Severe one-sided ear pain

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Severe one-sided ear pain

by Nvrgivup on Wed Oct 14, 2009 12:00 AM

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Its been almost 6 months since my husbands radiation to his neck for SCC on aryepiglottic fold. Last biopsy showed no cancer and we are so thankful.  He got through the withdrawal symptoms from pain patches, with help knowing  most of you went through the same symptoms.  After he took off that final patch his one sided ear pain has worsened to the point we went to ENT and oncologist and was told, like everyone else, it is referred pain from throat and gave him a script for neurontin 300mg working up to 3 a day.  I have been on this med before and felt like a zombie on it.  My husband has been in bed all morning after taking one yesterday, and another this morning. I don't know which is worse, the pain or the medicine.  Just when he thought the "fog" was gone from the fentanyl, now he has been put on another drug that causes fog-brain.  Has anyone else been on this med, or tried any other med for this neuropathy pain to the ear? 

Sorry to sound so negative, its just so hard to see him go through this. I feel helpless even though I am on the phone constantly with his doctors. His blood pressure is up to 163/98,and we go to see his PCP today about that and maybe referral to a pain management doctor.  He is trying to do speech therapy excersices, but can't get through them because he feels those make the ear pain worse.  He is suppose to go back to work in a couple of weeks, and I don't know how.  Any suggestions would be appreciated!

RE: Severe one-sided ear pain

by rick51 on Wed Oct 14, 2009 12:00 AM

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I've been out for 18 mos. and still have ear pain in both ears. Not nearly as bad as yours soun ds, but it is there. Over time it has gotten better, more of an itchy ear now.

God Bless,

Rick

RE: Severe one-sided ear pain

by D1211 on Thu Oct 15, 2009 12:00 AM

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On 10/14/2009 Nvrgivup wrote:

Its been almost 6 months since my husbands radiation to his neck for SCC on aryepiglottic fold. Last biopsy showed no cancer and we are so thankful.  He got through the withdrawal symptoms from pain patches, with help knowing  most of you went through the same symptoms.  After he took off that final patch his one sided ear pain has worsened to the point we went to ENT and oncologist and was told, like everyone else, it is referred pain from throat and gave him a script for neurontin 300mg working up to 3 a day.  I have been on this med before and felt like a zombie on it.  My husband has been in bed all morning after taking one yesterday, and another this morning. I don't know which is worse, the pain or the medicine.  Just when he thought the "fog" was gone from the fentanyl, now he has been put on another drug that causes fog-brain.  Has anyone else been on this med, or tried any other med for this neuropathy pain to the ear? 

Sorry to sound so negative, its just so hard to see him go through this. I feel helpless even though I am on the phone constantly with his doctors. His blood pressure is up to 163/98,and we go to see his PCP today about that and maybe referral to a pain management doctor.  He is trying to do speech therapy excersices, but can't get through them because he feels those make the ear pain worse.  He is suppose to go back to work in a couple of weeks, and I don't know how.  Any suggestions would be appreciated!


 

I've been finished with treatment just about the same amount of time as Rick.  Get pain on and off in one ear, but mainly just a nasty discharge of  (for lack of a better description) sandy- like substance.

Have addressed this with both my ENT and radiation oncologist and both told me that it is a common side effect of radiation, neither seemed very concerned.  But then its not their ears is it?  

 Sorry I can't offer any suggestions for pain relief.  The only thing that helps me "clean out" my ear is a mixture vinegar and alcohol, something used for swimmers ear quite commonly. Wish I could be more help, but did want to let you know that you are not alone.

Best, Debra

RE: Severe one-sided ear pain

by MEEMERZ on Thu Oct 22, 2009 07:54 PM

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Hi Diane - I hope Marty is doing better.  Is he going back to work on Monday?  I know that will make him feel more secure.  Rob and I think of you often and hope he is doing better.  Rob seems to be eating somewhat better - it just takes him forever to swallow very much food.  His weight seems to be staple and he doesn't use the feeding tube as frequently as he did.  He was finally approved for Long Term Disability.  I think that was a downer for him - he so wanted to go back to work.  I guess his age and this horrific diagnosis just put him at too much risk.  Take care of yourself - you both are in our daily prayers.   Cheryl 

RE: Severe one-sided ear pain

by MEEMERZ on Wed Oct 28, 2009 03:46 AM

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Dianne - it breaks my heart to see you two going through so much.  All of this seems so unfair.  I know that we can't look back but I have done the same a few times.  The new Cancer Center that opened close to Mercy seems like a Godsend.  It speaks of such precise radiation so that surrounding tissue won't be damaged.  I really wanted to go for a second opinion when Rob was diagnosed but he refused and I was outnumbered by our daughters : )   We were told from the beginning how difficult radiation would be but I am not sure we totally understood.  Rob is struggling with teeth (or maybe I should say lack of teeth and bone issues) now.  They removed 4  bottom jaw teeth before radiation.  Now - bone fragments are working up through the skin - the oral surgeon told Rob on Monday that he was going to have to be extremely careful with the tissue because it wouldn't not heal properly.  I didn't ask a lot of questions - I guess I am afraid to know what that might mean.  Rob wants implants or partials and they tell him no - he has to continue to wait. 

Even with all of this I feel that Rob is lucky compared to some.  I remember the horrible mucus - that was one of our first difficulties and the smell was horrible.  He had that spit cup forever!  Even now he says the mucus at times is so thick he can't swallow.  With no saliva it will never get a lot better I suppose.  Dr. Taylor put him on Salogen to help increase the salive - I may have already told you this - sorry I am rambling. 

I hope Marty's biopsies were clear.  Please let me know.  Our prayers, Cheryl

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