28 Year Old Husband Diagnosed w/ Bladder Cancer

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Cancer

by Steph2005 on Tue Sep 27, 2005 12:00 AM

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Hi Marilyn, Your story is very inspirational to me. To think that your husband also had stage 3 & thought he was going to have his bladder removed, only to find out that was not necessary, is so encouraging. Of course, the most important thing to me is my husband's recovery, so if has to loose his bladder, fine. I only want his quality of life post cancer to be as normal as possible. My husband just completed his second round of chemo. He too was unable to get a couple of treatments due to his blood counts. However, the chemo is working because we just learned on Friday the tumor is shrinking! How old is your husband, if you don'y mind me asking? Thanks for sharing your story with me.

Reply to Stephanie

by Miatri on Tue Sep 27, 2005 12:00 AM

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My husband is 60 and was diagnosed at 59. He smoked when he was young but has not smoked for over 20 years. Also, he did have kidney stones and that also could have been a factor. I hope your husband does well. What type of chemo is your husband receiving? At what hospital is he being treated? I will keep him in my prayers. Marilyn

Marlyin

by Rose_123 on Tue Sep 27, 2005 12:00 AM

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Hi, i hope you post in the section on ovarian cancer too. There are some good people writing there too. There is another place to read. www.cancertutor.com that might give your some more survivor tips. Rose

Dr. in Kansas City

by Rose_123 on Tue Sep 27, 2005 12:00 AM

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Hi, My husband went to Dr. Thrasher in Kansas City medical. We felt like we got great care. The cancer treatment centers are wortth looking into to. You have to build the body in order to heal. Do all the reserach you can. Rose

Encouraging

by Rose_123 on Tue Sep 27, 2005 12:00 AM

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Hi, I am so glad you go help. I had a thought-just in case, have some spem frozen. I am so glad you have a baby to love through this. My husband chose the external bag. The internal ones take more care. The doctor described it as a ferrari vve a honds. Maintenance. but I think If I had to have it done, I would prefer internal bag. the lady that directed us to KU has an internal one. she was 30 when she had it done and is doing fine. Rose

Recovery

by Rose_123 on Tue Sep 27, 2005 12:00 AM

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Hi, to answer your question. He was back to work in less than 6 wks. He is so much better than he has been for years. He had humor again. He says that the people he works with are still skirting him-they didn't realize he would be coming back. After all her had cancer. These sites that we write on are so good. They need to talk afterward. I would prefer him alive and well. We are in our 50's. Some of the emotions are just now coming up. Since I am wife, I hear with ears of a wife. Another man that has been there is the best for them. He is taking some better care of himself. Also get supplements to build the immune system and keep it up. You dont' want it back any more than we do. Rose

Small Cell Bladder Cancer

by Pault on Tue Sep 27, 2005 12:00 AM

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Hi Marilyn, I read your story and believe that we are going through similar situation. My husband has small cell bladder cancer and has been treated in Los Angeles. He has had surgery to remove the cancer, not the bladder; he had 3 of 4 rounds of chemo--taxol, carboplatin and etoposide and now he just finished a course of 6 weeks of radiation and chemo (cisplatin.) We are searching for other doctors or institutions that have dealt with this cancer before, since it is so rare. You mentioned that your husband was treated at Cleveland Clinic. Which doctor treated him? We would be very appreciative if you let us know so that our oncologist in Los Angeles could speak with him also. Wishing you all the best Waiting for quick response, Thank you, Eva

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by Miatri on Tue Sep 27, 2005 12:00 AM

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Our doctor at the Cleveland Clinic is Dr. Dreicer. We had an appt. on Sept. 9th and things look okay so far but he did stress that we are not out of the woods yet. We realize this small cell bladder cancer is very rare and it is good to share our stories. I look forward to updates from you. Please keep me posted. Best wishes to you.

Bladder Cancer Support Group

by MaryJane_M on Tue Sep 27, 2005 12:00 AM

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BLADDER-CANCER-CAFE@LISTSERV.ACOR.ORG is the e-mail address. This goes to all the bladder cancer patients all over the world.

Bladder Cancer Support Group/web

by Henrietta on Wed Sep 28, 2005 12:00 AM

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Thank you for the address....I will visit and do what is necessary. My surgery was in 10/04 and subsequent BCG/Interferon A chemo has been effective. Next cysto exam 10/11....Henrietta
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