PSA 31 Gleason 9

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PSA 31 Gleason 9

by oldflyingfarmer on Sun May 03, 2009 12:00 AM

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I have just been diagnosed with prostate cancer. PSA is 31 and my Gleason score is 9 from a TURP biopsy. It did not show up on two previous rectal biopsies. I am scheduled for a RP in May. I would appreciate any support from similar people with similar problema and how it worked out for them. Actually anything that willhelp educate me. I have been reading until I am confused.

Appreciate any help.

O.F.F. 

RE: PSA 31 Gleason 9

by skidan on Sun May 03, 2009 12:00 AM

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On 5/3/2009 oldflyingfarmer wrote:

I have just been diagnosed with prostate cancer. PSA is 31 and my Gleason score is 9 from a TURP biopsy. It did not show up on two previous rectal biopsies. I am scheduled for a RP in May. I would appreciate any support from similar people with similar problema and how it worked out for them. Actually anything that willhelp educate me. I have been reading until I am confused.

Appreciate any help.

O.F.F. 

Before you re-act too fast you need to do some research. Your cancer should be staged first. If the cancer is not confined to the prostate surgery won't cure you. It sounds like you could have advanced prostate cancer and you should see an oncologist that specializes in the prostate. Prostate cancer is usually slow growing so you have time to get second opinions and research your options. The treatments are tough enough, the side effects,you don't need additional treatments that won't be effective. Also you should look at diet and supplements to improve your odds. 

Dan

 

RE: PSA 31 Gleason 9

by oldflyingfarmer on Sun May 03, 2009 12:00 AM

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Thanks for the help. I have been reading and have been to two urologists and have been talking with one radiologist. Also, it seems a lot of people that I talk with have been through this also. Most didn't have the psa level or gleason score that I have though.

RE: PSA 31 Gleason 9

by Badmamazoo on Sun May 03, 2009 12:00 AM

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Oldflyingfarmer:

 Even if your staging was the same as mine was (T2A), the very high Gleason score is a warning that RP may NOT be the best primary treatment. With radiation or cryo, the area near the prostate can also be treated (even more so with radiation). That doesn't mean RP will not cure you but in the event there are cancer cells growing in your semical vesicles, for instance, they will remain growing after RP.

 BTW: It is normal to feel confused right now, believe me. Just remember one thing---when talking to a surgeon, he will promote surgery as the best; when talking with a radiologist, he will promote radiology as the best. In the end, you have to make the decision and that decision, whether it cures or not, will have been the best decision.  That is the only "great" thing about prostate cancer...we have some control over what is done to us.

 

 

RE: PSA 31 Gleason 9

by Johnw100 on Sun May 03, 2009 12:00 AM

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On 5/3/2009 oldflyingfarmer wrote:

I have just been diagnosed with prostate cancer. PSA is 31 and my Gleason score is 9 from a TURP biopsy. It did not show up on two previous rectal biopsies. I am scheduled for a RP in May. I would appreciate any support from similar people with similar problema and how it worked out for them. Actually anything that willhelp educate me. I have been reading until I am confused.

Appreciate any help.

O.F.F. 


 

RE: PSA 31 Gleason 9

by Johnw100 on Sun May 03, 2009 12:00 AM

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On 5/3/2009 Johnw100 wrote:

 

On 5/3/2009 oldflyingfarmer wrote:

I have just been diagnosed with prostate cancer. PSA is 31 and my Gleason score is 9 from a TURP biopsy. It did not show up on two previous rectal biopsies. I am scheduled for a RP in May. I would appreciate any support from similar people with similar problema and how it worked out for them. Actually anything that willhelp educate me. I have been reading until I am confused.

Appreciate any help.

O.F.F. 


 

Usually men need to consider hormone therapy for high risk PC

Two friends have used hormone therapy for several years for their advanced PC. One was diagnosed at the start of 2007 with PSA of 52: this subsequently reduced to .2 after a few months and he was doing well. Unfortunately he recently died from an unrelated cause at 91 years of age.

Another friend  had bone involvement and continues to do well since his PC diagnosis several years ago. He does a lot of travel, plays golf etc. His recent bone scan shows no sign of the hot spots that were evident earlier, and his PSA which was about the same as yours is now under 1. You can read his story along with details from other men at the yananow website that has information from men who have used various treatment options.

If you havn't already done so it would be prudent to consult a medical oncologist expert in prostate cancer for a further opinion before undertaking surgery.

There are many grey areas with PC: I'd want to gauge (as far as possible) that the cancer is still localized, because local treatments like surgery and radiation can not cure a cancer that is no longer local.

Having said that, Mayo Clinic and Dr Zincke have extensively used radical prostatectomy with hormonal therapy in some situations with lymph node metastases. Indications are that their patients have done relatively well.

I know you might have information overload, but for anyone with high risk PC who needs to consider hormone therapy the publication by Dr Charles Myers, "Beating Prostate Cancer: Hormonal Therapy & Diet" is essential reading. Dr Myers used radiation and hormone therapy for his own high risk PC over 10 years ago and has subsequently successfully used hormone therapy for many of his patients.

 

 

RE: PSA 31 Gleason 9

by oldflyingfarmer on Mon May 04, 2009 12:00 AM

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Thanks for the response. I talked back with the radiologist last night from RCOG. He gave me a 48% chance of being cured with him and said he did not think RP would cure me. RCOG has a database of thousands of men and follow up to make assumptions with. I am still leaning toward RP with radiation as a follow up.

RE: PSA 31 Gleason 9

by jcr65566 on Mon May 04, 2009 12:00 AM

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Hi oldflyingfarmer with Radiation I know Im going to be knock down in flames for say this but  I’ve been told it palliative care not curative that say it works if they can get all of it. The problem is they cant get all of it. I know In the pass they mostly used it for pain relief has he told you what it dos to you DNA in the long run. The way it works is, a cancer cell is weaker then one of your  normal cells so a dose of radiation kills off the cancer cells  but it also damage the normal cells these get weaker over time  and turn  also into cancer cells later on. but building up your immune system with only changing what you have for breakfast all you have to do it is no sugary foods and just mixing three table spoons of flack seed oil, and 6 table spoons of cottage cheese then put it on what ever you have for breakfast will give you a life time can you please  read this first

http://en.wikipedia.org/wiki/Radiation_therapy

 

RE: PSA 31 Gleason 9

by Johnw100 on Mon May 04, 2009 12:00 AM

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On 5/4/2009 oldflyingfarmer wrote:

Thanks for the response. I talked back with the radiologist last night from RCOG. He gave me a 48% chance of being cured with him and said he did not think RP would cure me. RCOG has a database of thousands of men and follow up to make assumptions with. I am still leaning toward RP with radiation as a follow up.

Firstly I do not know your full diagnosis, but a gleason score of 9 with high PSA implies high risk Prostate Cancer.

"He did not think RP would cure me".  I agree with your radiologist that in all probability, RP ( as the sole  treatnent) will not cure you..

"He gave me 48% chance of being cured with him". If he is suggesting that radiation as a sole treatment can offer this  probability of  a cure, I find that difficult to believe.

As previously suggested, you should consult  a medical oncologist who has no conflict of interest. A medical oncologist is not the one who will perform the operation or treatment: he will be an unbiased consultant.

 

RE: PSA 31 Gleason 9

by Amy_41 on Mon May 04, 2009 12:00 AM

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My husband is also a Gleason 9 but a much higher PSA

Have you had your major scans yet - bone scans and mri?  With a Gleason 9 it has probably escaped the margins - just how much will determine your treatment.  If its in your bones - that will be a much more advanced case then if it slightly out - My husband is received hormone therapy and will be looking at a drug trial or chemotherapy when the hormone therapy fails.

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