for a little over a year when I started to get a bad allergic reaction, so I had to discontinue my treatments. That was two years ago. Since then my cancer has been in remission (a word I thought I would never hear). I go to a wonderful doctor at the Mayo Clinic in Rochester Minnesota (well worth the trip - 11 hours from my house). If you want more information and some great doctors to monitor your wife, I would suggest the Mayo Clinic. Check out their web site at mayo.edu. Please keep me informed on your wife and how things are going. You are the first person I have found that has experienced the same cancer as myself. Thanks for contacting me and PLEASE keep in touch. God bless you. Janet W.

Janet w. Cansurvivor

by Jackginny on Mon May 01, 2006 12:00 AM

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We are taking my wife to the Hillman Cancer center in Pittsburgh, Pa. on May 8th for a consulation. I will let you know what happen. How did the chemo effect you? John B.

Effects From Oxciliplatin

by Cansurvivor on Tue May 02, 2006 12:00 AM

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The biggest thing with Oxciliplatin is the sensitivity to cold. No cold drinks, no cold anything. I took a big drink of something cold right after my first treatment and it felt like someone was sticking me with a million knives in the throat. It really hurt. So be careful about the cold. Even doing laundry was a trick. I used my tongs that I grill with to get my laundry out of the washer. Besides the cold, just the tiredness that goes along with almost any treatment, also goes along with oxciliplatin. I wish you both all the luck in the world. Keep me informed. GB

Janet w

by Jackginny on Thu May 11, 2006 12:00 AM

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I am having colonoscopy/ scans on Mon and Tues- then to oncologist to find out results - will need a port placement for chemo will keep you informed Jack and Ginny

Good Luck

by Cansurvivor on Fri May 12, 2006 12:00 AM

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Good luck with the colonoscopy. And I know the port sounds scary, but it is a lifesaver. I didn't have a port for the first year of chemo (don't know why the doc didn't suggest it), but then my veins began to collapse a lot so they had to put one in. I loved it (for the most part). It's a little strange, but nice if you have to have chemo. Keep me up on your progress and if you would like to e-mail me straight to my personal e-mail, that would be great. My personal e-mail address is --- Message edited by CancerCompass staff: for personal protection, email address removed. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html ----. I will be going to the Mayo Clinic in June for my 6-month testings. I'll be praying for you. Janet

Ongologist Visit

by Jackginny on Sat May 20, 2006 12:00 AM

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I am to have a port put in this week with chemo to start asap - I am stage 4 - need to get chemo started - I was told I have 6months to 1 year without chemo - pretty scary news - I will have 3 types of chemo - sorry we didn't get your email address before it was deleted Good luck with your visit in June! Ginny and Jack
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