maxillary cancer and obturator

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RE: maxillary cancer and obturator

by Shaye on Sat Sep 30, 2017 01:43 PM

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Hi, I just found this site after much searching. As some of you mentioned, this cancer is rare and I have had difficulty finding others to talk with. My husband is having surgery next week to remove most of his upper jawbone, teeth and soft palate. His temporary obturator is ready to insert. He will have two back teeth remaining on each side, so the obturator can be attached to them. I have asked the surgical nurse if he will have a feeding tube, how long he will be in the hospital, etc. the nurse said he does not think my husband will need a feeding tube and that he should only be in the hospital a couple of days. Radiation and chemo will be determined once the biopsy is completed on the tumor. The nurse for the doctor who made the obturator gave me a more grim picture. Mucus, feeding tube, weight loss...many of the things I just read on this site. If anyone has advise of how I can help my husband, please tell me. He thinks he will be able to eat and drink normally and travel within a couple of months. I guess the doctors don't want to unduly stress people, but I think they should prepare patients for what to expect. I have purchased ensure, apple sauce, and pudding after reading this site. The doctors have not mentioned anything about alcohol. Is it ok for him to have a glass or two of wine at night as he normally does, provided he can drink liquids? We are still in the disbelief stage. Thank you all for the heartfelt information that you have shared. I also agree that it is ridiculous that insurance won't pay for the obturators when they are necessary. We have experienced that as well. Thank you for any advice you can give me. Shaye

RE: maxillary cancer and obturator

by dee224699 on Fri Jul 12, 2019 02:00 PM

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Dear Shaye

I too am a wife whose Husband has oral cavity cancer, subsite maxillary alveolus.  I also work in the NHS in England but this is my first experience of oral cancer and I have come to the conclusion that it is one of the worst cancers because it is so near the brain and central nervous system and associated therapy affects all your daily living like eating, breathing, drinking etc.  My Husband had a stage 4 cancer which had a depth of 10.4mm and multiple extracapsulated lymph nodes on the left side which were dealt with by a maxillectomy and left neck dissection.  Luckily we had a brilliant surgeon who managed to do the operation through the mouth so very little external defects.  Unfortunately in the workup for chemoradiation malignant lymph nodes were found on the right side and he had to undergo a further right neck dissection for multiple extracapsulated lymph nodes.  It has also come back in the left cheek but as they could not afford to wait any longer he had a PEGG fitted and has just strated chemoradiation this week 1/6th of the way through-yay!  He has lots of problems with the obturator but they are working very hard to help with these.  Keep going I know it is extremely hard and sleep does not come easily but you have to deal with one day at a time and one problem at a time.  I constantly count my blessings for the wonderful support we receive from family and friends-it helps so much.  I keep telling myself that there are plenty of people in a much worse position in cluding children who have not had a chance to live their lives.  I would love to know how you both are and if things are better now.  God bless Dee

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