Has anyone survived esophageal Cancer?

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RE: Has anyone survived esophageal Cancer?

by reddanyo on Thu Oct 06, 2016 10:55 PM

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The love of my life, now my husband was diagnosed 4 and the doctor said no survival just extended life. This week and last his blood shows great signs. Doctor said if you looked as his blood you would not know he had cancer. fabulous! 24'weeks of non stop chemo he's handling it great but the radiation week5 is starting to impact him. I'm hoping he will beat this no matter what the doctors said when he was diagnosed.HOPE it is all I know right now. I love this man but he's not to tolerate these days always angry an sensitive. I can handle it.

RE: Has anyone survived esophageal Cancer?

by aaashay on Thu Oct 06, 2016 11:03 PM

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Hey Reddanyo!

My dad is diagnosed with stage 3 and he finished with 35 radiations and 5 chemos last week. The blood reports after a week's time from the 5th chemo were good, the doc said. This monday, we have been called by the doc as he wishes to check if the 6th chemo is needed. He too, has become very sensitive and irritable. I can totally understand what you're going through! Thankfully, such behaviour is temporary and the God has given us strength to handle it. :) Good luck !!

RE: Has anyone survived esophageal Cancer?

by esophageal on Fri Oct 07, 2016 10:48 AM

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I was diagnosed with a stage III adenocarcinoma of the esophagus (esophagel cancer) and when I was diagnosed they told me I had a 5-10% chance of living 5 years. That was 16 years ago. If I had listen to the doctors and accepted their prognosis I would have been dead by now because I would have given up.

You need to continue to do things that are positive as I believe having a positive attutude will help in his survival. The things that are past are over and you can only learn by them, the things in the future you have no control over nor do the doctors so that is in God's hands. You can however control the present, the moment you are in and you should make that as positive as you can. Enjoy it.

You indicated the doctor said "no survival just extended life". I thought survival meant extending life. 

Early on in my treatment I came up with a saying "that God sits on my right shoulder and there is nothing that He and I together can't handle".

My wife and I created the Esophageal Cancer Educaiton FOundation (ECEF) www.fightec.org , Take a look

As Dr Schuller use to say on his TV program God Loves you and so do we.

Bart 

 

RE: Has Anyone Every Survived Esophageal Cancer?

by Georgef on Wed Oct 26, 2016 10:30 PM

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I had a Esophageal "pull through" seven years ago. Lost 90 bls. I was in such poor condition i could not have Chemo or Radiation. Five years later (2.5 years ago) it came back. Then two months of Chemo and Radiation. I have gained 20 lbs back. During that time i had a knee replacement, twice scatica, 26 stitches on my face. The suvivial rate is 10% for five years. I am now nearing my eight year. I realize now the God has a purpose for me. That with God (Romans 8:31) on your side, who or what can be against you. I have started a Cancer Support Group in Marlboro, NJ. I feel that my experience can help others and theirs can help me.


George Ford

RE: Has Anyone Every Survived Esophageal Cancer?

by esophageal on Wed Oct 26, 2016 11:38 PM

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On Oct 26, 2016 10:30 PM Georgef wrote:

I had a Esophageal "pull through" seven years ago. Lost 90 bls. I was in such poor condition i could not have Chemo or Radiation. Five years later (2.5 years ago) it came back. Then two months of Chemo and Radiation. I have gained 20 lbs back. During that time i had a knee replacement, twice scatica, 26 stitches on my face. The suvivial rate is 10% for five years. I am now nearing my eight year. I realize now the God has a purpose for me. That with God (Romans 8:31) on your side, who or what can be against you. I have started a Cancer Support Group in Marlboro, NJ. I feel that my experience can help others and theirs can help me.


George Ford

Yes I agree God's Plan for us works.

We have formed the Esophageal Cancer Education Foundation www.fightec.org " target="_blank" rel="nofollow">www.fightec.org and we are based in Manalapan NJ. We have conference call support group meetings once a month adn ahve people from all over teh U.S. participating.

Check out our web site www.fightec.org " target="_blank" rel="nofollow">www.fightec.org

Bart

RE: Has anyone survived esophageal Cancer?

by Wickedinns on Thu Oct 27, 2016 12:03 AM

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I know where you are coming from !!! My hubby is my best friend...my rock.. I cannot imagine life without him...so I don't!!! We live everyday and have as much fun as we can. We have learned to live for the here and now !!! We are fighting and fighting hard... but most important we live, love and laugh. None of us know when our last day will be. Prayers and positive thinking... stay strong !!!!!! We pray for everyone one in this battle !!!! Wanda. :)

RE: Has anyone survived esophageal Cancer?

by Stacey1972 on Thu Oct 27, 2016 08:31 PM

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I am an 8 year survivor of locally advanced squamous cell carcinmoma.  i was diagnosed as a stage 3/4.. spread to nearby nodes, but no metastisis... i was borderline 4 because of the size of my tumor and it had penetrated my esphagus wall.  i took part in a clinical trial at MSKCC.  When treatment was complete, all tests showed no evidence of disease.  I had the ivor lewis surgery and pathology proved no evidence of cancer.  it was a long hard road, but with the right doctors, a positive attitude and the support of my loved ones, i beat it and so can your brother.  the part about squamos is, that although it is rarer than adenocarcinoma, it reacts better to treatment. 

Please feel free to ask me any questions.. it is a pleasure to be on this good earth and if i can help anyone in anyway, it's a privelage. 

I wish your brother and your family well.. Stay strong!  Bless!

-Stacey

RE: Has anyone survived esophageal Cancer?

by Laurablevins on Thu Oct 27, 2016 09:15 PM

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I was dioagnosed with stage IV squamous cell esophageal cancer in March of this year. It had spread to my lymph nodes. I responded well to radiation to my C6. The tumor had completely taken over that area.  I had tumors about 7cm in my lymph nodes on my left side of my neck, and those are almost gone. The cancer had spread to my lungs and also a spot on my liver was shown on the PET scan.  Those are all gone. My doctors are talking about immunotheropy.  Does anyone have any information on this topic for this type of cancer?  I am also trying to change my diet. I have always eaten healthy.  I am trying things from the Rainbow Diet book now.  My doctors also told me that sugar does not effect tumor growth, but all that I've read suggests otherwise.  Apparently, this type of cancer was big in the eighties, but now it's not common in the states. It is commom in Asia, mainly Japan. 

I have also undergone chemo with taxol and plat. drugs.  I had seven sessions with these drugs, and they seemed to have worked. Unfortunatly, the moment I got off of them, the lymph nodes started to grow again. I am in SW Florida and have an appointment at the Moffitt Hospital next week to see my second opinion doctor.  I have heard good things about the proton laser theropy.  It doesn't do damage to the organs around the spine. It only targets the tumors. Has anyone had proton theropy?  Also, any pointers on how to get my counts up?

I am hear if anyone would like to discuss or just talk about this with. I know I could use it.

Laura

RE: Has anyone survived esophageal Cancer?

by Laurablevins on Thu Oct 27, 2016 09:25 PM

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Hi Stacey,

Thank you for posting your message of hope. I too have stage 4 squamous esophageal cancer. My doctors are not giving me much hope for a cure.  I have responded well to the chemo drugs plat. and taxol, but my primary doctor took me off the plat. and now am only getting the taxol.  The lymp nodes are starting to grow again. The other tumors are gone, according to the scans.  What is MSKCC? I was told no surgery. What is the ivor lewis surgery. 

Sorry for all the questions, but just need answers,

Laura

RE: Has anyone survived esophageal Cancer?

by Bilbosmom on Fri Oct 28, 2016 02:52 PM

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Laura, Sorry you are dealt this card. The reason I am responding is that my 30 year old married son was diagnosed at stage IV. He was able to receive Herseptin along with his 5 different rtypes of chemo therapy. The herceptin worked at keeping the cancer from spreading rampantly. He only received radiation to control pain when options ran out. He tolerated the chemo so well, although terminal he was the healthiest cancer patient of his specialist at Mayo in Minnesota. He was a good "lab rat". They did try the Keytruda therapy with which Jimmy Carter was successfully treated. The problem was my son was too advanced to be able to wait for the Keytruda to work. If you can get into any immunotherapy trial or treatment go for it. And we all support the right diet and no sugar. Doctors don't argue for it, but they may be simply be looking long term. In the short term, anything that doesn't feed the cancer is so important.  No my son did not survive his E/G cancer. The doctors have him 2 years and he lived 2 years and 1 week. He died Feb 2016 but due to aggressive treatment and healthy life and diet he lived well up to the last 2 months. We learned a lot about treatments. The chemo treatment should never stop. We discovered the problems with radiation therapy, which in the beginning we thought it was the way to proceed. Then we learned why it wassn't offered. Blood counts. My son's bloods were perfect, I do mean perfect for 23 months. That was when he started regular radiation. My son was not offered the proton laser. Mayo's new proton laser is being scheduled for young patients, brain tumors and people who are not terminal. We had hoped he would be a candidate. It is so precise it does so much less damage. Because the mapping is so precise, the proton laser is not generally used when there are several changing areas requiring treatment. Someone else needs to let you know about how to get counts up.

I replied because there is so much promise in immunotherapy, but so little research going into this much less common esophageal cancer. If you can find a facility which does, contact them. God bless you.

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