stage 4 we need support

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stage 4 we need support

by denisee on Tue May 19, 2009 12:00 AM

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Hi everyone I'm DEniz from Turkey.I'm writing this message for my aunt who lives in Germany and she gets her treatment there.

I 've told you about my dear aunt's stage 4.Bu for the ones readin first time I'm gonna make a short  summarry.She is 55 and last year we learned  that she had colon cancer  with metastasis in liver.She had her colon and part of his liver resected .After 1 year  of chemoteraphy (oxaliplatin 5fu) she had recurrence in liver+lungs.Her doctor planned to give another round of chemo+avastin.BUt when they were about to start the chemo they saw a spot on her gingiva(gum).They took a part of it and sent it to pathology.The doctor said that it is a rare case so it's highly imposible to be a met.But yesterday we learned that is an other met.We are devastated by this news.They've started the chemo today.Doctor says that avastin is a miracle and it can prevent the mets from spreading.I'm asking you to give us some support.Is everyting finished? Do we have any hope for her to survive?.Have yor ever experinced that kind of situation or do you know anyone like this.My family needs your support and advice.Can we win this war with colon cancer?

Thank you and I wish you healthy and happy days

 

 

 

 

 

 

 

RE: stage 4 we need support

by livingbyfaith on Tue May 19, 2009 12:00 AM

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On 5/19/2009 denisee wrote:

Hi everyone I'm DEniz from Turkey.I'm writing this message for my aunt who lives in Germany and she gets her treatment there.

I 've told you about my dear aunt's stage 4.Bu for the ones readin first time I'm gonna make a short  summarry.She is 55 and last year we learned  that she had colon cancer  with metastasis in liver.She had her colon and part of his liver resected .After 1 year  of chemoteraphy (oxaliplatin 5fu) she had recurrence in liver+lungs.Her doctor planned to give another round of chemo+avastin.BUt when they were about to start the chemo they saw a spot on her gingiva(gum).They took a part of it and sent it to pathology.The doctor said that it is a rare case so it's highly imposible to be a met.But yesterday we learned that is an other met.We are devastated by this news.They've started the chemo today.Doctor says that avastin is a miracle and it can prevent the mets from spreading.I'm asking you to give us some support.Is everyting finished? Do we have any hope for her to survive?.Have yor ever experinced that kind of situation or do you know anyone like this.My family needs your support and advice.Can we win this war with colon cancer?

Thank you and I wish you healthy and happy days

 

You can definitely win this battle.  We have a friend, was stage 4, cancer free now for 5 years.  I suggest adding holistic things such as flax oil and cottage cheese, essiac tea, ip-6, more healthy eating, supplements.  There is a great book that has helped us Cancer and the Lord's Prayer.  Will be praying for you.

 

 

 

 

 


 

RE: stage 4 we need support

by Karenb on Wed May 20, 2009 12:00 AM

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I was diagnosed as a stage IV with mets to my liver at age 46 in Feb. 2006. I have had three surgeries and numerous chemotherapies.

I have been NED for a year. It is possible to live with this cancer. I have increased surveillence and tests but have been off chemo for a year.

There are many of us stage IV out here with no evidence of disease. I don't know why one therapy works for some patients and not for others. Just keep fighting for your Aunt and seeking out alternative treatments.

Karen

RE: stage 4 we need support

by denisee on Thu May 21, 2009 12:00 AM

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Hi karen

Thanks for yor hopeful message .It gave us a reason to believe  after such  a long time.And I want to thank the people who established this wonderful site.For many days searching this site  and communicating with people has been my only job.And I believe most of you do the same.For this reason ,I want all of you to share your stories.Good or bad.It doesn't matter.We can support each other in many ways.

I wish all of you wonderful healthy days.

deniz

RE: stage 4 we need support

by BarbInTexas on Thu May 21, 2009 12:00 AM

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HI~

In 1988 I was stage IV, (est. time left: 6 wks)  and received chemo before and after surgery: Cisplatinol and 5fu, radiation, surgery (Had a colostomy at 42) and I'm totally clear at 63, still kicking, and have since had breast ca stage ii-iii, (21 positive nodes 8 yrs ago) and skin ca. (removed & gone)

Miracles do happen, we are NOT all the same, and we should all live each day as if it's our last anyway.  What a gift, to be given a warning! I've said 'goodbye' to my friends and other loved ones TWICE now, left notes on my furniture as to  'who gets it' and They Are All Still Waiting!  ;-)

If this time does not end well, then do remember that it is not a failure of anyone not trying hard enough to get well, or some such nonsense. Will power can do a lot, but sometimes it's just not in the cards. We do what we can.

Enjoy each minute, gather as much info as you can, Verify your sources, ASK questions, love each other and hope for the best outcome possible. We are always much stronger than we think we are.

Take care~ my thoughts are with you!   Barb in Tx

RE: stage 4 we need support

by Aranb on Thu May 21, 2009 12:00 AM

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Hi Denisse,

I'm st. 4 and fighting with this beast for 4 years. Had surgery, 3 times chemo. I leave in Texas, but for the last 6 month get my treament done in Germany as they have more advance diagnostics. The one most important I have done recently is the cancer cell circulating test. It determines the count (volume) of active cancer cells and their status in the body (whether they are circulating with the blood, or they station at one place. This can to determine if you need a body chemo infusion or you can afford just local chemo abolation). Also, they do chemo sensitivity test, which determine what is the best coctail would work just for you. This will increase your chances of success. They also help to fight with the side effects, if any. So, if you are already in Germany get in touch with at least a few clinics who are specialize with colon cancer, send them a medical history and ask for the proposed clinical treatment.

Good luck,

RE: stage 4 we need support

by beleiving on Thu May 21, 2009 12:00 AM

Quote | Reply

 

On 5/19/2009 denisee wrote:

Hi everyone I'm DEniz from Turkey.I'm writing this message for my aunt who lives in Germany and she gets her treatment there.

I 've told you about my dear aunt's stage 4.Bu for the ones readin first time I'm gonna make a short  summarry.She is 55 and last year we learned  that she had colon cancer  with metastasis in liver.She had her colon and part of his liver resected .After 1 year  of chemoteraphy (oxaliplatin 5fu) she had recurrence in liver+lungs.Her doctor planned to give another round of chemo+avastin.BUt when they were about to start the chemo they saw a spot on her gingiva(gum).They took a part of it and sent it to pathology.The doctor said that it is a rare case so it's highly imposible to be a met.But yesterday we learned that is an other met.We are devastated by this news.They've started the chemo today.Doctor says that avastin is a miracle and it can prevent the mets from spreading.I'm asking you to give us some support.Is everyting finished? Do we have any hope for her to survive?.Have yor ever experinced that kind of situation or do you know anyone like this.My family needs your support and advice.Can we win this war with colon cancer?

Thank you and I wish you healthy and happy days

 

 

 

 

 

 

 


I totally understand, I am 55 and I have colon cancer with mets to the liver, lymph, etc.  After two major surgerys and rounds of chemo that have been very hard on me, to the point I could come off it!!!  I just wish I knew what the future holds for me, as I am so sick on the chemo I really don't have any quality of life, or is it really making that much of a difference in the length of time I have left.  Do I spend all my time on the treatment and the side effects or just live normal until my time is up?  Someone please give me some advice on this, I am so confused.

Marilyn from Nova Scotia, Canada

RE: stage 4 we need support

by beleiving on Thu May 21, 2009 12:00 AM

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On 5/21/2009 Aranb wrote:

Hi Denisse,

I'm st. 4 and fighting with this beast for 4 years. Had surgery, 3 times chemo. I leave in Texas, but for the last 6 month get my treament done in Germany as they have more advance diagnostics. The one most important I have done recently is the cancer cell circulating test. It determines the count (volume) of active cancer cells and their status in the body (whether they are circulating with the blood, or they station at one place. This can to determine if you need a body chemo infusion or you can afford just local chemo abolation). Also, they do chemo sensitivity test, which determine what is the best coctail would work just for you. This will increase your chances of success. They also help to fight with the side effects, if any. So, if you are already in Germany get in touch with at least a few clinics who are specialize with colon cancer, send them a medical history and ask for the proposed clinical treatment.

Good luck,


I would like to get information about this clinic in Germany, as I am very interested in your story, including costs etc.

Marilyn from Nova Scotia Canada  

--Message edited by CancerCompass staff. For personal protection, email address removed. Consider private reply. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html--

RE: stage 4 we need support

by beleiving on Fri May 22, 2009 12:00 AM

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On 5/19/2009 livingbyfaith wrote:

 

On 5/19/2009 denisee wrote:

Hi everyone I'm DEniz from Turkey.I'm writing this message for my aunt who lives in Germany and she gets her treatment there.

I 've told you about my dear aunt's stage 4.Bu for the ones readin first time I'm gonna make a short  summarry.She is 55 and last year we learned  that she had colon cancer  with metastasis in liver.She had her colon and part of his liver resected .After 1 year  of chemoteraphy (oxaliplatin 5fu) she had recurrence in liver+lungs.Her doctor planned to give another round of chemo+avastin.BUt when they were about to start the chemo they saw a spot on her gingiva(gum).They took a part of it and sent it to pathology.The doctor said that it is a rare case so it's highly imposible to be a met.But yesterday we learned that is an other met.We are devastated by this news.They've started the chemo today.Doctor says that avastin is a miracle and it can prevent the mets from spreading.I'm asking you to give us some support.Is everyting finished? Do we have any hope for her to survive?.Have yor ever experinced that kind of situation or do you know anyone like this.My family needs your support and advice.Can we win this war with colon cancer?

Thank you and I wish you healthy and happy days

 

You can definitely win this battle.  We have a friend, was stage 4, cancer free now for 5 years.  I suggest adding holistic things such as flax oil and cottage cheese, essiac tea, ip-6, more healthy eating, supplements.  There is a great book that has helped us Cancer and the Lord's Prayer.  Will be praying for you.

 

 

 

 

 


Thank you soooo much for this info, I will certainly be looking into to it, and try to find that book.  I know when you have God on your side, how can you lose, so the book will be of great help to me.  Praying for you as well. I do plan on looking into holistic things.   Marilyn


 

RE: stage 4 we need support

by glsvette on Mon Jun 01, 2009 12:00 AM

Quote | Reply

 

On 5/19/2009 denisee wrote:

Hi everyone I'm DEniz from Turkey.I'm writing this message for my aunt who lives in Germany and she gets her treatment there.

I 've told you about my dear aunt's stage 4.Bu for the ones readin first time I'm gonna make a short  summarry.She is 55 and last year we learned  that she had colon cancer  with metastasis in liver.She had her colon and part of his liver resected .After 1 year  of chemoteraphy (oxaliplatin 5fu) she had recurrence in liver+lungs.Her doctor planned to give another round of chemo+avastin.BUt when they were about to start the chemo they saw a spot on her gingiva(gum).They took a part of it and sent it to pathology.The doctor said that it is a rare case so it's highly imposible to be a met.But yesterday we learned that is an other met.We are devastated by this news.They've started the chemo today.Doctor says that avastin is a miracle and it can prevent the mets from spreading.I'm asking you to give us some support.Is everyting finished? Do we have any hope for her to survive?.Have yor ever experinced that kind of situation or do you know anyone like this.My family needs your support and advice.Can we win this war with colon cancer?

Thank you and I wish you healthy and happy days

 

 

 

Yes you can survive.  I am a care giver & my lady who is 64 has survived after 1 year of Chemo & Avaistine   She has been off of Treatment for 7 months @ MDA in Houston & is doing well since she has stage 4 & was given only 2 months to live. 

 

 

 


 

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