Last stages of Stage IV Lung Cancer

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RE: Last stages of Stage IV Lung Cancer

by elmorrison on Thu Feb 04, 2016 05:17 PM

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I m just realizing how long ago your post was, but maybe you will see my response. You mentioned that you felt your dad became worse after the biopsy. My dad was just diagnosed with stage IV Lung cancer metasis to the brain just last week. After his lung biopsy he felt like the tumor had grown immediately. Within a week he began experiencing shortness of breath. The symptoms that took my dad to the ER were from the numerous bleeding brain tumors. He had not symptoms from the lung until after the biopsy. Of course, when he tells the dr that, the Dr. just looks at him like he is crazy. I will have to tell him that someone else felt the same way. I am so saddened by my dad's diagnosis and my brain is just crazy with worry, etc. He begins radiation today and has his chemo consult tomorrow. 

RE: Last stages of Stage IV Lung Cancer

by Wenonacm on Sun Feb 21, 2016 07:25 AM

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Hi, I just wanted to reach out to you soecifically because our fathers were diagnosed around the same time, and I know how you must be feeling. This is our story: My father was just diagnosed with stage 4, metastatic lung cancer on 2/9/16. My dad had gotten into two minor car accidents within a week of each other. He had no recollection of how they happened and he did not recall seeing the cars in front of him. Knowing something was terribly wrong, I flew up to take my dad to a doctors appointment after my stepmom demanded the doctor take a scan of his brain. They found 3 tumors that were hemorrhaging. That night we went to emergency to have the doctors bring the swelling down in my dads brain. They did another ct scan, this time of his chest. They found a large tumor in his right lung and believe they found cancer in his ribs and another tumor in his liver. They started my dad on anti-seizure Meds and a steroid to keep the swelling down. He has received a week of radiation for the brain tumors and the oncologist wants to start him on chemo (Alimta) by the first week of March. Everything around me is moving so quickly. I am trying to stay strong, but the truth of the matter is that I'm not ready to loose him. The oncologist does not want to say how long my dad has, he explained that it's case by case -- 3-6 months if he doesn't respond to treatment and 'possibly' a year or more if his body does respond well to treatment. I want to get him a second opinion, but we've been so busy handling all his affairs and appointments that I just want him to rest before we are running off to another office and flooding ourselves with more info, options and appointments. My dad's symptoms before diagnosis were subtle, but included loss of appetite, loss of interest in things he typically enjoyed such as cooking and watching TV programs, loss of weight, lethargy and restlessness, insomnia, short term memory loss and impaired cognitive functions. He also coughed up an insane amount of blood a month prior, but his doctor wrote it off as a symptom from a blood thinner medication he was taking called xarelto. They did zero X-rays or scans of my dads chest even though they were aware of my dads history of smoking and lifestyle. The real kicker is that while my dad was in emergency at the hospital they doctor on duty told us she was comparing his scan taken that night with a scan they had of his from 2013, and in 2013 my dad had a small tumor in his lung. She acted as if she thought we already knew he had cancer because of the scan in 2013! It would have been amazing if his doctors had told us, but apparently they were asleep at the wheel. Now my dad won't see his grandsons go through all their milestones, thanks to them. I am so hurt and so angry. I can only hope my dads condition improves and his quality of life is enjoyable.

RE: Last stages of Stage IV Lung Cancer

by oreillyboys on Fri Mar 04, 2016 01:03 AM

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I feel your pain.  My husband 47 was just diagnosed with Stage IV lung cancer, however, now in the process of getting a second biopsy because they think it could be pancreatic cancer.  The first biopsy had a differential diagnosis because they did not get enough tissue.  Just like your Dad, my husband was fine.  He had a brain injury 19 years ago and had seizures (only 3) of the course of the 19 years.  This past January he had two - three weeks apart.  The second one left him with stroke like symtoms.  Low and behold we were told that he had a tumor in the lung, 4 lesions on the brain, lesions in the peritoneum and something in the pancreas.  Before they would release him from the hospital, they did gamma knife radiation to shrink the tumors.  He is still on steroids and we are still waiting for the edema to go down.  We did take him for a second opion and that is where we discovered that the biopsy showed a differential diagnosis and that there was a tumor in the pancreas.  They told us that a new biopsy needed to be done before they would start chemo, so they could target the primary cancer.  Now we wait another two weeks.  It is such a horrible feeling.  We were told that whatever the primary was that it is incurable, non-treatable and that they would only give him chemo to maintain the cancer (by time is basically what they are saying).  I would like to know how long.  I have two young boys (15) and they are devastated, especially because my husband can hardly walk and keeps having seizures.  

You should get a second opinion.  If we didn't and my husband has pancreatic cancer, they would be treating the wrong primary at the other hospital.  It is your right to get a second opinion no matter what.

Good luck with your Dad and I do understand what you are going through.

RE: Last stages of Stage IV Lung Cancer

by DaughterB on Mon Apr 10, 2017 11:44 PM

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On Sep 01, 2010 8:24 AM countrykid wrote:

my dad was diagnosed  with stage four lung cancer about seven weeks ago. he had terrible pains in legs and back an went in to get it checked out found out he had bone cancer wich had spread from his lungs.... they told him then he had less than six months last two weeks he has been going down hill. had severe shortness of breath a week ago went to get fluid drained from around his lungs an they took almost two quarts out, third time he has had it done an usually he kinda bounces back an is ok breathing an can get around this time it didnt work and he had to go back for days later and get it drained out agian another large amount to. they put him on oxygen and today he went to get tube put in his chest so hospice can drain it at his home. hes on alot of anxiety meds and pain meds. hospice is helping alot wich i nice. i wish i knew how much time i had with him... im 22 years old the only boy just two sisters an my mom. my dad is only 53 and my parents have been together for 25 years...its really hard because our family lost my oldest sister in an accident just a couple of years ago.

This sounds exactly like where we are right now. How long did you have after this post?

RE: Last stages of Stage IV Lung Cancer

by sharvid123 on Thu May 18, 2017 08:58 PM

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my mum just passed away from lung cancer on saturday, as she entered the final stages her eating and drinking decreased and her sleeping increased, my mum also was on alot of anxiety and pain meds too, a counsellor may help him.  the pain meds can be transferred into a IV and hospice will come out and change it when needed.  My mum fought to the bitter end against everything.

He is not hurting by not eating and drinking, its his body way of slowly shutting down, just offer him things he may like and dont panic if he only has a bite or two a day, its just normal.

I am sorry for what you are going for and hopefully hospice can get your husband to a happy medium where he is comfortable as his body goes through this process.

RE: Last stages of Stage IV Lung Cancer

by sokitty on Tue Aug 01, 2017 10:32 PM

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Hello,

My mom was diagnosed with stage 1 lung cancer in 2013 and successfully removed the tumor. As the years went by, she still had persistant coughs and shortness of breath. She went to the hospital for bronchitis and pneumonia 2-3 times as well. She would go to her doctor 2 times a month and do scans but there was nothing out of the ordinary we were told. They said that since my mother was a grandmother taking care of three children, she must have shortness of breath from chasing them around and whatnot.  Fast forward to April 29, 2017 she went to the ER because she had terrible pain. And when they did the scans, they saw something but said it must be the scar tissue from the tumor removal back in 2013; but sent us to a specialist to look into it. June 6, 2017 was the earliest date that we can see a specialist. The test results came the next week on June 13, 2017 saying that she has stage 4 lung cancer. The doctor urged us to do a biopsy that Thursday(June 15, 2017) to see if she has the gene mutation so that she can take a pill that doesn't have the same effect as chemotheraphy. During that procedure, my mom continued to bleed and they could not stop it.. sadly she passed away that night. I've seen a few posts mentioning that if they did not do that biopsy, maybe, just maybe their loved ones wouldn't be so weak after, but also we wanted to give my mother more time with us so we were all for that "pill" as treatment once she went in to get a biopsy. I just wanted to share my story with you, because my mom did multiple scans with her family doctor and at the ER but no one mentioned any abnormalities or anything about the scan until it was at her final stage either. I hope your dad's condition did impove and that his quality of life was enjoyable. Take care.

RE: Last stages of Stage IV Lung Cancer

by akshayv on Thu Jul 19, 2018 06:05 AM

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I have constant serious foot pain, overstep is painful, after a yearlong bout with PF in my heels, it was either quit or do something. I took 2 steroid shots in my feet. orthofeet shoes significantly reduce my pain. I can walk further which in turn is good for the pain. I will not wear another shoe.  And i'm back to 8 hrs a day on my feet.

RE: Last stages of Stage IV Lung Cancer

by bboomer147 on Sat Aug 11, 2018 05:29 PM

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Hi, I read your post. I have a friend that has lung cancer that's spread to his stomach and throat. I too am searching for answers. He is being treated with chemo only as far as I know. I question why only chemo. I"m not a family member so I'm not priveledged to answers. But time frame is a big question I have. 

My heart goes out to you as you make this journey. I hope and pray for the best for you and your husband.

RE: Last stages of Stage IV Lung Cancer

by latondress on Fri Oct 12, 2018 12:48 PM

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On Feb 04, 2016 5:17 PM elmorrison wrote:

I m just realizing how long ago your post was, but maybe you will see my response. You mentioned that you felt your dad became worse after the biopsy. My dad was just diagnosed with stage IV Lung cancer metasis to the brain just last week. After his lung biopsy he felt like the tumor had grown immediately. Within a week he began experiencing shortness of breath. The symptoms that took my dad to the ER were from the numerous bleeding brain tumors. He had not symptoms from the lung until after the biopsy. Of course, when he tells the dr that, the Dr. just looks at him like he is crazy. I will have to tell him that someone else felt the same way. I am so saddened by my dad's diagnosis and my brain is just crazy with worry, etc. He begins radiation today and has his chemo consult tomorrow. 

In March I was to have a Lung Biopsy because a CT showed to large tumors in Right Lung. I was terrified did not have it done. April had 2 operations for Cancerous Tumor in my Pallet. Cancer clear.. End of August had another Lung CT. Diagnosed with Stage 4 Cancer. No Radiation nor Chemo  will help. It's gone to far. What can I expect from here. I'm very logical and have been getting things in order but I would like to know what to expect. My symptoms right now are headaches, slight pain in my back, sleeping so much, eyes are worse.

 

RE: Last stages of Stage IV Lung Cancer

by latondress on Fri Oct 12, 2018 12:52 PM

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On Oct 12, 2018 12:48 PM latondress wrote:

On Feb 04, 2016 5:17 PM elmorrison wrote:

I m just realizing how long ago your post was, but maybe you will see my response. You mentioned that you felt your dad became worse after the biopsy. My dad was just diagnosed with stage IV Lung cancer metasis to the brain just last week. After his lung biopsy he felt like the tumor had grown immediately. Within a week he began experiencing shortness of breath. The symptoms that took my dad to the ER were from the numerous bleeding brain tumors. He had not symptoms from the lung until after the biopsy. Of course, when he tells the dr that, the Dr. just looks at him like he is crazy. I will have to tell him that someone else felt the same way. I am so saddened by my dad's diagnosis and my brain is just crazy with worry, etc. He begins radiation today and has his chemo consult tomorrow. 

In March I was to have a Lung Biopsy because a CT showed to large tumors in Right Lung. I was terrified did not have it done. April had 2 operations for Cancerous Tumor in my Pallet. Cancer clear.. End of August had another Lung CT. Diagnosed with Stage 4 Cancer. No Radiation nor Chemo  will help. It's gone to far. What can I expect from here. I'm very logical and have been getting things in order but I would like to know what to expect. My symptoms right now are headaches, slight pain in my back, sleeping so much, eyes are worse.

 

I should have told you I have Shortness of Breath, and a Cough that could be Broncities or a Symton will  see Dr. this week.

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