I need info and support for my dear friend

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I need info and support for my dear friend

by friends4ever on Fri Jun 26, 2009 12:00 AM

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Hello all,

I have just joined on here. I have been reading the stories and I thought you could help me as well.First of all I wish everyone who is fighting with this enemy a great health and strengh to supporters.

Well mydear friend who is 39 with a lmost 3 year old daughter has just been told that she has a Pancreatic cancer and it has spreaded to liver as well. They have done the Biopsy last wednesday so we are going to get the results on monday from a oncologst. She had a CT scan and some blood tests as well. She is suffering with a abdominal pain whic spreads to her back every 4-5 weeks.... she goes to her local dr's and given paracetemol ... then checked for stomach bacteria then check with endoscopy for ulcer then gallbladder stones and now here we are.She also have the gall bladder stones too. finally they did the CT and told us the sad news.Inthe meantime 10 months has passed :(

Here in UK they said they cant operate the pancreas and they can refer to her to palliative care .This did not gave us any hope at all.It sounds like they are giving up on her already... they also said after a biopsy result they must start to chemo asap.Wellshe will be having a second oppinion after monday from a specialized hospital but my questions are ;

She is originally from Italy.. should she go there ?is there a better treatment there thn UK...?

Can something be done even though it spreaded to Liver?

I am being very positive to her supporting as much as I can. printing survival stories and giving to her.But I am very very sad deep down and can not think of a life without my friend especially cant bear to see her little girl grow up with no mummy :( 

What do you recommend support wise or what are the stages etc.

 

Thanks millions for reading.

Wish you all the best

 


RE: I need info and support for my dear friend

by Unknown_Member on Fri Jun 26, 2009 12:00 AM

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On 6/26/2009 friends4ever wrote:

Hello all,

I have just joined on here. I have been reading the stories and I thought you could help me as well.First of all I wish everyone who is fighting with this enemy a great health and strengh to supporters.

Well mydear friend who is 39 with a lmost 3 year old daughter has just been told that she has a Pancreatic cancer and it has spreaded to liver as well. They have done the Biopsy last wednesday so we are going to get the results on monday from a oncologst. She had a CT scan and some blood tests as well. She is suffering with a abdominal pain whic spreads to her back every 4-5 weeks.... she goes to her local dr's and given paracetemol ... then checked for stomach bacteria then check with endoscopy for ulcer then gallbladder stones and now here we are.She also have the gall bladder stones too. finally they did the CT and told us the sad news.Inthe meantime 10 months has passed :(

Here in UK they said they cant operate the pancreas and they can refer to her to palliative care .This did not gave us any hope at all.It sounds like they are giving up on her already... they also said after a biopsy result they must start to chemo asap.Wellshe will be having a second oppinion after monday from a specialized hospital but my questions are ;

She is originally from Italy.. should she go there ?is there a better treatment there thn UK...?

Can something be done even though it spreaded to Liver?

I am being very positive to her supporting as much as I can. printing survival stories and giving to her.But I am very very sad deep down and can not think of a life without my friend especially cant bear to see her little girl grow up with no mummy :( 

What do you recommend support wise or what are the stages etc.

 

Thanks millions for reading.

Wish you all the best

 



So sorry your friend and you are having to go through this.  I had the same diagnosis in 9/08.  In fact, today is 9 months since I got the diagnosis.  I'm still functioning and doing well.  I still play golf at least twice a week and feel like I can live for quite a while longer.

 I think your doctors are wrong.  I don't know how your medical insurance works (if that is a concern) but I would see a second or third opinion. 

The chemo can work to prolong life.  I would be gone by now if it weren't for the chemo.  I started on Gemzar and Tarceva which did not work and I had bad side effects.  I was switched to 5 FU and Leukovarin and the first scan after that showed shrinkage in all tumors. 

If you don't get any results from the first chemo, try another.  There are many combinations.  Also look for clinical trials. Clinicaltrials.gov is the site we use here and there are many that have multiple locations such as Japan, Germany, etc.

I don't want to give you any false hopes.  Pancreatic cancer that has spread to other organs is very serious.  The only hope is to prolong life and hope a cure is on the horizon.  I've read of some hopeful drugs in trial that may be the answer.  But, we just have to keep plugging along and hope that cure is just around the corner.

I don't have any insight into other country's treatments.  You may have really good oncologists there.  If not, I would look to the US.  M. D. Anderson in Houston, TX and John's Hopkins in Baltimore, Maryland have great facilities and deal with this beast regularly.  There are many others here that have great results.

Best wishes.  Hope this is of some help.  Don't give up.  As one of our great american baseball players said, "It ain't over 'til it's over.

RE: I need info and support for my dear friend

by friends4ever on Fri Jun 26, 2009 12:00 AM

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Hi ACE42

 

Thank you so much for your reply.Welldone for  fighting with this and willingless to live. Sometimes people gives up on themselves.I am not giving up on her and I never accept things and look for options. I am so scared that if she gives up on her. She should try her best for her little daughter.

I have a friend who took his mum to M.D Anderson and I know they are one of the best.They have a great result with same diagnosis and she is over 60 and past 2 years she is alive with a great life condition just on the regular check up. I guess which stage you find is important but she also had all spreaded as well and I hear you dont actually find out this PC until after really late stage as it is like a submarine...M.D is very expensive they say and I do not think they can effort that.They will be deffinetely going to the best one in London which is ; the royal marsden.

I wish you a great recovery and I pray for everyone's health.

 

 

RE: I need info and support for my dear friend

by Unknown_Member on Mon Jun 29, 2009 12:00 AM

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Thanks for your response.  I suppose the Brittish medical plan wouldn't cover treatment in the states but worth looking into.

Keep us posted on the progress.

RE: I need info and support for my dear friend

by severinobusa on Tue Dec 01, 2009 08:17 PM

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Hi, my name is jenna. I would like to tell you that my da who is a young 81, was diagnosed with esophageal cancer 7 yrs ago. This cancer is hard to survive. He had a hard time swallowing and thats how he found out. Keep up your faith, they have so many new ways of treating cancer now. Just get a great team behind you, God bless

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