Frustration

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Frustration

by james2334 on Fri Apr 24, 2009 12:00 AM

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My dad is on xeloda 500mg twice a day.  He does not sleep at all during the night.  We haven't slept in almost two or 3 weeks.  Does anyone have this problem with their loved one battling GBM.  My dad has been given less than 2mths from the surgeon but the neuroonc says he's doing well and 6 mths minimum.  Please help.

 

 

 

RE: Frustration

by predisposed on Fri Apr 24, 2009 12:00 AM

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Has he tried the sleep medicines?  Both Lunesta and Ambien are pretty good, and ambien I know comes in a generic.

RE: Frustration

by HeadsUp on Fri Apr 24, 2009 12:00 AM

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Restoril is a good sleep aid also. And NEITHER of the doctors can tell you how long your father has. They both are just guessing... ignore them both and take it day by day. Blessings...

RE: Frustration

by joves on Fri Apr 24, 2009 12:00 AM

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Hospitals usually have a station that plays relaxing music to help relax the patient and aid the healing process.

There are Binaural Beat music that can be downloaded off the web that can aid in sleaping similiar to that. There are beats that play at a given wavelength that can induce deap sleap. I think they are Theta and Delta waves. They play at a specific MHZ. I have found them usefull. You usually need a set of headphones to listen to them.

Comcast has a station called soundscape that plays similiar music. I played this at night when my wife had trouble sleeping. 

This is an alternative to medicine that I think can be very usefull and help get some sleap.

 

RE: Frustration

by flfrog on Fri Apr 24, 2009 12:00 AM

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I am so sorry you are going through this. we had the same experience as my dad would walk the yard and play music outside at all hours he was crazy after the surgery and the steroids kicked in and we tried Lunesta, haldol, zyprexa and finally the psychiatrist put him on depakote (in addition to the kepra) and within days he was acting normal. we still give him triazolom at night but sometimes he still fights through it and stays awake.

Don't listen to the dr's timelines. They gave my dad 6 to 18 months and one dr said 20 weeks that's it.  During the hard times I'd say this will end but here we are 17 months and while dad recently had a reoccurnce he's still doing pretty good.  It's a monster of a disease that effects everyone due to all the mental side effects but find a blessing everyday and it makes all the frustration, sleep deprivation, agreevation worth it.  I think it's a blessing that my dad's memory is so bad he doesn't really understand what's going on so he doesn't have to "deal with it" he just goes to his appointments and forgets all the bad stuff.

Be strong....it will get easier for awhile til it gets bad again at least it did for us.

RE: Frustration

by Loyce on Fri May 01, 2009 12:00 AM

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Here's what I did after receiving the news that my husband had six months after GBM IV removal:  I listened nightly to surgeon Bernie Siegel's CD and gained strength from this spiritual medical healer with great compassion.  I also took Calms, a natural sleep aide.  I now listen to meditation CDs on a regular basis.

On 4/24/2009 james2334 wrote:

My dad is on xeloda 500mg twice a day.  He does not sleep at all during the night.  We haven't slept in almost two or 3 weeks.  Does anyone have this problem with their loved one battling GBM.  My dad has been given less than 2mths from the surgeon but the neuroonc says he's doing well and 6 mths minimum.  Please help.

 

 

 


 

sleeping

by sleepychele on Sun May 03, 2009 12:00 AM

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Trouble sleeping is common for cancer patients and caregivers too. 1/2 way through chemo I was exhausted but absolutely could not sleep. They gave me Temazepam and finally....I slept! It is terrible to feel so bad and not be able to rest and get away from the yucky feeling and anxiety. I think the chemo drugs, especially steroids contribute to this. Talk to the dr about sleep aides--your body cannot heal without rest! Only God knows our time on this earth--dont listen to anyone but HIm.
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