How long can you live after a whipple??

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RE: How long can you live after a whipple??

by Whippleschmiple on Sat Jan 10, 2015 07:06 PM

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OrlandoBob,

  I agree that when we get top quality center and very talented and experienced whipple surgeon it is our best chance at survival with periampullary cancers (pancreas, ampulla, duodenum and bile duct) and most but not all precancerous lesions in the area.  My entire mass wasn't even malignant which was why 13 biopsies, ampullary cancer starts as adenoma like a colon polyp and there are false negatives.  I am very curious about the ENOX2 test.  I get my 4 & 1/2 yr. checkup next week.  

OrlandoBob, seriously look into exercise and reducing recurrences (proven in colon, prostate and breast cancers), and now do antioxidants and things to boost immune system.  Google astragalus, mushroom extracts (pill form), etc.  I take milk thistle due to my history, may not be good for all.  I do very low sugar diet, as some say sugar feeds cancer.  I do agave, stevia, erythritol, stopped meat and almost all dairy,... mostly whole plant-based diet and added green tea, garlic cloves in food, onion family, berries, broccoli, kale, filtered water,...  Even an American Cancer Society survival event encouraged many of same principals in the book I think I quoted anti-cancer diet by dr. servan schreiber.  I also worry about other survivors who act like life ended post whipple and retire if don't need to.  The more normal we expect to be... maybe the better.. the concept of faith.  Keep doing proactive things to keep body free of cancer cells which people probably have periodically...  I would not have opted for IPT but hope it worked for you.  Mine was already in perineural invasion and lymphatic invasion, not nodes, and aggressive.  

Generally I think most would benefit from radiation with chemo sensitizers and chemo.  I see too many recurrences so I suspect dietary change, exercise, lifestyle changes would increase chances of survival for many and for pancreatic cancer often neoadjuvant (chemo and, or radiation with chemo FIRST) increases odds survival to as high as 40% for some with stage 1. After it all, I boosted immune system and take things daily for immunity.  At work, most "healthy" coworkers get bad coughs and colds while I maybe have minor sniffles... interesting and most are a lot younger.  I especially noticed much less congested colds after stopping dairy (I used natural eggs and lite butter).

RE: How long can you live after a whipple??

by OrlandoBob on Sun Jan 11, 2015 01:59 AM

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All good advice. After chemo you have to rebuild your immune system.  I switched from coffee to green tea.  No sugar.  Turkey Tail, AHCC and other mushroom extracts.  Astragalus and a few others.  Alpha and R lipoic acid, vitamins B12,C,D,E and K.  Garlic and onions all the time.  I need to up the exercise.  Rarely eat red meat.  No fried.  No processed meats.  Stevia only. Probiotics.  I'm 55 so no retiring for me anytime soon. Keep up the good work!   

RE: How long can you live after a whipple??

by Whippleschmiple on Sun Jan 11, 2015 05:34 AM

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I did ahcc for a while, costly.  I do many of the same things you do and have used turkey tail or shitake/miatake, chaga...  I do not cook in oil, adding flax oil after.  I am 50s as well so not retiring soon.  Exercise ... google I think believe it or not its called METs. I do probiotics too.

RE: How long can you live after a whipple??

by Geoffro on Tue Aug 04, 2015 02:40 PM

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Hi I just read your message,  in 1995 I had a blockage in my bile duct which turned out to be a carcinoid tumour I had it removed by a whipple's procedure in 1997 I have had a few pain issues and some loose bowel movements but I am still here 18 years later. I am having other issues but the procedure has been a success. Many people cannot believe how well it worked for me. I just want to encourage others that although there can be problems from it I am living proof of the success of the operation. 

RE: How long can you live after a whipple??

by OrlandoBob on Sat Aug 15, 2015 01:17 AM

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Hey Geoffro.  I haven't visited here for a while so its nice to see your post.  I am now almost 18 months post whipple and doing ok.  I have noted some back pain lately that is new, but otherwise doing ok.  Can you share any ideas on why you did so well?  Diet, supplements, exercise, etc.?  What were your pain issues?  Back?

RE: How long can you live after a whipple??

by capucine on Mon Aug 17, 2015 02:12 PM

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On août 04, 2015 2:40 Geoffro wrote:

Hi I just read your message,  in 1995 I had a blockage in my bile duct which turned out to be a carcinoid tumour I had it removed by a whipple's procedure in 1997 I have had a few pain issues and some loose bowel movements but I am still here 18 years later. I am having other issues but the procedure has been a success. Many people cannot believe how well it worked for me. I just want to encourage others that although there can be problems from it I am living proof of the success of the operation. 

Dear Geofro,

my husband is now 4 1/2 years after Whipple and I do my best to help him but  you, did  you noticed the best things to do, to eat to survive so well ?

Congratulations and I wish you many many very good years.

With my best regards, Capucine

RE: How long can you live after a whipple??

by Geoffro on Mon Aug 17, 2015 03:16 PM

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Hi orlandobob 

For the first few years I had a lot of pain in my pancreas Area and a little back pain most of my pain was put down to post op. I had a lot if problems with oil when I went to the toilet, I had to change how much oily food I ate and since then I've been doing well. One thing I have noticed if I don't worry to much I do a lot better. Its OK to eat most things now I just have to be careful not to overdo it. 

In regards to supplements my doctor told me if I'm eating right not to waste my money. 

I hope you are doing better. 

Geoff 

RE: How long can you live after a whipple??

by Geoffro on Mon Aug 17, 2015 03:21 PM

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Hi how are you doing? How is your husband now? 

I'm not sure what "I" did to survive so long it's the grace of God. I cut oily food from my diet was the main thing I did. I also tried not to worry too much and go and enjoy life why I could. I found if I worried to much about it I got sicker. 

I hope this helped.

Geoff

RE: How long can you live after a whipple??

by meyersm1 on Thu Aug 20, 2015 03:00 PM

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Hello. My father had the whipple 16 years ago and is here and well. It is beatable!!!

RE: How long can you live after a whipple??

by Kimmycake2001 on Fri Nov 11, 2016 05:22 PM

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My Whipple was done August 25, 2004. They took 50% of my pancreas as of 08 I have no pancreas left. I've been told most do not make it past 6 months. Mine was also non cancerous. It's rough at times dealing with the back lash. Crazy sugars mal absorption, the pain ect. My numbers on all my organs are checked and I will be on creon the rest of my life. All in all I believe in God and know my 12 years is just a drop in the bucket. I will survive to live a long life.
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