PET Scan Whole Body

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PET Scan Whole Body

by hapsood on Wed Aug 26, 2009 12:00 AM

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Dear Everybody,

I got my PET scan for whole body done on 18.08.2009. It says no malignancy seen. The report is negative for cancer. I went for PET scan on my own without consulting any Doctor. My doubt is whether are there any type of cancer cells which can go undecteced in PET scan. 

2. If I am negative for cancer then how come the syptoms are there for IVth stage oral cancer.

3. Can that PET machine malfunction ?

Please advise I am worrried

RE: PET SCAN WHOLE BODY

by Chessie on Wed Aug 26, 2009 12:00 AM

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On 8/26/2009 hapsood wrote:

Dear Everybody,

I got my PET scan for whole body done on 18.08.2009. It says no malignancy seen. The report is negative for cancer. I went for PET scan on my own without consulting any Doctor. My doubt is whether are there any type of cancer cells which can go undecteced in PET scan. 

2. If I am negative for cancer then how come the syptoms are there for IVth stage oral cancer.

3. Can that PET machine malfunction ?

Please advise I am worrried


Maybe I'm missing something here but why would you go for a PET without a doctor authorizing it?  Do you even have a doctor?  What makes you think you have stage 4 oral cancer?

If you suspect you have oral cancer, you need to see a doctor ASAP.  There are tests other than the PET to help determine diagnosis.  And cancer cannot be diagnosed properly without a biopsy.

As for the PET, yes, it can show false positives.  But you can also have very small cancer cells which would not show yet on a PET scan. 

You need to see your primary doctor and the sooner the better.

God Bless 

RE: PET Scan Whole Body

by Katbur on Thu Aug 27, 2009 12:00 AM

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I must agree with the previous response. A PET scan can malfunction but it is not a frequent occurrence.

If you believe you have symptoms of oral cancer you need to be seen by a physician immediately.  Cancer is not something to self diagnose as many other issues can come into play and almost anything you believeis a "symptom" of cancer may in fact be something completely different. 

Best of luck!

Kate 

RE: PET Scan Whole Body

by cautusasterius on Thu Aug 27, 2009 12:00 AM

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On 8/26/2009 hapsood wrote:

Dear Everybody,

I got my PET scan for whole body done on 18.08.2009. It says no malignancy seen. The report is negative for cancer. I went for PET scan on my own without consulting any Doctor. My doubt is whether are there any type of cancer cells which can go undecteced in PET scan. 

2. If I am negative for cancer then how come the syptoms are there for IVth stage oral cancer.

3. Can that PET machine malfunction ?

Please advise I am worrried


1. Who diagnosed you with stage 4 oral cancer? You mean to tell me that you had a biopsy and everything? 2. What kind of oral cancer? 3. How were you able to get a PET scan without a doctor ordering the test? It's not like you can go to PET Scans 'R' Us at the local strip mall to get one on your lunch break.

 As far as PET scans go -- no test is foolproof, but  I've never heard of someone with a stage 4 cancer having a false negative result.  Stage 4 cancer is kind of has a way of speaking for itself. 

 My advice is, if you really have a serious reason to suspect cancer -- i.e. a mouth sore that won't heal, unusual swelling, pain, etc. go see a Ear, Nose and Throat specialist (ENT) and get a proper diagnosis from someone who has experience with the disease. Only a biopsy result can confirm cancer. 

 

 

RE: PET Scan Whole Body

by Wesley1 on Thu Aug 27, 2009 12:00 AM

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Hapsood,

 For the PET scanner to pick up a lesion it has to be greater than approximately 5 mm and it has to be metabolically active.  The PET works off of radioactive glucose, so for it to detect a tumor it has to be more metabolically active that the surrounding tissues.  This is why PET scans are not used for renal and bladder cancers, as the urinary tract is the  method of excretion and would be impossible to detect.  Also, ther are some cancers that are not metabolically active enough to be positive on a PET scan.

Head and neck cancers do not usually fall into this catagory, as they are very agressive and have a high sensitivity for FDG uptake.  If you request a copy of you PET scan on disc from the facilty, it will come with a player that will allow you to look at it on your computer.  If it is completly blank then there could have been a problem with the scan, typically you can see a fuzzy outline/shadow of the major organs, heart, lungs, bowels, g i tract, etc.  You should be able to read the radiologist report and look at the scan and make sense of it.

 Wes

RE: PET Scan Whole Body

by trehouse60 on Thu Aug 27, 2009 12:00 AM

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"PET scan whole body" does NOT scan the entire body.  The scan goes up as far as the neck but does not include any part of the head, and goes down as far as the knees.   Therefore PET scan is not indicated/effective for detection of oral cancer, unless there is suspected or known metastasis to the neck, trunk or long leg-bones. 

RE: PET Scan Whole Body

by Broken on Wed Oct 20, 2010 02:23 AM

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PET/CT scans can and did give false hope of my late husband.  Out of three PET/CT's done over a course of 8 months, each new scan showed more cancer in a different location.  His original cancer was tongue cancer.  3 inch tumor/stage IV in left side of tongue.  Surgery to remove on 12/09.  By middle of 2/10, already having massive mouth/bone pain, ear aches.  Farted around for almost 3 months with 2 ER's, Ear Nose & Throat Dr. that performed the removal of tumor, dentist & oral surgeon and NOBODY connected the dots and mentioned this was all probably due to more cancer.  Got fed up and I called radiation oncologist we had previously spoken with.  She instantly stated, it's all more cancer, didn't know why the others did't tell us.  Then it spread to his R & L neck nodes & lungs, then between 2nd & 3rd chemotherapy treatment it totally distroyed the lower gums/still extreme pain up to his ears and the floor of his mouth called the mandible.  What a hell of a mess we were in.  He lost his battle.  YOU NEED TO GET ON THE BAND WAGON - IF YOU HAVE STAGE 4 MOUTH CANCER & ITS IN THE FORM OF A TUMOR THAT SPREADS LIKE WILDFIRE AS OURS DID, MAY THE GOOD LORD BE WITH YOU.  You need to get so aggressive with this problem.  Timing is everything here.  Good Luck. 

RE: PET Scan Whole Body

by Georgenone on Wed Oct 20, 2010 03:24 AM

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On Oct 20, 2010 2:23 AM Broken wrote:

PET/CT scans can and did give false hope of my late husband.  Out of three PET/CT's done over a course of 8 months, each new scan showed more cancer in a different location.  His original cancer was tongue cancer.  3 inch tumor/stage IV in left side of tongue.  Surgery to remove on 12/09.  By middle of 2/10, already having massive mouth/bone pain, ear aches.  Farted around for almost 3 months with 2 ER's, Ear Nose & Throat Dr. that performed the removal of tumor, dentist & oral surgeon and NOBODY connected the dots and mentioned this was all probably due to more cancer.  Got fed up and I called radiation oncologist we had previously spoken with.  She instantly stated, it's all more cancer, didn't know why the others did't tell us.  Then it spread to his R & L neck nodes & lungs, then between 2nd & 3rd chemotherapy treatment it totally distroyed the lower gums/still extreme pain up to his ears and the floor of his mouth called the mandible.  What a hell of a mess we were in.  He lost his battle.  YOU NEED TO GET ON THE BAND WAGON - IF YOU HAVE STAGE 4 MOUTH CANCER & ITS IN THE FORM OF A TUMOR THAT SPREADS LIKE WILDFIRE AS OURS DID, MAY THE GOOD LORD BE WITH YOU.  You need to get so aggressive with this problem.  Timing is everything here.  Good Luck. 

This goes to some of the other replies also.

Been there, done part of that. They butchered my neck and never touched the problem I went in for. When answers were demanded and they were told they did not get the problem all I got was the surgical margins were clear. I told them to figure out what the problem was or send me to someone who can. Perhaps not the way to deal with the most qualified doctor in the area but I don't give a dam.

When such problems occur they say that very small tumors do not show up in scans. But they grow fast and suddenly show up the size of golf balls.  ????????????????????  Now it is called recurrent cancer. But it was there before surgery. So, is it recurrent cancer or is recurrent cancer just a fail-safe defense? 

A Question for all the knowledgeable people out there. If a doctor cannot find a tumor while doing a neck dissection, how can he possibly find tiny lymph nodes that may have cancer? Since I am not a doctor, I suppose this is just considered a stupid question.

One more sour note! Prior to diagnosis or treatment I was seen at 4 different medical faculties which all had ENTs who claim severe jaw pain headaches and earaches are normal with a sore throat. They already knew I had a history of neck cancer and had no interest in looking for a problem. Ha ha very funny, their level of intelligence is most impressive.

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