How long can you live after a whipple??

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RE: How long can you live after a whipple??

by mebenz31 on Sun Jan 31, 2010 04:26 PM

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I remember the doctors telling us that the whipple had a 20% mortality rate!!!! I would think if a GOOD doctor was willing to take a risk like that then they must think it it the best option. I always ask doctors if this was your brother, mother, daughter etc..... what would YOU do? Thats when I seem to get an honest answer..... best wishes

RE: How long can you live after a whipple??

by TwoVillagers on Sun Jun 01, 2014 02:14 PM

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On Jan 25, 2010 4:06 AM epanovski wrote:

Dear whipple survivors,

I had my whipple surgery Sept 5, 2008. I am a 42 yr old female and I was very lucky to have had a non cancerous cyst. I am feeling great minus the occaisional bloating/gas loose stools. I was just wondering how long can one survive? Any long term survivors out there?

Hoping to be around a very long time for my family.

Had my complete Whipple on August 20, 2001 at age 58. I'm almost at 13 years and counting.

RE: How long can you live after a whipple??

by meah1 on Mon Jun 02, 2014 05:35 PM

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On Jun 01, 2014 2:14 PM TwoVillagers wrote:

On Jan 25, 2010 4:06 AM epanovski wrote:

Dear whipple survivors,

I had my whipple surgery Sept 5, 2008. I am a 42 yr old female and I was very lucky to have had a non cancerous cyst. I am feeling great minus the occaisional bloating/gas loose stools. I was just wondering how long can one survive? Any long term survivors out there?

Hoping to be around a very long time for my family.

Had my complete Whipple on August 20, 2001 at age 58. I'm almost at 13 years and counting.

What stage was you cancer at the time of the whipple?

RE: How long can you live after a whipple??

by AliveInOldeTown on Mon Jun 02, 2014 06:03 PM

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Meah1,

I am almost 12 years from Whipple surgery.  Age 50 at time of surgery.  My post surgical pathology was TIS (totally contained in pancreas, in situ) no metastasis or lymph node involvement.  I saw an earlier post you made about your husband being three months from surgery, and not doing so well.  Some of the meds used shortly after surgery can affect a person's personality, like some of the pain meds.  Whipple surgery is tough.  I was just back to work after three months, but still very weak and had no appetite.  I hope your husband sees steady improvement with time.

traceyface traceyface
(Inactive)

RE: How long can you live after a whipple??

by traceyface on Thu Jun 19, 2014 03:21 PM

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On Jan 25, 2010 4:06 AM epanovski wrote:

Dear whipple survivors,

I had my whipple surgery Sept 5, 2008. I am a 42 yr old female and I was very lucky to have had a non cancerous cyst. I am feeling great minus the occaisional bloating/gas loose stools. I was just wondering how long can one survive? Any long term survivors out there?

Hoping to be around a very long time for my family.

Hi!

I had my whipple January 6, 2006.  I too am a 42 year old female and did not have a cancerous cyst.  I feel better than before I had the surgery but the bloating has become unbearable.  Have you found ways to deal with it?

RE: How long can you live after a whipple??

by cb531 on Thu Jun 19, 2014 04:44 PM

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My friend had the whipple done 15 years ago and is doing well. Dealt with bloating but she controls most side effects with diet. She just decided to eat one thing a week to see the effects if no effects she added to her diet but if any effect at all she cut it out.  Think positive!!!

Peace out my friends cathy

RE: How long can you live after a whipple??

by arizan on Mon Jun 23, 2014 03:08 AM

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Hi, My daughter has been diagnosed with chronic pancreatits, also keeps getting cysts on the tail of her pancreas, just had one drained. Doctors will not do any surgery, they state that patients that have any surgery on the pancreas only live about one year. She has been sent home from university hospital, Denver, Colorado after one week and still has severe pain and cannot eat any solid food and very little liquids. University hospital tells her they don't have any pancreatic doctors. Could she be getting this treatment because the only insurance she has is medicade? Thanks for any response.

RE: How long can you live after a whipple??

by brentwhitis on Fri Jan 09, 2015 05:14 PM

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Johns Hopkins is likely the #1 PanCan hospital in the WORLD. They have great patient response times. I have been diagnosed there with low grade tumor in the head of the pancreas, but now, my doc's and I are one the fence about the Whipple Surgery. Very recently, there have been some large, long term studies that discovered that certain exact tumors can be closely followed with serial imaging. This can avoid or put off the Whipple Surgery. I have the links to these if anyone is in this very small category. My tumor is a non-functional, 4-5 mm (very very small) well encapsulated, neuroendicrine tumor (needle biopsed ) located deep in the head of my pancreas. No metastisis apparent on CT's, MRI's and EUS's.  Thanks, I hope this helps someone.

RE: How long can you live after a whipple??

by Whippleschmiple on Sat Jan 10, 2015 04:16 AM

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There are people that live high quality lives decades after whipple if it was done in competent hands at a competent center and typically the reasons to do it are very serious.  I have friends who had it 12-20 years ago and read of others.  The person whose doc said patients with surgery on pancreas only live a year is wrong!  I had 40% of mine removed in pylorus preserving whipple and I am okay, clean, 4 & 1/2 years out and work full time, exercise, have normal weight...  it takes work to be healthy though.  I did change my diet also.  To get the surgery a center should have done 100s in a few years, same for surgeon...  Learn about their background.  

Brenwhitis, each situation is different, but the ampulla which is valve at opening pancreas is where mine was and can be dense and make it harder to see and my 1.6 cm tumor did not show on MRI, CT, EUS.  I had to have 13 biopsies at ERCP which finally showed the mass to get diagnosed.  Pancreas is more likely to show tumors BUT I have heard that may not always be the case on scans.  That said as I am watched my oncologist looks for enlarged nodes, shadows,... not just a mass.  I know neuroendocrine is much slower growing, good luck.  In general I think whipple in very learned hands is typically best option for many types of periampullary tumors in and around pancreas.  

RE: How long can you live after a whipple??

by OrlandoBob on Sat Jan 10, 2015 01:02 PM

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I agree with Whippleschmiple!  I was diagnosed with PC January 30, 2014 and had the Whipple March 3rd.  No lymph node involvement but there was an area of concern in the pathology report.  But I had an extraordinarily talented surgeon at a world class hospital and was back to work by late April.  I opted for IPT chemo in May thru June after researching the side effects of full dose chemo. I also prayed alot.  Now 1 year later I am back to work full time and in excellent health.  And I don't just have faith in God, I now have trust, which is a whole new level and a true gift.  My CA 19-9 tests were so low my doctor recommended that new blood test that detects the ENOX2 protein that sheds off the surface of cancer cells.  If its positive you have cancer.  If its negative you don't have cancer.  Period.  By the grace of God my test was negative, suggesting the Whipple surgery, IPT chemo and the good Lord wiped all the cancer out.  So I like to tell everyone the good Lord healed me, but he used a very talented Whipple surgeon to do it. So as far as I am concerned, the Whipple is a gift from God and anyone that is a candidate for it (if they have pc) should be grateful. 

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