Do your research and know what's going on!!! After LEEP....

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Do your research and know what's going on!!! After LEEP....

by babies on Wed Jun 03, 2009 12:00 AM

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Okay, long story short....

as some of may have read (on my posts), I was diagnosed with HGSIL ("precancer") with severe displasia. Had a cloposcopy that confirmed PAP reuslts and had a LEEP on May 15. It wasn't painful or anything. I drove myself and drove home (1 1/2 hrs.) no problem. Four days after procedure I was still having heavy gross discharge and then started bleeding. A week later I went to the doctors office because the bleeding was getting worse and cramping was severe. I saw my doc on the morning of Thursday May 28. Drove the 1 1/2 there with severe cramps and she said the site looked great. She cauterized a "pin needle" size area and sent me home. I ended up calling her Thursday night in tears. I was bleeding so bad that I was going through a super plus pad in less than 30 minutes! I also was passing large blood clots. My cramps felt like I was in labor. Her response, "I don't know what to tell you, the area looked great. I don't know where the bleeding is coming from. If you don't stop bleeding in a week come back in. Or if you want, you can come in tomorrow morning and we can do a blood test." I told her I will be sitting in a pool of blood within an hour. She said I could always go to an ER but there was nothing she could do.
Ended up going to the ER that night. Doctor there told me that if I had waited a week my OBGYN would have been visiting me in the morgue!
Needless-to-say I will NEVER be going back to that doctor. After seeing a new doctor that FRiday he said the area she removed was more than half the size of my uterus. A VERY large area for this procedure. I am still bleeding but not nearly as much. And my original doctor said to follow up in 6 months with a PAP but my new doc says not to wait more than 3 months with such severe displasia.

The reason I wrote this was not to scare anyone going through this experience but to inform you to know what's going on with your own body. If you feel something is wrong, get a second opinion. Doctors can definitely be wrong. They are human.

RE: Do your research and know what's going on!!! After LEEP....

by babies on Wed Jun 03, 2009 12:00 AM

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Sorry, my mistake, the area was half the size of my cervix not uterus :)

RE: Do your research and know what's going on!!! After LEEP....

by herenow on Wed Jun 03, 2009 12:00 AM

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You are going to have to report our doctor to the medical board. If you don't have a copy of everything in your file, get it. You may have to pay for it, but it will be worth it. Don't mention the medical board. She may start purging the file, which is illegal. But you must do this to prevent her from ever doing this to another patient.

What happened to you and me is exactly why I caution women to research their conditions, their options, and their doctors before agreeing to anything.

I am truly sorry this happened to you.

RE: Do your research and know what's going on!!! After LEEP....

by herenow on Wed Jun 03, 2009 12:00 AM

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I'm sorry, I meant to say report your doctor, not our doctor. I already reported my doctor.

RE: Do your research and know what's going on!!! After LEEP....

by babies on Thu Jun 04, 2009 12:00 AM

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I have reported her and got copies of everything everytime I went in. Ladies...DO that, get copies of EVERYTHING every time you are seen.

RE: Do your research and know what's going on!!! After LEEP....

by RedSoxFan on Thu Jun 04, 2009 12:00 AM

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I am so sorry to hear this from you and for you!  I am going for mine on 17 June.  I did get my reports after reading this forum.  I talked to him about laser, etc and do feel comfortable with this decision right now.  Although my labs didn't say anything like how much was involved or quadrants but more "lesion at 6 o'clock".  Anyway, I am sorry again to hear this and so glad you went to the ER.  You must trust your body! 

RE: Do your research and know what's going on!!! After LEEP....

by SydsMom on Fri Jun 05, 2009 12:00 AM

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I am so glad and proud of you for realizing that there was definitely something wrong and you weren't going to wait any longer to get medical attention.  My cancer doctors (at one of the best facilities in the country) were terrific, but when I deal with the local doctors, they don't seem to know how to think!  They refuse to see what is in front of their eyes and don't want to hear what you're saying, even though you are an expert on your own body.

Anyway, good luck and keep advocating for yourself.

RE: Do your research and know what's going on!!! After LEEP....

by sonchine on Sat Jun 06, 2009 12:00 AM

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Hi!  You poor thing.....I have been doctoring with one of the highest rated University Hospitals in the mid-west...and I gotta tell ya, I've had some of the worst experiences ever !!!

I had a cold knife cone biopsy for the same thing.  Only, I healed up in record time.  Have NOT had any excess bleeding, no cramping, no discharge.  But, I had to see an oncologist, because the pathology report, was totally goofed up. On the first page it lists an in situ tumor being large enough to be seen by the human eye.  On page 3 of the report, it lists it as so small, it can only be seen by a microscope!!  Big difference, huh???

But, this DR was in such a hurry, he only read the first page of the report, and didn't finish (or explain) any of the rest of it.  (that was done by a DR here, where I live)  After he did an internal check (that hurt like hell, because I was still healing from the cone biopsy, which they removed 3/4's of my cervix)...he admitted he COULDN'T see the in situ, and made the comment, "Hmm, must need a microscope to see it !!"  and scratched his head....OH BOY !!!

He wants to sliced me from the bottom of my rib cage to above my pubic bone, and rip out everything:  uterus, ovaries, muscles surrounging my uterus, many lymph nodes.  He also cautioned me that this surgery comes with RISKS of permanent damage to my bladder, and intestines !!  Yeah, like I want to do that !! 

After I had another GYN/OB DR here read the FULL report, she was shocked at the misprint in the pathology report....Of course, she attributed it to the fact the University Hospital is a teaching hospital, and one of the residents probably wrote down the results WRONG !! 

OH MY GOD !!!  Like I'm suppose to excuse that?????

I have had many x-rays, CT scans, untra-sounds and a D&C.....Everything has come back CLEAR....no tumors, etc.

I am heading back on Wednesday for ANOTHER consult with them.  I'm not 100% sure I need all this radical surgery....even my DR here is shaking his head at their diagnosis !!  Even radiation at this point is way to radical of a treatment !!!!!!!

If I had just given up and gone with the first diagnosis, I'd no doubt be on heavy pain meds, wearing Depends, and hoping I don't "poop" on myself!!

So, you see, DR's do make mistakes....QUESTION everything...ACCEPT nothing without lots and lots of proof !!!

Good luck !!

 

RE: Do your research and know what's going on!!! After LEEP....

by tricial on Tue Aug 24, 2010 01:54 PM

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i realize this is about a year after the individual posts, but the blog is still up on frong page so i read the posts and figured i'd share my story.  Not so much of a nightmare, just straight up incompetency.  I had gone for my regular pap and found that I had some, at that time, non cancerous cells on my cervix.  The particular type, i can't quite remember now because it was last july, had the potential to turn cancerous. i discussed with my ob/gyn two options.  beore she could even get to the second option, i was already signing up for the hysteractomy.  Well we scheduled that date and lo and behold i got a call from her about 3 days later telling me that my insurance denied it.  The form that the dr fills out describing why a hyteractomy is needed apparently didn't meet all the criteria HE needs.  So, she elaborated a little more and it was approved.  I wasn't nervous or bothered by my decision, so things were pretty smooth.  Well, when i woke up from surgery, lo and behold, i am sporting a catheter.  SHE CUT MY BLADDER!  at that moment i tought, oh my goodness, what else went wrong?  i had to have that uncomfortable bag for 9 days and when it was time to be removed, she sent me to the hospital they are associated with.  ok, it was removed.  2 weeks later, I got a bill in the mail for over $400.00 from the hospital.  the costs AFTER my insurance company paid for their services rendered (i could have pulled catheter out myself, lol). well i called insurance company and said "do not pay that bill, i went in for hysteractomy and she cut my bladder. not part of the procedure?  the rep told me "it's already been paid, its fine" i was shocked that they didn't send the hmo a bill for repayment.  i walked my bill into the hmo office and do you believe that it still hasn't been resolved.  i refuse to pay it.  during a follow appt i asked the dr how often i needed o come back for paps and she said "you don't ever have to have one again" i said "excuse me, have you not heard of ovarian cancer ,remember, i still have my ovaries"  I realize and respect that they are people too, but please pay attention when it comes to  the important things you are being asked by your patient. I i never went back for a pap and years down the road develop ovarian cancer, whats my argument? the dr who cut my bladder and forgot she left my ovaries in is not too bright?  lol.  I am very happy that I had it done.  Life is wonderful without auntie flo making an appearance whenever she feels like it. lol.

RE: Do your research and know what's going on!!! After LEEP....

by Roselvr on Wed Aug 25, 2010 10:51 PM

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On Aug 24, 2010 1:54 PM tricial wrote:

i realize this is about a year after the individual posts, but the blog is still up on frong page so i read the posts and figured i'd share my story.  Not so much of a nightmare, just straight up incompetency.  I had gone for my regular pap and found that I had some, at that time, non cancerous cells on my cervix.  The particular type, i can't quite remember now because it was last july, had the potential to turn cancerous. i discussed with my ob/gyn two options.  beore she could even get to the second option, i was already signing up for the hysteractomy.  Well we scheduled that date and lo and behold i got a call from her about 3 days later telling me that my insurance denied it.  The form that the dr fills out describing why a hyteractomy is needed apparently didn't meet all the criteria HE needs.  So, she elaborated a little more and it was approved.  I wasn't nervous or bothered by my decision, so things were pretty smooth.  Well, when i woke up from surgery, lo and behold, i am sporting a catheter.  SHE CUT MY BLADDER!  at that moment i tought, oh my goodness, what else went wrong?  i had to have that uncomfortable bag for 9 days and when it was time to be removed, she sent me to the hospital they are associated with.  ok, it was removed.  2 weeks later, I got a bill in the mail for over $400.00 from the hospital.  the costs AFTER my insurance company paid for their services rendered (i could have pulled catheter out myself, lol). well i called insurance company and said "do not pay that bill, i went in for hysteractomy and she cut my bladder. not part of the procedure?  the rep told me "it's already been paid, its fine" i was shocked that they didn't send the hmo a bill for repayment.  i walked my bill into the hmo office and do you believe that it still hasn't been resolved.  i refuse to pay it.  during a follow appt i asked the dr how often i needed o come back for paps and she said "you don't ever have to have one again" i said "excuse me, have you not heard of ovarian cancer ,remember, i still have my ovaries"  I realize and respect that they are people too, but please pay attention when it comes to  the important things you are being asked by your patient. I i never went back for a pap and years down the road develop ovarian cancer, whats my argument? the dr who cut my bladder and forgot she left my ovaries in is not too bright?  lol.  I am very happy that I had it done.  Life is wonderful without auntie flo making an appearance whenever she feels like it. lol.

I'm sorry you had to go through that - how horrible!

About the bill from the hospital - ask your insurance for the EOB (Explanation of benefits) it will show how much was paid - as well as if YOU owe anything. You wouldn't believe the BS I'm dealing with for hubby's treatment. Most billing people are rude, talk to me like we are low lifes - when it turns out it was billed wrong by them; or they weren't paying attention to what they agreed to in the insurance contract. Most agree they will "eat" a certain amount - that is probably what they are trying to bill you for - hoping you will pay it because you're not paying attention.

~Hugs

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