Introducing Myself

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Introducing Myself

by yellow67 on Fri Apr 02, 2010 07:14 PM

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Hello

 

My father was diagnosed with Advanced Prostate Cancer, spread to bones and lymph nodes Xmas eve 2009. He started Hormone Therapy, and £ monthly implants. Has been one month on Stampede Trial, arm F.

I would be interested to chat with anyone regarding this, or who has similar.

Dad lives in UK and I live in Co Cork, so am always worrying about him !

Thanks for resding my post

RE: Introducing Myself

by lovesong on Fri Apr 02, 2010 07:21 PM

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Hi there, its nice to meet you. I`m sorry to hear about your Dad. I live in Canada but I am from England, my grandmother was from Limerick. Cancer is a scarey journey but we do not travel it alone. Take care.

RE: Introducing Myself

by yellow67 on Fri Apr 02, 2010 07:28 PM

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Thanks for the reply, and nice to meet you also. Canada is far afield ! Limerick only an hour from me. Cancer is a scary journey, and am trying to keep my head above water for the whole family. Dad doing okay, but I still have reservations.

 

Take care, and Happy Easter

RE: Introducing Myself

by skidan on Fri Apr 02, 2010 08:19 PM

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On Apr 02, 2010 7:14 PM yellow67 wrote:

Hello

 

My father was diagnosed with Advanced Prostate Cancer, spread to bones and lymph nodes Xmas eve 2009. He started Hormone Therapy, and £ monthly implants. Has been one month on Stampede Trial, arm F.

I would be interested to chat with anyone regarding this, or who has similar.

Dad lives in UK and I live in Co Cork, so am always worrying about him !

Thanks for resding my post

Welcome to the club no one wants to belong. As an advanced prostate cancer  5 year survivor its nice to meet you. I am not familar of the trial your dad is on, but I also see he is on hormone therapy too.  Is your father newly diagnosed ?

Dan

RE: Introducing Myself

by yellow67 on Sat Apr 03, 2010 07:23 PM

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Hi Dan

Thanks for taking the time to reply. Yes, I suppose you could say newly diagnosed, since Xmas Eve 2009...Great Xmas present.....

He started Hormone Therapy, Bicalutamide 50mg for a month then onto 3 monthly implants. His hospital in UK participating in STAMPEDE.....This is a 6 arm clinical trial randomly selected by computer. It processess all info, scans etc and allocates accordingly. Arm F is Hormone Therapy, Calcium & Vit D,  NSAID and bone strengthening infusion every 3-4 weeks [Zolendronic Acid]

You can opt out any time, however, the beauty is in the checkups, with dedicated PCa team. So probably more in depth monitoring than the norm. All arms are recognised PCa treatments. The study is to find out at which stage treatment is more effective.

He was staged at T3-4N1M1b Gleason 10....all within 6 months....

It is encouraging to hear that you are 5 years on. I would be very interested in your views. Is your staging/Gleason similar at all?

Hope you are keeping well. Happy Easter

 

RE: Introducing Myself

by yellow67 on Sat Apr 03, 2010 07:29 PM

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Hi Again Dan The following web link is about STAMPEDE. It is an International Clinical Trial and is I believe in Stage 3 at present.

With best of wishes

http://www.stampede.bham.ac.uk/

RE: Introducing Myself

by skidan on Sat Apr 03, 2010 09:42 PM

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I have locally advanced prostate cancer, stage 3, however today I am 100%  in remission. Today the only treatment I use is diet, supplements and life style changes. Your Dad's condition is a bit more advanced.

I looked at the trial and see they are giving him Vitamin D, that is very important. The vitamin D activates the immunes system T cells and helper cells. Without adequate Vitamin D your immune system won't activate properly.

If you have any more questions feel free to ask

Happy Easter

Dan

RE: Introducing Myself

by yellow67 on Sat Apr 03, 2010 10:39 PM

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Thanks Dan

Had a look at your web site. Very interesting. Diet options are of particular interest to me, as Dad won't look at any of this information. I filter it down to him.

 

Yes, he is more advanced. Limited options now, at best containment for a while.

 

I managed to get him on high strength Vit D prior to trial starting, they have minimum DD of 1200 iu which I thought was too low under the circumstances. Now on 5200 iu/day Vit D.

 

Green tea also incorporated, and Pomegranate Juice. Cutting out dairy and red meat. Any other suggestions? He has JANE PLANT book, and I believe CHARLES SNUFFY MYERS is big in your neck of the woods?

 

Any further advice re:- Dietary supplements, etc would be of interest.

 

Keep well !

RE: Introducing Myself

by Unknown_Member on Sat Apr 03, 2010 11:22 PM

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On Apr 03, 2010 9:42 PM skidan wrote:

I have locally advanced prostate cancer, stage 3, however today I am 100%  in remission. Today the only treatment I use is diet, supplements and life style changes. Your Dad's condition is a bit more advanced.

I looked at the trial and see they are giving him Vitamin D, that is very important. The vitamin D activates the immunes system T cells and helper cells. Without adequate Vitamin D your immune system won't activate properly.

If you have any more questions feel free to ask

Happy Easter

Dan

what was your gleason score at time of dignosis and what is your current psa?  charly

RE: Introducing Myself

by skidan on Sat Apr 03, 2010 11:28 PM

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On Apr 03, 2010 11:22 PM charley27 wrote:

On Apr 03, 2010 9:42 PM skidan wrote:

I have locally advanced prostate cancer, stage 3, however today I am 100%  in remission. Today the only treatment I use is diet, supplements and life style changes. Your Dad's condition is a bit more advanced.

I looked at the trial and see they are giving him Vitamin D, that is very important. The vitamin D activates the immunes system T cells and helper cells. Without adequate Vitamin D your immune system won't activate properly.

If you have any more questions feel free to ask

Happy Easter

Dan

what was your gleason score at time of dignosis and what is your current psa?  charly

Gleason 4+3, current PSA 0.41, I still have my prostate and full T- 576

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