Has anyone survived esophageal Cancer?

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RE: Has anyone survived esophageal Cancer?

by HoneyBee7877 on Tue Jan 03, 2017 06:43 AM

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Hi all,

My dad , 74, diagnosed EC squamous cell carcinoma in May 2016 with severe dysphagia. He went tru 5days a week radiotherapy for 28times, combined  with weekly chemo of Carboplatin & Paclitacel for 6times. Treatments started May17 till June24 2016.

Recent Endoscopy,  Biopsy and CTScan results shown that my dad has survived from his EC with no other maglinancy found.

Thanks for the recommendation of Rainbow Diet....i will go get this book. May God bless you all. 

RE: Has anyone survived esophageal Cancer?

by JanaB on Thu Jan 12, 2017 02:49 AM

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I was diagnosed with stage esophageal cancer almost exactly a year ago. I had a gall bladder attack in late December that sent me to the emergency room. Susequent tests found the cancer and a really bad gall bladder that had to come out before I could start treatment. I had 5 weeks of chemo and radiation, 8 weeks of recuperation, then surgery July 1. I returned to work late August. I had a feeding for 6 weeks before I was okay to eat solid food. The surgeon removed 1/3 of my stomach and esophagus. I still have some trouble swallowing, unless I chew my food up very well and have something to drink to help it go down. I've lost about 85 lbs, but was pretty overweight to begin with. I have my 6-month CT scan next month to make sure nothing is growing back. My surgeon assured me that he got it all and I didn't need additional chemo for which I was very grateful. So far so good, except for a few nights with acid reflux, despite taking Prilosec every day. I have to stop eating at least 2 hours before bed time. I also try to eat several small meals a day, since I can only handle about 8 or so combined ounces of food and liquid at a time. I also take a multi-vitamin/mineral tablet and pro-biotics.  I also take an herb called anamu(Guinea hen weed) which is supposed to have anti-cancer properties and turmeric, also anti-cancer. So there is hope for a cure.

RE: Has anyone survived esophageal Cancer?

by Georgef on Thu Jan 12, 2017 01:13 PM

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On Jan 12, 2017 2:49 AM JanaB wrote:

I was diagnosed with stage esophageal cancer almost exactly a year ago. I had a gall bladder attack in late December that sent me to the emergency room. Susequent tests found the cancer and a really bad gall bladder that had to come out before I could start treatment. I had 5 weeks of chemo and radiation, 8 weeks of recuperation, then surgery July 1. I returned to work late August. I had a feeding for 6 weeks before I was okay to eat solid food. The surgeon removed 1/3 of my stomach and esophagus. I still have some trouble swallowing, unless I chew my food up very well and have something to drink to help it go down. I've lost about 85 lbs, but was pretty overweight to begin with. I have my 6-month CT scan next month to make sure nothing is growing back. My surgeon assured me that he got it all and I didn't need additional chemo for which I was very grateful. So far so good, except for a few nights with acid reflux, despite taking Prilosec every day. I have to stop eating at least 2 hours before bed time. I also try to eat several small meals a day, since I can only handle about 8 or so combined ounces of food and liquid at a time. I also take a multi-vitamin/mineral tablet and pro-biotics.  I also take an herb called anamu(Guinea hen weed) which is supposed to have anti-cancer properties and turmeric, also anti-cancer. So there is hope for a cure.

I saw your notice on Cancer Compass and had to reply.  Many of your remarks are a mirror of mine. I had the operation for esophageal cancer 8 years ago.  A mistake was made after the operation and i was in critical condition for 30 days and lost 90 by the end of 2009. But i am still in stage one today. Yes i do have eat a little at a time. I was told i had a "pull through" procedure so my stomach is pull up and attached to the throat and shoulder area. I did not have my chemo and radiation(8 weeks) until 5 years later.  That is when the problem with eating and swallowing started. I can not eat very solid food like steak,  pork, chicken etc.  I do have to cut my food very  small and chew each amount fully. Once in awhile i make a mistake and gag on my food. This i have to be very carefull in a restuarant. At home my family is used to it.I have adjusted my life to concentrate on what is important.

My family and sports lol. I enjoy the Yankees, Giants and Knicks to my sadness. I now run a Cancer Support Group at at local church and i am in the process of starting another. I strongly suggest you get hooked up with one. If can be of any further help just send me a note.

God Bless

George Ford 

RE: Has anyone survived esophageal Cancer?

by tanseyj on Sat Jan 14, 2017 02:42 AM

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Yes, people do survive EC? But, how long, you don't know. I was digagnosed in September 2014. I will say it has been 'Hell for about 2 12 years'. I am now cancer free! There is a good chance that the cancer will return. I live day to day and try to enjoy my life. The bad: Chemo, Radiation, feeding tube, blocked esophagus, Major surgery, Finances, I could go on. The good: Doctors and Nurses, Hospital staff, Caregivers, friends that care,  etc. I went through 28 Radiations, 3 1/2 moths of chemo with the 46 hr pump at times. Tiny spot found and operatin was cancelled, forever, by my surgeon. More chemo for 3 months and no cancer! Stent placed in esophagus to enable me to eat. Slipped down after a short time and coughing up blood. Airlifted to hospital 75 miles away at $45K. Stent removed. Opted to have it put in again and stitched or clamped. Doctor said it would be life threatening, again. Still I wanted to eat. Dilation failed and doctor did not put in stent? Only option was operation. Had esophagus removed and stomach attached to neck. Say it is a painful operatin with many bad after effects. 8 hr operation, 10 days in hospital. Very little pain? In fact I have never had  much pain since diagnosed. Rarly take pain meds. Still unable to eat or drink. Never give up! Had a few months of Speech Therapy and was able to eat again almost normally. I am 76, in a week, and I do most everything. I bowl, play softball, garden,including digging up my whole garden with temps at 105 F. I have a hospital bed but do not have trouble sleepig flat. Should eat 6 small meals per day but overeat and feel bad for it. Yes I am lucky, and may be called a survivor? It can be beat. Never give up, Be optimistic. Have faith in God. Here is my journal of sorts  about my years worth EC. People has read it to get some hope? A lot of anecdotes and pics of what I was thinking during that time also. From my Facebook page in which my people always wanted me to update my condition. http://thetanseys.webs.com/Cancer%20Update.htm  Cheers

RE: Has anyone survived esophageal Cancer?

by Georgef on Sat Jan 14, 2017 03:12 AM

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Great ...another one who is beating Esophageal Cancer.

My email is 

If anyone wants to talk


George

RE: Has anyone survived esophageal Cancer?

by Urtbst4400 on Sun Jan 15, 2017 10:25 PM

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On Aug 09, 2016 5:34 AM amithchandak wrote:

On Sep 30, 2002 12:00 AM Jim_T wrote:

My husband, Jim, was diagnosed with esophageal cancer on July 5 this year. He is in stage 4 with squamous cell metastatic cancer - meaning that it has spread already to the lymph nodes, which isn't good. He was told it is inoperable and incurable. He has been doing chemo (cisplatin and 5FU) and the tumor (which is between the stomach and esophagus) has not grown. This is a very aggressive form of cancer and the dr. was pleasantly surprised that it hadn't spread in the past 2 months. I feel it is because of the change in diet and lifestyle that we started. We are doing the Macrobiotic Diet and have given up red meat, white sugar, white flour, and milk products and are eating whole grains, organic vegetables and fruit, beans, soy products and soon we will be trying seaweed. That sounds awful but if it means your life, it's worth it. We personally know 2 people who have been cured of their cancer with this diet. And it makes sense. I have been reading everything I can on the internet and diet and lifestyle change seems to be the answer. The body can heal itself if you give it nutrients. There are certain foods that can kill (suffocate) cancer cells. I have about 15 pages of typed notes that I have accumulated on diet and curing cancer if you are interested. You need to read the book "When Hope Never Dies" by Marlene McKenna and "Beating Cancer with Nutrition" by Patrick Quillin. I feel it can be beat! Judy T. Holland, MI

Dear Judy,

I read your articles and really appreciate in your sharing the detials for fighting against esophageal cancer. My mother is aged 73 years and is also having the same symptons [ tumor between the stomach and esophagus ] which has also spread towards the conjunction of the stomach. She has been told to be in 3rd 'A' stage a week back. Presently she has difficulty in swallowing as the tumor preses her mid-esophagus. The Doctor has a food pipe inserted through her nose to feed the liquids.We "" target="_blank" rel="nofollow">http://liquids.We " target="_blank" rel="nofollow">liquids.We are not doing any chemo or radiation or surgery. Currently we are following herbal and ayurvedic medications with change in diet. My earnest request you to kindly email the Typed Notes which will help my mother in combating cancer. God Bless.

Amit

My husband was diagnosed in April 2016 with EC Stage IV, with mets to the liver and lympth nodes. Gets chemo every 2 tp 3 weeks, 5FU and Cisplatin, since April.  Bloodwork shows the chemo seems to have shrunk the liver tumors remarkably, but most recent (1-5-17) ct scan shows "Anterior mediastinal lymph nodes have  doubled in size,   also, new small pericardial lymph nodes". The radiologists notes are "multiple new retroperitoneal perirenal nodularity is worrysome for disease progression." The Oncologist wasn't alarmed at this. Said they were very small, but gave us the option of continuing with Chemo or joining a "Clinical Trial".  For the last 5 days, his feet are swollen again, nausea, and abdominal pain,  Is this normal, is this discomfort normal. He has meds for nausea and also pain, but is this just the progression of this dreadful disease.  Do these symptoms ever let up?  Is the pain and discomfort forever?

RE: Has anyone survived esophageal Cancer?

by reddanyo on Mon Jan 16, 2017 12:41 AM

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The love of my life was diagnosed stage IV end of August. He's been on chemo ever since with only 3 week break. Radiation to shrink the tumor. The radiation caused enormous pain on the 5th week, but it was over by week 11. He had radiation daily for 6 weeks. Before the holiday he twisted wrong then lifted a heavy item and has had extreme back pain. Chemo can impact the muscles and bone s lifting anything heavy is not allowed. We didn't know. From time to time its uncomfortable swallowing or his stomach hurts. Spent a lot on hot asprinecream. He finally got something for the back he's not in pain but has no appetite, lost 80 pounds so far. 5'11" was 175 when.I meet him,now 188. after he lost his job and went into depression he gained 100 pounds, drank like a fish and I was almost literally gone and he turned his life around to find he has EC. I tell him enjoy each day, but he's depressed alot. Keep positive, if you think positive pray to God it will work out. God has a plan for everyone. I thank God for all I have and was given. I love a man older but he's got a heart of gold just sometimes lets life affect him too much instead of enjoying the simple things in life. Pain may happen everyone is different. God bless,

RE: Has anyone survived esophageal Cancer?

by rajyalakshmi on Mon Jan 16, 2017 01:59 AM

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Hi, My mother was diagnosed with locally advanced squamouscell carcinoma and she has undergone chemo-radiation followed by surgery in june 2016. Doctors have removed complete oesophagus and a part of stomach. Now she is doing good. Doctors are reviewing her once every 3 months with Ultrasound scan and Complete blood tests. Is it ok to have those two tests alone or shall we need to undergo PET CT scan or CT scans. Regards -Ganesh

RE: Has anyone survived esophageal Cancer?

by georgiagirl0704 on Mon Jan 16, 2017 08:09 PM

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Hi there - I am reaching out to you bc my husband was diagnosed 2 months ago with stage 4 EC with mets to liver and his scapula (bone).  We have undergone 5 weeks of chemo and 25 radiation treatments and are scheduled to get follow up endoscopy/MRI and PET scan at MD Anderson in Texas this week.  I saw that your son was treated with herceptin which my husband has received also.  We have changed his diet and are trying all the natural healing methods along with the medical treatments.  I am looking for hope as our youngest child is only in elementary school and our kids just lost my dad to cancer 2 years ago.  I was wondering where all your son's EC had spread when he was initially diagnosed and what treatment did you find was the best?  I am so sorry for your loss as I have already lost my father to cancer and was never prepared to be facing this again. 

RE: Cisplatin

by Massiah on Sat Jan 28, 2017 07:43 PM

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On Sep 10, 2006 12:00 AM Laura_Wetzel wrote:

Hi Jodi, I am, so sorry to hear about your Dad. As you know I totally understand your grief and pain. The only thing I can tell you is but your faith that God will find him comfort. I also dont want to add to the fire but I must warn you. cisplatin is what my Dad was on. It completely wipes them out after a few treatments. Please just be prepared. My dad couldnt even ge out of bed on his own. It was absolutely horrible I speak in pasty tense only because they ahve stopped the cisplatin. His body probably would have died if they did it again. he was no lo9nger a candidate for it. he is on something less that will only try and by time. My prayers are with you. Please feel free to contact me via email any time. --- Message edited by CancerCompass staff: for personal protection, email address removed. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html ----. It helps so much to know someone is going through the same thing you are Laura

Hi my husband has just been diagnosed with e cancer .He has been admitted on Thursday due to breathing problems .He has seen the surgeon today and was told that radiotherapy will start on Monday this is very challenging time for me as we are in different parts of the world st the moment .Although miles apart he has a good support team of family with him .any advice on how I can help when he return home with eating the right foods and good nutrition at the moment he is peg fed through his tummy .Any information will help.

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