Anyone Out there have information on Cancer of Unknown Primary?

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Anyone Out there have information on Cancer of Unknown Primary?

by William_R_1 on Thu Jun 26, 2003 12:00 AM

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My husband 48 years old was informed in May about his cancer. He has adenocarcinoma of unknown primary. It has spread throughout his nodes and is in his bones and spinal column. He is an advanced stage 4 and has been told he is looking at no cure with a life expecantcy of 6-12 months. After 4 weeks of test the Drs. haven't been able to locate the primary. They tell us that less than 15% of all cancers are unknown. Please if anyone out there knows anything good or bad we would be interested in hearing from you.

RE: Anyone Out there have information on Cancer of Unknown Primary?

by Jane_H_1 on Sat Jun 28, 2003 12:00 AM

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I don't know my primary either, but I would think they might DO some more tests on him. b/c until they know the primary, it depends on how they treat the cancer. PLUS I WOULD GET A SECOND OPINION. I don't trust drs. who like to tell you how long you have to live. I am sure you have looked for other web-sites. type in just what you are looking for, "who knows what kind of site" will show up. but don't give up, and know that there is hope out there. I don't even have med. insurance, no job, and my disability is a joke. MY family treats me like they might get it, but I want to live... let me know what you find out...Jane in CA

RE: RE: Anyone Out there have information on Cancer of Unknown Primary?

by Jan_T on Sat Jun 28, 2003 12:00 AM

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Hello, There is a lot of truth to what Jane has posted here with all do respect. Please if you can, do get a second opinion. My good thoughts are with you. I myself was diagnosed in late 1996 with ovarian cancer stage 4, they gave me about 7 months. Well! I'm still here and doing well. No reoccurence to date. After a hysterectomy and chemo treatments for just about 8 months...it worked. I also had a lg. tumor on the liver and the chemo worked on that as well. You never know about this cancer stuff. I hope things will turn around for you. Peace and blessings...Jan

Cup - Cancer of Unknown Primary - Adenocarcinoma

by Loveudad on Sun Feb 27, 2005 12:00 AM

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My father was also diagnosed with CUP. His adenocarcinoma was in a tumor in the groin area of his leg. He was having problems with swelling, and it was thought originally that there was a blood clot, but upon further investigation, it was a tumor in the lymph nodes. When the tumor was biopsied, it turned out to be a metastasis, adenocarcinoma, with the likelihood being gastrointestinal (gastric or colorectal) of nature, although the possibilities of billiary and lung were there as well. My dad is 65, a smoker, and had no previous symptoms. His CEA tumor markers went from 190 to 300 in about 3 weeks. He is fatigued and having trouble urinating. His appetite has also started to decrease. He saw a homeopathic practitioner who prescribed for him a kidney activator from Nature's Sunshine as well as bovine colostrum and a bowel cleanser. He did take the kidney activator and the bovine colostrum, but did not notice any reduction in swelling, in fact more discomfort. I spoke with his oncologist and she said that he still had cancer in his leg (post surgical) and that he had several hot lymph nodes in his abdomen. She also said that xrays showed a suspicious lesion on his liver. I had wondered if it might be liver cancer because he had had Hepatitis as a teenager, although pancreatic cancer would seem to fit the bill as well because it is on his right side. Anyhow, the doctor still thinks that it is gastrointestinal, although an upper GI and a colonoscopy gave him a clean report. The cancer might be in the small intestine, although Dad has had no problems with stool or otherwise with his stomach. She recommended chemo as a palliative measure soon as possible, and he is going in on Monday. I don't think there is any plan to further research his cancer, probably because it is at such a late stage, and putting him through further diagnostics would be a moot point and probably put further stress on his system. The particular type of chemo she is using would hit all the likely sources of his cancer anyway. I am trying to find information that would help to supplement his treatment. His prognosis untreated is also 6 to 12 months, 12-18 months with chemo, and this appears to be stage 4 cancer. My dad has medicare and no other insurance. He lives on a very low income in NY. I am also looking into what financial measures can help him pay for his hospital copays and medicines. I understand chemotherapy is very expensive, and his doctor plans treatments every other week for at least three months. I have heard the following treatments mentioned on this site: Protocel 23 rubetican (from Super Gen) Viruzlin but I don't know much about them. I also don't know what to expect at this stage of his cancer, it being far advanced. Any advice is appreciated.

Unknown Cancer

by Rose_123 on Tue Aug 09, 2005 12:00 AM

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Hi, There is a site on the net you might like to read. I agree with the other post. Look for more help. Cancer Treatment Centers of America might be good to look into. the site is www.cancertutor.com. It doesn't recommend specific products but it has history and information that might help. rose

RE: Anyone Out there have information on Cancer of Unknown Primary?

by Daughters_Love_1 on Sun Mar 11, 2007 12:00 AM

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My dad was diagnosed with adenocarcinoma of an unknown primary in February. It was found in his lungs, liver and spine. He started losing weight and feeling tired so they started testing and found nothing. His symptoms remained so they continued testing and 3 weeks later they tested again and there it was. He is stage 4. The doctors said his survival rate is less than 6 months without treatment and possibly 2 years with chemotherapy - surgery is not possible. However, after prodding for information - I learned more than 2-5 years was possible. They tried finding the source but have not been able to so instead of continuing, they started treatment the samre week. They are still looking for the source but are going to try and treat him blindly. It is almost time for his second of three treatments and is doing very well with it. He is facing a large battle but is determined to overcome what he can and his attitude has made all the difference. My grandfather had the same determination and lived years longer than expected. He rests when he is tired and eats whenever he feels a little hungry and supriseling he is maintaining his weight now and has quite a bit of energy. Do not give up hope and do seek a second opinion - a doctor that is willing to fight as hard as his patient is.

RE: Anyone Out there have information on Cancer of Unknown Primary?

by Daughters_Love_1 on Fri Apr 13, 2007 12:00 AM

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In February, my father was diagnosed almost with the same thing. Adenocarcinoma of an unknown primary. He was already stage 4, with spread to lungs, liver and bones. He was receiving chemotherapy and they said if sucessful he would survive possibly two years. Without treatment, less than 6 months. However, as the chemo progessed, he weakened so terribly bad that before his third treatment, they stopped it. His liver is not functioning properly now and they have sent in hospice to help with the pain. He now has 2-4 months (is what the doctors are giving him) If they had put in a feeding tube maybe things would have been different. My mother-inlaw is a nurse and her husband came down with cancer (not as bad as my dad) but she demanded a feeding tube and he was able to keep his energy and weight up to survive treatment. My father is now too sick to get a feeding tube and there is not much left they can do now. He is 56 - He is now fighting it on his own without medicie praying for a miracle to give him more time. So please just don't go by everything they say (they said my father they were confident they could slow it down) and do as much research as you can about every option. Just because they don't think something would help that much doesn't mean it won't.

RE: Anyone Out there have information on Cancer of Unknown Primary?

by Rick1340 on Tue Apr 24, 2007 12:00 AM

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On 6/26/2003 William R. wrote:

My husband 48 years old was informed in May about his cancer. He has adenocarcinoma of unknown primary. It has spread throughout his nodes and is in his bones and spinal column. He is an advanced stage 4 and has been told he is looking at no cure with a life expecantcy of 6-12 months. After 4 weeks of test the Drs. haven't been able to locate the primary. They tell us that less than 15% of all cancers are unknown. Please if anyone out there knows anything good or bad we would be interested in hearing from you.

My wife (46 yrs old) was just diagnosed with CUP on her liver.  They spent about the same amount of time with the same results. Unknown Primary.

The prognosis is very poor. She started chemotherapy . I hope the tumors start to shrink before the liver fails......

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