just recd news stage 3 tonsil cancer

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RE: just recd news stage 3 tonsil cancer

by Sdurnell on Thu Jun 07, 2018 10:57 AM

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Girl,

I'm not sure if you noticed that you replied to a very old thread.  It's from before I was even diagnosed, and I've been cured for a couple of years now. 

I don't think any of us is ever quite the same after treatment as before, but my "new normal" is pretty good.  Aside from some eating issues and having to take a few more pills, I am essentially able to do everything I could before.

Best of luck to you both.

Susan

RE: just recd news stage 3 tonsil cancer

by suedebottom on Thu Jun 07, 2018 03:23 PM

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On Jun 07, 2018 2:00 AM justacountrygrl wrote:

Steph - Thank you for your comments here.  It is such a relief to know that after all the pain and suffering that my husband has endured the past few weeks with the radiation and chemo therapies, that there is a possibility of a positive outcome.  Other than the physical aspects of his reaction to the treatments, it has changed him so emotionally as well.  After today he has 3 more radiation treatments, and 1 chemotherapy left!  I'll tell his story when I know how his recovery goes.  I'm hoping the man I married juat a few months ago will come back to me when this is all done...   

Thanks again. b

b

After the treatment finishes is the worst part.  He needs to focus on being well again and be prepared for a mouth full of gunk which he will need to spit out.  It will help him if you can get supplies of Ensure or other liquid meals and encourage him to move his tongue around.  His mouth is likely to be very sore and it may be difficult for him to sleep.  

I coped by sleeping downstairs on the sofa when it was bad, watching boxsets and being determined to eat sufficient calories.   It may be difficult for him to talk and every encouragement you can give him to eat e.g liquidising food or reheating it will all help.  IT  IS A TEMPORARY PHASE.  He may find it difficult to drink wine afterwards and needs to avoid spicy food, but I can drink cider, beer and champagne so he can adapt.  Sandwiches may be easier to eat if accompanied by hot tea etc.  Now I regularly eat in restaurants, still go dancing, work fulltime etc.  Good luck with the treatment. C

RE: just recd news stage 3 tonsil cancer

by billscampbell on Thu Jun 07, 2018 07:21 PM

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On May 07, 2010 1:36 AM LucysMom wrote:

I have been diognosed with stage 3 cancer of the right tonsil.  They are recommending radiation, but I am reading all the discussion and really asking myself, what am i doing"  You are all troopers for your effort in finding answers to your cancer.  I am leaning to the road of NO radiation or Chemo.  From personnel experience, please tell me your thoughts.

Whether to have radiation and/or chemo depends on what they find when they remove the tumor (I assume you're having surgery).  In my case (right tonsil and base of tongue), the margins were clear and there were no lymph nodes involved, and so my surgeon did not recommend rad/chemo.  I'm five years out and have had minimal side effects.  I wish you the best during this difficult time.

RE: just recd news stage 3 tonsil cancer

by jalind on Fri Jun 08, 2018 11:39 PM

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On Jun 07, 2018 2:00 AM justacountrygrl wrote:

Steph - Thank you for your comments here.  It is such a relief to know that after all the pain and suffering that my husband has endured the past few weeks with the radiation and chemo therapies, that there is a possibility of a positive outcome.  Other than the physical aspects of his reaction to the treatments, it has changed him so emotionally as well.  After today he has 3 more radiation treatments, and 1 chemotherapy left!  I'll tell his story when I know how his recovery goes.  I'm hoping the man I married juat a few months ago will come back to me when this is all done...   

Thanks again. b

I am with Susan (Sdurnell) on this. The thread started eight years ago, barely a month after I finished six weeks of radiotherapy after a radical neck dissection and Stage IV diagnosis. I won't candy-coat treatment morbidity. It's quite severe for head & neck squamous cell carcinoma's standard of care. It will take some time to recover from treatment once it ends. For me it was a couple of months or so as some of it's gradual. Everyone recovers from the short-term effects on their own timeline. The body is still reeling from it all for a while.

I don't know of anyone who isn't changed from what they were before cancer. It becomes a "new normal" both physically and psychologically. There will be permanent effects from treatment. I and all the other long-term head/neck cancer survivors I know are dealing with them. How severe each of them are depends on the patient, the radiation field, the surgery site, etc. The standard of care for treatment morbidity is well known and well understood. Like Susan, none of these have affected or limited what I do and I'm far removed from a sedentary lifestyle. I'm doing more now with greater physical demands requiring greater physical stamina than I did before the cancer diagnosis, having deliberately ramped up physical activity after treatment.

John

RE: just recd news stage 3 tonsil cancer

by jalind on Fri Jun 08, 2018 11:50 PM

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Neglected to mention . . . I'm also a 5 year melanoma survivor, with that diagnosis occurring almost exactly 3 years after the H&N squamous cell carcinoma. It was also on my neck on the same side as the radical neck dissection which complicated the excision slightly but nothing we couldn't deal with.

Keep putting one foot in front of the other toward the ultimate goal and find something to celebrate every day, even if it's trivial or small. There is life after cancer and it can be a very good one.

Best wishes to both of you.

RE: just recd news stage 3 tonsil cancer

by billscampbell on Thu Jun 21, 2018 04:44 PM

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On May 07, 2010 1:36 AM LucysMom wrote:

I have been diognosed with stage 3 cancer of the right tonsil.  They are recommending radiation, but I am reading all the discussion and really asking myself, what am i doing"  You are all troopers for your effort in finding answers to your cancer.  I am leaning to the road of NO radiation or Chemo.  From personnel experience, please tell me your thoughts.

I had right tonsil cancer five years ago.  I had surgery.  The doctors found no cancer in the margins or in the lymph nodes and did not recommend radiation or chemo.  At my five-year follow up, my ENT told me that there is practically zero chance that the cancer will return.  So, it depends on what the surgeons find when they operate (I assume you're having surgery to remove the tumor)--if the cancer has spread to lymph nodes and/or margins, your doc may recommend radiation and chemo.  If not, then perhaps you can skip them. 

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