the end?

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the end?

by justins_mom_1 on Tue Jul 07, 2009 12:00 AM

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Hello,

My son has been on hospice for seven weeks now. He has many of the end signs listed on brainhospice.com other than he still wakes to eat, and can drink liquid. He can't move (other than his right arm), he can't see very well, he hallucinates, he sleeps a good bit, and he cannot control his bowel functions. The hospice lady said that he may have "awhile" left. I think we are nearing the end. Has anyone had their loved one not follow the signs on brainhospice? I've always heard good things about it.

RE: the end?

by Sherylrjr on Tue Jul 07, 2009 12:00 AM

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Hello Justin's Mom,

Everyone is different. Some of the systems can very.

 I will keep you in my prayers. I know this is a very difficult time.

Sheryl

RE: the end?

by Ritzy on Tue Jul 07, 2009 12:00 AM

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Hello - let me say how sorry I am for you and your son and family.  It's torture, I know.

I followed brain hospice and it was pretty well on target - remember, some eat up to a few days before they pass. My Mom ate alittle with help on Tuesday and passed away on Thursday morning. 

Again, I'm so very sorry for you - I wish there was something I could say or do to help.  Hang in there and I will be praying for you!

Rita

RE: the end?

by umiljar on Tue Jul 07, 2009 12:00 AM

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My deepest sympathies to you for the stages that brain cancer took your Son and family through and I pray that Hospice is able to manage the final stages of this disease without pain.    

My 35 year old Sister also is in hospice and has the same conditions you describe.  It's really difficult to know at this stage because they have such strong hearts,good blood pressure and pulse.  Her speech is really hard to understand and words are really difficult too find and also cannot use bathroom.  She has told the Neuro Oncologist she does not want any meds that will keep her alive now and is there anything to speed up the process as the suffering is  Mentally, emotionally & physically too much and will leave behind her 15 year old daughter & 8 year old son.

He said stopping the steroids and putting her on a morphine drip would make this go faster.  He did say he does not know how long death will take at this stage.  There is no way to know and everyone is different.

God be with you and your Family.

Julie

 

  

The Neuro Oncologist visited her yesterday and

 

RE: the end?

by faith11 on Tue Jul 07, 2009 12:00 AM

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On 7/7/2009 justins mom wrote:

Hello,

My son has been on hospice for seven weeks now. He has many of the end signs listed on brainhospice.com other than he still wakes to eat, and can drink liquid. He can't move (other than his right arm), he can't see very well, he hallucinates, he sleeps a good bit, and he cannot control his bowel functions. The hospice lady said that he may have "awhile" left. I think we are nearing the end. Has anyone had their loved one not follow the signs on brainhospice? I've always heard good things about it.


HI Justin's mom

First I want to say how sorry I am that you are going through this.  My mother was in hospice care for almost eight weeks.  It was torture for us, the brainhospice website was a great help, but we also found that she did not appear to go through some of those changes.  The one thing that was definite was within a week she lost her ability to speak (nothing came out just sounds), her ability to move, and stopped eating on a saturday and passed away on monday late evening, the day she passed away her breathing took a completely different turn, to us it appeared like she was gasping for air.  But the nurses told us it was just the change.  I guess what I wanted to say it use that as a guide but each person is so different.  But there have to be some key signs.  Stay strong, God Bless

RE: the end?

by 570sheila on Tue Jul 07, 2009 12:00 AM

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Keeping you and your son in my thoughts and prayers....may he go with God peacefully.

RE: the end?

by TeresaMW on Thu Jul 09, 2009 12:00 AM

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I am sorry about your son. My sister is in Hospice now also due to brain cancer . The "signs" are exactly what brought me to this website looking for the same answers. I have been researching brain cancer and the final stages for months now and the only consistent answer I have got is everyone with brain cancer is different. My sister has had alot of the final signs but is still here. She had the "death rattle" , cheyne stokes, bowels quit working, and fever. That was 3 months ago. I have noticed with my sister though that she shows a sign or two and then stays there for a couple of weeks then gets weaker and stays there and so on. The unkown is what haunts us. Knowing our loved one will be leaving us but not knowing when or being able to stop is is pure torture. The brain is very mysterious and with our loved ones I think we know more than the nurses about "when" because of our connection with our children,sisters,moms,dads,wifes,....I hope you find the answer your looking for. Good luck and god bless

RE: the end?

by TeresaMW on Thu Jul 09, 2009 12:00 AM

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I guess what i was trying to say in my previous message is with brain cancer , you can't go by the signs and if you try you will be living on a constant roller coaster of emotions. Go by what you see and feel. There is no stronger bond than that of a mother and child which goes beyond physical signs. Do you keep a log of his changes everyday? If not, maybe that will help you see the changes on paper and you can figure out his pattern. We , as caregivers, are with them 24/7 and tend to get overwhelmed and forget things that happen , in which order, for how long ,etc....

Again good luck and god bless you and your son.

RE: the end?

by Diana_G_2 on Tue Jul 21, 2009 12:00 AM

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How old is your son?/ My son is 17 dx 11/08

I will pray for a peaceful journey.

RE: the end?

by justins_mom_1 on Tue Jul 21, 2009 12:00 AM

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On 7/21/2009 Diana G wrote:

How old is your son?/ My son is 17 dx 11/08

I will pray for a peaceful journey.


Hello Diana,

Sorry to hear about your son. Is he doing well? My son is fourteen now, he was 12 when diagnosed. Thank you for praying for Justin, prayers are always appreciated!

My own prayers to you and your son,

Jamie, Justin's mom

www.caringbridge.org/visit/justinh

 

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