Newly dignosed MGUS with symptoms

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RE: Newly dignosed MGUS with symptoms

by jlccrum on Mon Mar 23, 2015 10:27 PM

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I agree with you, I am newly diagnosed 30 days ago, today I had bone marrow biopsy cause my immunoglobulin was 46% ofcourse my neurological pain the Dr contribute it too other causes. Mgus has no symptoms I said bull shit if you don't know then say you don't know instead of a confident answer that may or may not be true

RE: Newly dignosed MGUS with symptoms

by taraman on Fri Aug 07, 2015 12:49 AM

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Hi there,

I have recently been diagnosed with MGUS after my doctor could not explain my symptoms of leg and joint pain and general stiffness.  He definitely thought there are symptoms  associated with the disorder, and that it is an auto-immune response where the joints and muscles are attacked.

I have had a CAT scan, skeletal survey and blood tests that confirm the diagnosis.

Unfortunately he said there is no treatment.

I am interested in any successful treatment other sufferers have found. Thanks,

Ralph

RE: Newly dignosed MGUS with symptoms

by Debbie61 on Tue Sep 08, 2015 09:48 PM

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Thank you that someone else is having similar symptoms as me. I am beginning to think I am nuts when the Drs. just brush off your symptoms. I have been newly diagnosed with Mgus within the past couple months and would like to know if you or anyone else has gastrointestinal symptoms also. I have been having pain and inflammation in my stomach/colon area with off and on nausea and diarrhea. Is this a common symptom or should I be worried about something else? I have had X-rays and CT scan showing nothing much but diverticulosis. I would appreciate any feedback on symptoms others have and what can be done to help relieve them. Thanks and good luck to everyone. This may be a watch and see disease but it isn't without some suffering apparently. Debbie

RE: Newly diagnosed MGUS with symptoms

by johnf46 on Fri Sep 18, 2015 09:41 PM

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I was diagnosed with severe sensori motor nueropathy I was also diagnosed with mgus the fatigue and tiredness  most days I find it hard to walk like you the haematology tell me theres no symptons with mgus with numbness in both legs , muscle loss ,numbness coming into my hands the fatigue makes it worse

RE: Newly dignosed MGUS with symptoms

by taraman on Sat Sep 19, 2015 11:55 PM

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Hi there,

I have had no gastric symptoms with mgus, just the lack of flexibility, painfull hips and legs.

I have been taking NSAIDS such as Ibuprofen which has helped somewhat though I am mindfull that long term use or high doses can result in peptic ulcers and increased blood pressure so I take them sparingly.

Have also begun a course of "Vital 3", a collagen supplement that has given considerable relief to mgus sufferers I believe.  As this compound takes 4-6 weeks to display it's effects I cannoy personally vouch for its efficacy after only 2 weeks.  Perhaps check out the website. 

All the best,

Ralph 

RE: Newly dignosed MGUS with symptoms

by Debbie61 on Sun Sep 20, 2015 01:25 AM

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Ralph, Thanks for your reply and help. I too have pain and stiffness daily in my hips, legs and back. I also have arthritis and degenerative disc disease along with the mgus and take anti-inflammatories on a limited basis only when the pain gets intolerable. Thank you for the suggestion of the "Vita 3". I will definitely research and see if this might be something I might try. I hope you begin to see results soon. Would be interested in hearing if you see any improvement in the coming weeks. Good Luck ! Debbie

RE: Newly dignosed MGUS with symptoms

by Majolica on Thu Sep 24, 2015 12:20 PM

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I have had mgus for almost 10 years.  YES! There are symptoms!  Many of which you all decibed.  Exercise is the best way to combat muscle & bone pain. 

RE: Newly diagnosed MGUS with symptoms

by yankeedollar on Thu Dec 10, 2015 03:50 PM

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I just got my sep and imunofixation results so not too familar with it all. Says monoclonal IGM lambda present. No free lambda light chains seen. Monoclonal protein seen in IFE below threshold of PE. I also have ITP. Anyone have any thoughts? See hemo next week. Thanks

RE: Newly diagnosed MGUS with symptoms

by Coachstephie on Tue Dec 15, 2015 12:49 AM

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On Jun 05, 2009 12:00 AM stevem57 wrote:

I also have MGUS with symptoms although no doctor has agreed with me on that. It was a neurologist who found my m-spike while looking at my neuropathy, they sent me to the oncologist. I have the leg and pelvic pain with inflammation and neuropathy in both legs. We are not crazy, this stuff affects your body. I have "flu" days about twice a week in the summer and 5 days a week in the winter. It gets old quickly. Hang in there. My GP gave me Limbrel for the inflammation, it works great.

May I ask what is meant by "flu" days? Do you feel like you have the flu with body aches and nothing else or do you actually get fluish? 

RE: Newly diagnosed MGUS with symptoms

by Yellowox1 on Sat Feb 27, 2016 04:09 PM

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Is this thread still going? I was diagnosed with MGUS in December 2015 and that was after a nightmare year when I had a serious chest infection in March and had x-rays and then discovered that I had broken vertebrae in my back, then diagnosed with osteoporosis and I constantly feel tired and in pain. I have been on Lyrica since January for neuropathic pain in my legs and feet mainly, but also in my arms and hands.

Neil

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