Endometrial cancer?? (18 mm endometrial thickness)

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RE: Endometrial cancer?? (18 mm endometrial thickness)

by AvsHusband on Mon Jul 11, 2016 11:06 PM

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Ladies,

The best advice I can offer you is that if you are unhappy with the way your physician is responding to your issues, then go to another physician. Keep changing physicians until you find one who will listen to you. Endometrial cancers are not common. Few physicians have been exposed to them in their training. Waiting is not treatment, it is wishful thinking that things will take care of themselves. Abnormal things don't take care of themselves. You are a better judge of what is normal. You want the physician to find out what is causing the problem and fix it, not give you a pat on the head, poo poo your concerns and send you on your way. The Gyn's words that her bleeding was "just a fibroid that is falling apart" was the reason that my wife did not get treatment until it was too late. If my words can save one life, my wife will not have died in vain.

RE: Endometrial cancer?? (18 mm endometrial thickness)

by firedragon on Sun Aug 28, 2016 10:48 AM

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I found your post via a search.  I am going through similar issues.  Last year (Sept 2015), I had an ultrasound (regular and transvaginal), showed some thickness of the lining of the uterus (was just a few days after period stopped), but PAP came back normal.  Also had a biopsy.  That biopsy came back normal.  But still chose to do a D&C and ablation this past February.  They sent the tissue to the lab in Feb and found simple hyperplasia.  The GYN put me on progesterone in March 2016 since my body had stopped producing it and was only producing estrogen.  Since starting progesterone in March, I have had even worse periods and just as sporadic as it was before the D&C and ablation.  I went back in last month and had another ultrasound. This time, the thickness was even more than last years (about 18mm). I just had another biopsy done this past week, and still waiting for the results to come up.  It's driving me nuts waiting, as it's already been 4 days.  Also, since mid last month, I've been having major low back pain and major lower abdominal pain (right ovary is what the dr said it was from).  I have already told my GYN, I want a hysterectomy.  I finished having kids back in 2004.  I would love to have a day where I don't have to take any pain meds or even deal with having pain.  My GYN told me that depending on the results from the biopsy will depend on if he goes ahead and schedules me for my hysterectomy or sends me to the oncologist.  This has been causing me some stress lately since I am worried.  I have had issues since around 2006ish.  I was supposed to have had a hysterectomy in 2008, however that dr wanted to do the mesh implant instead and I refused and asked for a different dr, but they wouldn't give me a new referral. I did have problems with Uterine fibroids and ovarian cysts in the past.  At 41, I'm ready to just be done with all this madness, pain, mood swings, etc.

RE: Endometrial cancer?? (18 mm endometrial thickness)

by AvsHusband on Sun Aug 28, 2016 09:18 PM

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I know that it is easy for me to say as I am not walking in your shoes, but worrying in advance of news just wastes your energies. The worrying will not affect the results one way or the other. Find some way to find peace within yourself while you wait. That will do you and your family the most good. Whether you are sent to an oncologist or not, it is most likely that you will have a hysterectomy. The only difference will be the after treatment. The lack of positive findings to date suggest that you do not have cancer. However, as I have stated previously, I am not a physician, I do not know all of your case even if I was a physician, I am simply a man who lived for his wife while she was going through the worst experience of her life. I offer my opinions based on logic and experience.

RE: Endometrial cancer?? (18 mm endometrial thickness)

by my.lotus.life on Wed Oct 18, 2017 06:55 PM

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Hi, I see this was posted some time ago but I am 33 and going through the same thing. My lining is at 16.4 mm currently and I have to go in for a biopsy. I've been doing my research on endometrial hyperplasia and uterine cancer, as well as the procedure to be done and am very nervous about it. I too have recently tested positive for hpv and have been having symptoms with spotting, pain and clots for some time (for the past year or more). Of course I feel like I was dismissed as well most likely due to my age. It would be comoforting to talk with someone going through the same at this age. I hope all went well for you.

RE: Endometrial cancer?? (18 mm endometrial thickness)

by AvsHusband on Wed Oct 18, 2017 11:09 PM

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I realize that you were asking for the original poster to contact you, but since you are doing research anyway don't forget to research endometrial sarcomas. It is an area that many physicians know too little about. There are some sarcomas that women can live with for many years when given the proper medication. One important thing is to not allow physicians to dismiss your concerns. Another thing you may encounter is physician's bias regarding hysterectomies. In this country we seem to have moved from too many to too few. It is your body. You need to learn enough to make the right decision for you.

RE: Endometrial cancer?? (18 mm endometrial thickness)

by my.lotus.life on Thu Nov 09, 2017 02:48 AM

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I will do my research on that as well, thanks for the reply. I just had another ultrasound done by my obgyn office and my lining was 17.5, so it has grown in the past month. She went ahead and did the biopsy so I’m awaiting those results. I am hopeful for good news but am still researching and preparing myself for the worst. I will update here again, I see many didn’t update with results or findings, I wish they had bc I am curious the outcome.

RE: Endometrial cancer?? (18 mm endometrial thickness)

by my.lotus.life on Wed Nov 15, 2017 12:33 AM

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So just an update, as I stated before my lining was 17.5 mm, as well as having a small amount of fluid (found this out after my last response). The biopsy results came back and didn’t report anything concerning, just a proliferative endometrium. I’m a little frustrated since I’ve had so many symptoms but am told nothing is wrong. My uterus is indeed slightly enlarged, I have endometrial thickening, small amount of fluid (that I was told could have been residual menses and that it was normal-contrary to what I’ve read on the internet), I suffer from (now near constant) uterine pain (during intercourse as well), a fullness in my pelvic region (uterus), heavy periods with clots, extreme exhaustion, lower back pain, occasional cyst on ovaries that rupture (and hurt a lot), have had spotting between periods and sometimes after intercourse. I was told a possible explanation is adenomyosis, which I do consider to be a strong possibility. I guess I’m just worried that they might miss something. How is endometrial sarcoma ruled out? The biopsy said no carcinoma was present though. I do go back to see my doctor in a week and just need to know where to go from here. Any advice would be greatly appreciated.

RE: Endometrial cancer?? (18 mm endometrial thickness)

by AvsHusband on Fri Nov 17, 2017 07:19 AM

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The diagnosis for an endometrial sarcoma depends on a biopsy. It is important that the pathologist be familiar with the appearance of endometrial sarcoma tissue to get a valid result. This is especially important in the case of undifferentiated endometrial sarcomas. You have had one biopsy that showed no sign of this form of cancer. If you do feel that it might be adenomyosis and your physician concurs and there is no evidence for endometrial sarcoma, then you might conclude that it is adenomyosis that is causing your symptoms. As I have mentioned in the past I am not a physician and am only offering a layman's opinion. I am using the old if it looks like a duck and quacks like a duck, then it probably is a duck. Based on your heavy periods, I expect that your physician has run tests to learn whether you are anemic which might be contributing to your extreme exhaustion. An endocrine panel might show whether there is some imbalance that is contributing to the symptoms you are experiencing. One question that I have for you because you are young is based on whether you are planning to become pregnant. If you are not planning on becoming pregnant, why are you going through all of the pain and agony rather than having a hysterectomy? 

RE: Endometrial cancer?? (18 mm endometrial thickness)

by Chaithanya on Wed Jun 26, 2019 07:59 PM

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Hi I’m in the same place.Plz tell me what results u got and what doctor told you about the solutions

RE: Endometrial cancer?? (18 mm endometrial thickness)

by AvsHusband on Wed Jun 26, 2019 08:46 PM

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On Jun 26, 2019 7:59 PM Chaithanya wrote:

Hi I’m in the same place.Plz "" target="_blank" rel="nofollow">http://place.Plz " target="_blank" rel="nofollow">place.Plz tell me what results u got and what doctor told you about the solutions

Please don't assume that because the symptoms are the same that the cause is the same. You are a unique human being, not one of many identical people turned out on an assembly line. Go to a knowledgeable OB/GYN and have yourself evaluated. If you fear it may be cancer, then go to an OB/GYN that specializes in reproductive system cancers to have yourself evaluated.

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