28 Year Old Husband Diagnosed w/ Bladder Cancer

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Web Site

by Henrietta on Wed Sep 28, 2005 12:00 AM

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Using the address you gave, I was unable to access the bladder cancer cafe site......Henrietta

Bladder Cancer

by Larry_b on Thu Oct 06, 2005 12:00 AM

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Hi, Please inform your husband that the changing of his urinary pouch will become eaiser as time goes on. Fortunately the doctors are able to perform this procedure. Saves many lives. Three year ago I had my bladder, gall bladder and prostrate removed. I have a stoma on my right side. The urine is deposited into a bag. I change the bag approx every four days. This pouch system consist of two parts. (source for supplies: ConvaTec (item #413182 for skin barrier, item #401544 for urinary pouch; paste; pectin for wafer and peristomal powder for skin protection). In addition...obtain a night drainage bottle and tubing. item no's: #27060 and 27062. company no: 1.800.422.8811)) If you want further info...contact me at ...--- Message edited by CancerCompass staff: for personal protection, email address removed. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html ---. The very best to your husband. Larry

Bladder Cancer

by Skylid on Fri Oct 14, 2005 12:00 AM

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There is hope, do not despair. I was diagnosed with Bladder cancer and ended up at USC for a radical cystectomy. Thank G_D all went well, I was lucky also to have been able to qualify for a neobladder, an internal reconstruction that creates a new bladder from the small intestine. Luckily my nodes where all clean so I did not need Checmo or radiation. This is a treatable disease. Be strong, my wife was the one that carried me through, she was a nurse, a drill sargeant and an angel. You will need to be also. But time goes by and things do get better. it's almost 2 years for me and sometimes the ordeal feels like a bad dream I must have had. Good luck to both of you. By the way I am 58 so your husband should do even better being much younger. G_D Bless Luis

Thank You

by Steph2005 on Mon Oct 17, 2005 12:00 AM

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Thank you for your inspirational story. I needed to hear that after a tough weekend. All of the chemo has made my husband so weak. He literally slept the entire weekend. I hate to see him like that, but know that is what he needs to do to beat this terrible disease. It is comforting to know that hopefully, we will soon look back at this as a bad dream rather than our daily routine. Thanks again, Stephanie

Last Year

by Rose_123 on Wed Oct 26, 2005 12:00 AM

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Hi, I went throught this in Oct 04. We finished the real pressure in April 05. Holidays were terrible and Our son was over seas in the army. We were on survival mode until July when things started getting better. The big thing was getting him back healthy. then the bills started comeing in. Yikes. I just wanted to send you a hug and a hug to all those who are waking this now. It does get better. Rose

Recovery

by Rose_123 on Wed Oct 26, 2005 12:00 AM

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Hi, It really hasnt' been that bad. He was back to work in 6 wks. Not full work but he was happy t get back to work. Keep track of all the insurance things and dates you called and who you talked to. The insurance cmopanies are doing their best to confuse you and deny what you are do. Stay on top of it. I think his problems were going on for a long time. This really has been a blessing. really, He is happier and healtheir that I have seen in years. If he had gone to a doctor sooner, it might not have been so bad. We just keep plugging away, making phone calls to get the wafers that he can use and it has become a loveing thing to change the wafer. he can't see it, hs is stigmatic and it is hard for him to see it. We are so happy with the results for the doctor and the health. I didn't know you had written, so I was just lucky to find you. As for your recovery time, I think that is personal. Some recover grumpy and other don't. I wish you the best if you do need surgery. Write more if you have questions Rose

Recovery

by Rose_123 on Wed Oct 26, 2005 12:00 AM

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Hi, We were lucky that the recovery has been good. So far he is so much better. we keep praying rose

Your Husband's Cancer

by Rda71 on Wed Jun 28, 2006 12:00 AM

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Hi Steph, My husband was diagnosed with urachal adenocarcinoma which had spread into his bladder on May 26th. He is only 32, and our daughter is 2 years old. His surgery removed the tumor and the dome of his bladder. I cannot give you much in the way of wisdom, as I am still trying to find ways to cope myself. We are trying to find a balance in supporting each other and getting through the difficult moments when fear gets the better of us. My thought and prayers are with you and your family. I was glad to see you have spoken to additional doctors and received a more positive outlook and additional treatment options. Rachel

Thank You

by Rda71 on Wed Jun 28, 2006 12:00 AM

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Wendi, Thank you. I found your positive outlook and advice very helpful! My husband has already read Lance Armstrong's book. I will look into the other book. Rachel

RE: 28 Year Old Husband Diagnosed w/ Bladder Cancer

by deedor on Wed Feb 17, 2010 06:35 AM

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hi my name is diane, i am47 years old. i want to start by saying i'm sorry to hear about your husband.  i too had bladder cancer. i was diagnosed in may of 2006.  i was in shock and took my situation to God in prayer. i believe  in praying for guidance about everything in my life.  i did not choose chemo because i believe that was the right choice for me. i had my bladder surgury to remove my bladder and now have a urostomy. (my urostomy was actually a blessing in disguise.)  i had just  celebrated my two year anniversary and two weeks later i was rediagnosed with cancer in several of my lympthnodes and some small nodules in and around the airways of my lungs.  at the time, they weren't too big of a concern for my doctor so nothing was suggested to do. well   the lympthnode in my left groin was growing larger.by my doctors suggestion i decided to have radiation on the left groin. i only had three weeks of it. the tumor only "stayed gone" for about three months. when it came back, i guess you could say it came back with a vengence.  it was growing so large that it started to protrude outside of my groin. after several months, the tumor started to open up and was draining all the time.  the whole time though, the cancer was contained in my lympthnodes. about 6or7 months ago, the cancer went into the muscle of my left leg and hip. my doctor convinced me to do two secessions of chemo.  i went in for my first treatment and only a small amount of chemo went in and i started to have reactions so i had to quit the chemo because i was allergic.  my oncologist sent me to the general surgeon to see what he could do.  well, he sent me home to die. talk about a blow. i called my case manager for my insurance company to give an update and she told me to get a second oppinion.  i'm glad i did.  i am laying in bed right now recovering from a major surgery that i had on december3,2009. i was in the hospital for three weeks and got to be discharged on christmas eve. i had to learn how to walk all over again because they had to remove all of the muscle from my inner thigh, and pieces of the upper thigh, and alot of the smaller veins, and had to replace the main artery with a synthetic one, and had to scrape the bones. i had alot of restrictions at first but most of them have been lifted.  i still have to lay in a hospital bed in my livingroom at a 30% angle because i can't sit for long because the doc wants things to heal better.  i am cut from the left groin down to my knee and on my rightleg from the upper groin and hip down to my knee. and two cuts across the pelvic area. i still have a wound vac because of all the lymph fluids.  the skin on my inner thigh has been slowly coming open where the skin was already healed. the doctor said it's because of the radiated tissue. nobody told me that radiated tissue doesn't heal very well at all so it's taking much longer than normal to heal.  i know i said alot here. probably more than you wanted to know, but i wanted you to know how much i went through so you could get an understanding of how bad things were.  you see, through all of this stuff, God has carried me through. He never said life would be easy, but He promised He would carry us through. everyone always tells me how upbeat and bubbly i am about the whole thing and i tell them "it's only by God's grace."  without it i would be a wreck. i'm sure you and your husband are already aware of how tough things can be but God is there for you to lean on. just ask Him for His strength and His peace that passes all understanding. He will give you both. the surgury that i had was to just buy me some time, but i know my life is in God's hands and i'm not worried. He is the only one who knows how much time we all have on earth whether or not we have an illness or are healthy. It's all in His hands. let Him be your rock.  i know you said you're being prayed for and having the positive attitude,and i just wanted to encourage you in all of that because that is the ultimate tip anyone can give you.  GOD IS IN CONTROL!   p.s. there is a song (one of many) that helped me through some of my most difficult times.  it's by a christian artist name ray bolts and the song is called the anchor holds. give it a listen, it'll soothe your soul.   sincerely, in His care          

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