Lu-177 Dotatate Therapy

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Lu-177 Dotatate Therapy

by Shashikanth on Wed Aug 26, 2009 12:00 AM

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Hello there, We live in Bangalore, India. Lst month my brother was been diagnosed with Medullary Carcinoma (Thyroid Cancer). We realized it late. Since there were no symptoms, we could not realize it early. The decease has spread to liver and lung also. A PET scan was done to determine the extent of the decease. We consulted oncologists (both medical and surgical). Due to the advanced stage, surgery to remove the thyroid has NOT been advised. Instead doctors are suggesting to go for Lu-177 Dotatate therapy. I would like to know if any one in this community has undergone this treatment. If yes, could you please let me know results? How is the patient after the therapy? Usually how many times the therapy needs to be given? How expensive is this treatment? This drug is available in very limited quantity. So it is most likely that the drug needs to be imported from The Netherlands. Thanks in advance and Kind Regards

RE: Lu-177 Dotatate Therapy

by wyogirl on Wed Aug 26, 2009 12:00 AM

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You might try searching Pubmed at www.pubmed.gov. Technical stuff, but for something that's apparently this new and specialized, you might have to go for the technical journals.

It looks also like there are some variations on the name (eg. 177Lu vs. Lu177), so you may want to try some variations on the search. 

RE: Lu-177 Dotatate Therapy

by Lucy_in_Texas on Sat Dec 18, 2010 11:11 PM

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To Shashikanth about brother's Medullary Carcinoma and Lu-177. I have had three rounds of this treatment for carcinoid cancer of the abdomen, retroperitoneum and mediastinum (chest.) I had two surgeries but the disease has continued to progress. My doctors in the US tried to keep me from getting the treatment as it is only available here in one place: Excel Diagnostics in Houston. At the time I was seeking it, the treatment (PRRT) was not available in the US at all. I went first to Germany and then to Switzerland. I would go back and probably will return to Switzerland for another round of the treatment fairly soon. It has improved my quality of life greatly although it is not considered a cure for my particular type of cancer. If you can get it in India, please let me know. I am trying to find out where in the international community the treatment is available. I have more information on cost and my own experiences on my blog: lucysnoidblog.blogspot.com

RE: Lu-177 Dotatate Therapy

by ghouse on Fri Apr 15, 2011 05:14 PM

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Lu 177 -Dotatate Therapy

available at HCG hospital/Bangalore/India

please contact Dr Kallur - his phone +919844083662

 

best of luck

ghouse/Dubai

RE: Lu-177 Dotatate Therapy

by vijaykirp on Fri Jul 08, 2011 11:14 AM

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On Apr 15, 2011 5:14 PM ghouse wrote:

Lu 177 -Dotatate Therapy

available at HCG hospital/Bangalore/India

please contact Dr Kallur - his phone +919844083662

 

best of luck

ghouse/Dubai

You can also contact Dr. B A Krishna 

Head - Nuclear Medicine

Hinduja Hospital, Mahin, Mumbai

+912239818181

+912224449199

best of luck

Vijay

RE: Lu-177 Dotatate Therapy

by asharenent on Sun Sep 14, 2014 06:33 AM

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On Dec 18, 2010 11:11 PM Lucy_in_Texas wrote:

To Shashikanth about brother's Medullary Carcinoma and Lu-177. I have had three rounds of this treatment for carcinoid cancer of the abdomen, retroperitoneum and mediastinum (chest.) I had two surgeries but the disease has continued to progress. My doctors in the US tried to keep me from getting the treatment as it is only available here in one place: Excel Diagnostics in Houston. At the time I was seeking it, the treatment (PRRT) was not available in the US at all. I went first to Germany and then to Switzerland. I would go back and probably will return to Switzerland for another round of the treatment fairly soon. It has improved my quality of life greatly although it is not considered a cure for my particular type of cancer. If you can get it in India, please let me know. I am trying to find out where in the international community the treatment is available. I have more information on cost and my own experiences on my blog: lucysnoidblog.blogspot.com "" target="_blank" rel="nofollow">http://lucysnoidblog.blogspot.com " target="_blank" rel="nofollow">lucysnoidblog.blogspot.com

As I understand, this treatment is available in India at Jaslok Hospitals and Hindujas hospital in Mumbai as well at HCG at Bangalore and at New Delhi. I know of this based on my wife being advised to go for PRRT treatment for Jejunal carcinoid in lever. However, I am surprised to learn from my insurers that this treatment is as yet not approved by any Government approving authorities and it is only being cleared on research basis by the Bhabha Atomic Energy. However, I am also informed by the Jaslok hospital that this is an approved treatment and has been treated by them since 2010 . They do this every month twice and they have a waiting list maintained for patients for not his. According to them some private insurers like HDFC Ergo have accepted and cleared for this treatment in July this year.

RE: Lu-177 Dotatate Therapy

by mzengin on Tue Mar 14, 2017 02:31 PM

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I have NET with unknown primary location. Chemotherapy of six rounds stopped the progress (and surgery). I will get lu-177 treatment in couple of weeks as my obcologist belive it responds better than radiotherapy. For people looking alternative location for lutetium treatment, it has been applied in cerrahpasa university hospital in Istanbul, Turkey and hospital produces the chemicals in house which means they have long time expertise. Prof. Levent Kabasakal is in charge of this treatment. Their contact details is available on internet. Search for Istanbul university cerrahpasa tip fakultesi (Istanbul university cerrahpasa hospital)

RE: Lu-177 Dotatate Therapy

by DStone on Fri Apr 26, 2019 06:52 AM

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Hello, I hope you are well. I’m wondering how this treatment was for you? I had one of four on April 16th and I’ve just started feeling better with no pain just two days ago. Can you tell me what your experience was like and outcome for stabilizing your disease? I am 37 yo. with metastatic Poorly differentiated NET with the primary doctors believe being the primary site. TY, Danielle
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