Inflammatory Breast Cancer

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Inflammatory Breast Cancer

by LeeAnn_L on Mon Jun 23, 2003 12:00 AM

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Can anyone tell us more about this Inflammatory Breast Cancer? Our mom has it and she is only 58 years old. Never sick and one day a lump came up. She had a rash around the right nipple on her breast and it was always itching. She felt for lumps but never felt one. We have heard that the lumps go up and down. Is that true? Well it has been 16 months and she is getting worse every day. She now is on 8-9 different pills a day. Not sure if we change doctors and take her to the Cancer Treatment Center of America if they can help her or not. We need a little direction. If anyone knows about this cancer please let us know. We LOVE our mom very very much and we are not ready to lose her to this.

RE: Inflammatory Breast Cancer

by Lew_W on Thu Jun 26, 2003 12:00 AM

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Lee Ann ~ My wife, Diane, had stage 3 IBC determined approx. 3 years ago. Over a 3-month time period, we worked with a ND in Texas. 3 months later, the tumor changed its pattern of development, and was threatening to erupt through the surface of her breast. Now in a "crisis management" situation, she had a MRM and entered into the chemo/radiation protocol. During the intervening 3-month period, however, the advice and products from Gary resulted in the cancer being downgraded to a stage 2 intraductal carcinoma at time of surgery. We are now in contact with Gary again, since her cancer has metastasized twice since then. I just connected with this site, and will be checking with CTCA to determine if they have any experience with what he has proposed for use now. The primary product he has recommended is Poly-MVA (plus some supplements). From what I have gathered in my research, this is a product which is classified as an LAPD. I don't have all my notes with me, so I can't explain what the acronym stands for. However, there are some websites that have proven informative to me. I haven't received any info yet from CTCA, as to whether they have any experience with this, or other products in this category. I believe there is effective help to help beat this. From what Diane tells me, the most important aspect to her battle has been my continued support. If my experience is any indication, you also have a battle ahead of you; but it is worth fighting. We're still fighting, and I'll be including you and yours in our prayers. Hope this helps a bit. Lew (& Diane) W.

RE: RE: Inflammatory Breast Cancer

by Raymond_D on Tue Jul 01, 2003 12:00 AM

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I am being treated for cancer of the neck a cystic squamous cell carcinoma with an unknown primary at the Valley Cancer Institute in Los Angeles California. I am rooming with two ladies who have inflammatory breast cancer and both are doing very good. The treatment at this institute is low dose radiation and hyperthermia (heat). Please go into this site, as you will find this treatment very interesting. In my case the treatment is effective. They have been doing this treatment for over 30 years. In Gods Work, Raymond D.

RE: Inflammatory Breast Cancer

by Edie_S on Mon Jun 30, 2003 12:00 AM

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I don't know anything about inflammatory breast cancer but I went to the Cancer Treatment Centers of America in Zion, IL for ductal cancer with invasion and it was the best experience of my life. I highly recommend CTCA for anyone with a cancer diagnosis. You can call the CTCA and talk to an oncology information specialist free, and then make a decision as to whether to take your mother there. If I read/hear of any info on inflammatory breast cancer, I'll pass it on. Good luck.

RE: Inflammatory Breast Cancer

by Lew_W on Wed Jul 02, 2003 12:00 AM

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I mentioned the Naturopath who had helped us during the early stages of Diane's cancer fight. We will be working with him again, because of the tremendous adverse reactions Diane has had to the last series of "approved" therapy. Lew & Diane W.
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