New to this site

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New to this site

by Dar_O on Tue May 26, 2009 12:00 AM

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I have EC at the GE Juction with 2 nodes involved. I go to MD Anderson in Florida. I fininshed chemo and radiation on April 29th and have been put inb the hospital twice since because of dehydration. The last time I was in I had to get 2 pints of blood and shots because my white blood cells were low. I go for a PET/CT and a scope next week to see how the treatment went. I am on a feeding tube in my nose and I'm having trouble eating and drinking. I have no appetite or desire to eat. I also have burning in my chest that wraps around my side to my back when I eat certain foods. I have no energy and have been very emotional.  Help!  Darlene

RE: New to this site

by Ever4015 on Tue May 26, 2009 12:00 AM

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On 5/26/2009 Dar O wrote:

I have EC at the GE Juction with 2 nodes involved. I go to MD Anderson in Florida. I fininshed chemo and radiation on April 29th and have been put inb the hospital twice since because of dehydration. The last time I was in I had to get 2 pints of blood and shots because my white blood cells were low. I go for a PET/CT and a scope next week to see how the treatment went. I am on a feeding tube in my nose and I'm having trouble eating and drinking. I have no appetite or desire to eat. I also have burning in my chest that wraps around my side to my back when I eat certain foods. I have no energy and have been very emotional.  Help!  Darlene


Sorry to meet you under these circumstances. I know after treatment one has no desire to eat, but please eat whatever you can to keep up your strength, try simple things like oatmeal, macaroni and cheese, mashed potatoes, ice cream, protein shakes, carnation instant breakfast, ensure or boost, but you have to try even if it is small amounts, and remember to drink as much as you can little sips at a time. Walking is good to keep your energy up. It does get better in time. So, did they mention surgery at all? Try to stay positive and the emotions are common we've all been through a vast variety of them. If you have any questions or concerns feel free to ask and if you need support we are here. There should also local support groups in your area, maybe you could check them out. Stay in touch and let us know how you are doing. I myself am 9 1/2 months post op. I had Chemo for 9 weeks, then the Ivor Lewis surgery and 1 round of Chemo after surgery but I became very ill so they stopped all Chemo. I am getting better every day, but at times my energy levels are low, but I push myself and keep going and I try to stay positive. I lack appetite, but I eat because I know I have too, but I tend to eat to much junk food to get the calories as I cannot eat alot at once and if I were to eat only good food I would never get enough calories in me. 

Take Care and Be Positive

Evelyn

 

RE: New to this site

by luvliving on Wed May 27, 2009 12:00 AM

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On 5/26/2009 Dar O wrote:

I have EC at the GE Juction with 2 nodes involved. I go to MD Anderson in Florida. I fininshed chemo and radiation on April 29th and have been put inb the hospital twice since because of dehydration. The last time I was in I had to get 2 pints of blood and shots because my white blood cells were low. I go for a PET/CT and a scope next week to see how the treatment went. I am on a feeding tube in my nose and I'm having trouble eating and drinking. I have no appetite or desire to eat. I also have burning in my chest that wraps around my side to my back when I eat certain foods. I have no energy and have been very emotional.  Help!  Darlene


I had radiation and chem last summer with surgery to follow in November. I know how you feel. It is very hard to eat, think, move, or anything els.  But you have to be strong and fight through the discomfort.  Eat small amounts often, walk as much as you can even if you don't feel like it. Try to keep positive because as time passes it difinitly gets better. I lost 43 lbs but I'm ok with that weight. They have really good meds for upset nausia too. I found faith in God to be extremely helpful.  God bless you and post if you need more information. Bill

RE: New to this site

by Judyduncum on Tue Sep 24, 2013 12:07 PM

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I have E C diagnosed just over14 months had 9 weeks chemo. My tuma. Had dent shrunk. So no op for me then after pet scan and ct scann had 5 weeks radiation with 2 lots of double chemo I'd been eating via a feeding tube for eleven mths and even though there was no change in my tuma i started to eat normally it is getting a little difficult to eat know but I'm doing ok so hang in there praying for you
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