Radiated on purpose as an infant in the 1950's, cancer developed years later

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RE: Radiated on purpose as an infant in the 1950's, cancer developed years later

by SusieMorph on Tue May 28, 2019 02:26 PM

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On Feb 16, 2016 12:10 PM Emmys wrote:

Hi, I had the treatment at a hospital in York in the late forties. This hospital over time amalgamated with another, but I found an institute that had archives relating to all of the York hospitals, they had the records but not for the year I had my treatment the year before and the year after was there or so they said and they said that they could find no information. On this kind of treatment ever been carried out in any of their hospitals, now I know my mother would not of made it up so it seems to me as if they just want it to stay buried. Personally I liken it to all the cancers appearing after they tested the atomic bomb as this procedure seems to have been carried out all over the world. I have had cancer of the jaw two years ago and it appeared again a year later in my cheek, hopefully that's my quota but not holding my breath. My story is in the system if you are interested. My GP had no knowledge of this but my oncologist had heard if it though had not actually come across anybody other than me having it. I would be very interested to see how you get on if you decide to find out more and if you come across any further areas to try. Emmys
Hi Emmys I was given these treatments in a hospital in the south coast UK, when I rang the records department to ask for my medical records I was told firmly that they wouldn’t have any records from such a long time ago as they would have been destroyed...however when I said the reason I needed them was so that they would help my cl.on . calculate the radiotherapy doses they were planning to give me they changed their tune and suggested I request them through my GP as that might be a more successful route! Mmmm.

RE: Radiated on purpose as an infant in the 1950's, cancer developed years later

by ArgyDuBlew on Tue May 28, 2019 03:52 PM

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Hi Susimorph. Just read your post and particularly the last sentence. My story can be found elsewhere in the thread but in a nutshell I was radiated in the mid-fifties when I was eight for a haemangioma in the cheek. A further treatment with some sort of injection using chemical salts followed as an adult, with spectacularly horrid results. I have had a hemi- thyroidectomy due to 'dodgy cells' and suffer hearing loss which the audiologist says is likely to be radiation-related. Unlike for some other people, the hospital that treated me as a child were very helpful and sent me copies of everything -dates, dosages, etc. Surely there must be enough evidence out there for some legal firm to be interested in drawing up a composite compensation claim (?). Take care-life is precious and all-too short.

RE: Radiated on purpose as an infant in the 1950's, cancer developed years later

by SusieMorph on Tue May 28, 2019 04:50 PM

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On May 28, 2019 3:52 PM ArgyDuBlew wrote:

Hi Susimorph. Just read your post and particularly the last sentence. My story can be found elsewhere in the thread but in a nutshell I was radiated in the mid-fifties when I was eight for a haemangioma in the cheek. A further treatment with some sort of injection using chemical salts followed as an adult, with spectacularly horrid results. I have had a hemi- thyroidectomy due to 'dodgy cells' and suffer hearing loss which the audiologist says is likely to be radiation-related. Unlike for some other people, the hospital that treated me as a child were very helpful and sent me copies of everything -dates, dosages, etc. Surely there must be enough evidence out there for some legal firm to be interested in drawing up a composite compensation claim (?). Take care-life is precious and all-too short.

Hi ArgyDuBlew. Thank you for your reply.

I didn't realise that there are still people alive out there after these ridiculous treatments, I thought I was alone. I did hear a programme on Radio 4 (UK) about these treatments a few years ago, but when I rang in to talk to them about it was told they couldn't find anyone else alive in this country, the UK.

Are you in the UK?

I have always come across brick walls when I have tried to discuss this with the medical profession. One delightful doctor said to me, quote, "stop being ridiculous, do you really think that you would be standing in front of me now if you had had thyroid cancer from the age of ten years?". This sort of arrogant behaviour makes me think that the health service should recognise and be brought to account over this and that the general public should know about this before we all die.

I am now battling breast cancer, and have had a lifetime of difficulties with my health.

I wonder if the enormity of our cases are such that the legal profession might not be keen to become involved, or perhaps it's just an unknown to them.

Is there anyone out there who would like to form a group so that we could approach the legal profession together? Or indeed has anyone out there already done this?

RE: Radiated on purpose as an infant in the 1950's, cancer developed years later

by SusieMorph on Tue May 28, 2019 04:51 PM

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On May 28, 2019 3:52 PM ArgyDuBlew wrote:

Hi Susimorph. Just read your post and particularly the last sentence. My story can be found elsewhere in the thread but in a nutshell I was radiated in the mid-fifties when I was eight for a haemangioma in the cheek. A further treatment with some sort of injection using chemical salts followed as an adult, with spectacularly horrid results. I have had a hemi- thyroidectomy due to 'dodgy cells' and suffer hearing loss which the audiologist says is likely to be radiation-related. Unlike for some other people, the hospital that treated me as a child were very helpful and sent me copies of everything -dates, dosages, etc. Surely there must be enough evidence out there for some legal firm to be interested in drawing up a composite compensation claim (?). Take care-life is precious and all-too short.

Hi ArgyDuBlew. Thank you for your reply.

I didn't realise that there are still people alive out there after these ridiculous treatments, I thought I was alone. I did hear a programme on Radio 4 (UK) about these treatments a few years ago, but when I rang in to talk to them about it was told they couldn't find anyone else alive in this country, the UK.

Are you in the UK?

I have always come across brick walls when I have tried to discuss this with the medical profession. One delightful doctor said to me, quote, "stop being ridiculous, do you really think that you would be standing in front of me now if you had had thyroid cancer from the age of ten years?". This sort of arrogant behaviour makes me think that the health service should recognise and be brought to account over this and that the general public should know about this before we all die.

I am now battling breast cancer, and have had a lifetime of difficulties with my health.

I wonder if the enormity of our cases are such that the legal profession might not be keen to become involved, or perhaps it's just an unknown to them.

Is there anyone out there who would like to form a group so that we could approach the legal profession together? Or indeed has anyone out there already done this?

RE: Radiated on purpose as an infant in the 1950's, cancer developed years later

by SusieMorph on Thu May 30, 2019 01:00 PM

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On Jun 04, 2016 7:47 PM marysj wrote:

On Jan 05, 2016 2:41 PM scararm wrote:

Hi Mary.........i wish you the best with the biopsy. I'm guessing we'll never find out much about all this....there's no one to sue so no one would care.......we're just a bunch of folks who had parents that trusted the docs of the day to make us healthier. 

i consider myself lucky that i was successfully treated for the melanoma (all surgically) hopefully you won't even need to go there........

my best to you.

Peter

As I write this, I am awaiting a visit to the deratologist for a new growth on the sole of my foot.  In the late 50's, I was radiated for removal of plantar warts.  I really think this is a melanoma.  It is small, so hopefully the removal will not be a big deal.  Anyone else have this treatimet for warts?!

Hi I don't agree that there is no one to sue for all of these treatments. They wrecked many lives of those of us who are lucky enough to be still living and sent countless others to an early grave. 

Everyone is accountable for their actions in life. In the UK the NHS is accountable, elsewhere in the world may be a different matter.

RE: Radiated on purpose as an infant in the 1950's, cancer developed years later

by SusieMorph on Thu May 30, 2019 01:06 PM

Quote | Reply

On May 28, 2019 4:51 PM SusieMorph wrote:

On May 28, 2019 3:52 PM ArgyDuBlew wrote:

Hi Susimorph. Just read your post and particularly the last sentence. My story can be found elsewhere in the thread but in a nutshell I was radiated in the mid-fifties when I was eight for a haemangioma in the cheek. A further treatment with some sort of injection using chemical salts followed as an adult, with spectacularly horrid results. I have had a hemi- thyroidectomy due to 'dodgy cells' and suffer hearing loss which the audiologist says is likely to be radiation-related. Unlike for some other people, the hospital that treated me as a child were very helpful and sent me copies of everything -dates, dosages, etc. Surely there must be enough evidence out there for some legal firm to be interested in drawing up a composite compensation claim (?). Take care-life is precious and all-too short.

Hi ArgyDuBlew. Thank you for your reply.

I didn't realise that there are still people alive out there after these ridiculous treatments, I thought I was alone. I did hear a programme on Radio 4 (UK) about these treatments a few years ago, but when I rang in to talk to them about it was told they couldn't find anyone else alive in this country, the UK.

Are you in the UK?

I have always come across brick walls when I have tried to discuss this with the medical profession. One delightful doctor said to me, quote, "stop being ridiculous, do you really think that you would be standing in front of me now if you had had thyroid cancer from the age of ten years?". This sort of arrogant behaviour makes me think that the health service should recognise and be brought to account over this and that the general public should know about this before we all die.

I am now battling breast cancer, and have had a lifetime of difficulties with my health.

I wonder if the enormity of our cases are such that the legal profession might not be keen to become involved, or perhaps it's just an unknown to them.

Is there anyone out there who would like to form a group so that we could approach the legal profession together? Or indeed has anyone out there already done this?

Hi Argy,

Not your real name I take it!

I have been trying to find the archive material of the piece I heard on Radio 4, so far no luck, next step is to ring the BBC and see if they can help.

They did send me some correspondence and suggested I read 'X-ray and radium in dermatology' by Bernard A. Wansker, Springfield: Charles C. Thomas (1959).

I haven't read it but it can be found on Amazon.

I'd be interested to know your views.

RE: Radiated on purpose as an infant in the 1950's, cancer developed years later

by RadiatedBaby on Sat Jun 08, 2019 11:40 PM

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Aloha Everyone,

I just found this site.  I too was born in May 1951 in Maywood, California, with two "birthmarks" (hemangiomas). I too was treated with radiation. My older sister (passed) told me that the treatment was a "box" placed on my back and my buttocks.  She said the trip from home on the bus took longer than the actual treatment. I was 6 months old. I was told that my  hemangiomas were about the size of an adult female's fist.  I do not know how many treatments or anything else about my radiation. They were all sequestered behind a door. My scars look like melted skin and seem to have shrunk as I got "bigger"

I tried contacting the hospital where I was born, but no records. Anyone else born in Southern California in the 50's? and were treated?

I have respiratory issues.  When I get a cold, it always settles in my chest and lasts a very long time. I too take thyroid medication for an underacting thyroid. At 20, i had an 8 lb ovarian benign cyst removed. At 33 I  had a miscarriage and at 34 and 35  went on to give birth to 2 healthy babies. I am now in full menapause.

I was told by my children's pediatrician that "I was a time bomb waiting to go off" ! NOT very comforting.  So far, so good, I am 68, and have not learned of any cancer.  I am hoping that I will not have any cancer, as I love my life.. however, I do live under the shadow of "will I die" young. 

So if there are any of you out there wanting to share or know about your radiation, or how to get records of how we were treated, i would appreciate hearing from you.

Be well

RE: Radiated on purpose as an infant in the 1950's, cancer developed years later

by RadiatedBaby on Sat Jun 08, 2019 11:41 PM

Quote | Reply

Aloha Everyone,

I just found this site.  I too was born in May 1951 in Maywood, California, with two "birthmarks" (hemangiomas). I too was treated with radiation. My older sister (passed) told me that the treatment was a "box" placed on my back and my buttocks.  She said the trip from home on the bus took longer than the actual treatment. I was 6 months old. I was told that my  hemangiomas were about the size of an adult female's fist.  I do not know how many treatments or anything else about my radiation. They were all sequestered behind a door. My scars look like melted skin and seem to have shrunk as I got "bigger"

I tried contacting the hospital where I was born, but no records. Anyone else born in Southern California in the 50's? and were treated?

I have respiratory issues.  When I get a cold, it always settles in my chest and lasts a very long time. I too take thyroid medication for an underacting thyroid. At 20, i had an 8 lb ovarian benign cyst removed. At 33 I  had a miscarriage and at 34 and 35  went on to give birth to 2 healthy babies. I am now in full menapause.

I was told by my children's pediatrician that "I was a time bomb waiting to go off" ! NOT very comforting.  So far, so good, I am 68, and have not learned of any cancer.  I am hoping that I will not have any cancer, as I love my life.. however, I do live under the shadow of "will I die" young. 

So if there are any of you out there wanting to share or know about your radiation, or how to get records of how we were treated, i would appreciate hearing from you.

Be well

RE: Radiated on purpose as an infant in the 1950's, cancer developed years later

by SusieMorph on Sun Jun 09, 2019 08:07 AM

Quote | Reply

On Jun 08, 2019 11:41 PM RadiatedBaby wrote:

Aloha Everyone,

I just found this site.  I too was born in May 1951 in Maywood, California, with two "birthmarks" (hemangiomas). I too was treated with radiation. My older sister (passed) told me that the treatment was a "box" placed on my back and my buttocks.  She said the trip from home on the bus took longer than the actual treatment. I was 6 months old. I was told that my  hemangiomas were about the size of an adult female's fist.  I do not know how many treatments or anything else about my radiation. They were all sequestered behind a door. My scars look like melted skin and seem to have shrunk as I got "bigger"

I tried contacting the hospital where I was born, but no records. Anyone else born in Southern California in the 50's? and were treated?

I have respiratory issues.  When I get a cold, it always settles in my chest and lasts a very long time. I too take thyroid medication for an underacting thyroid. At 20, i had an 8 lb ovarian benign cyst removed. At 33 I  had a miscarriage and at 34 and 35  went on to give birth to 2 healthy babies. I am now in full menapause.

I was told by my children's pediatrician that "I was a time bomb waiting to go off" ! NOT very comforting.  So far, so good, I am 68, and have not learned of any cancer.  I am hoping that I will not have any cancer, as I love my life.. however, I do live under the shadow of "will I die" young. 

So if there are any of you out there wanting to share or know about your radiation, or how to get records of how we were treated, i would appreciate hearing from you.

Be well

Hi RadiatedBaby, I’ve just read your post. It’s interesting that you were in California and I was in the UK when we endured these treatments. It seems that developed countries were eager to explore and experiment with radiation. So say you are a time bomb waiting to go off was very unhelpful in my opinion, I have only just realised that this is the case for most of us if we had this treatment. I had radiation treatment on three birthmarks and have had two cancers to date, I suspect it was actually three, and a wealth of health problems throughout my life. I had someone researching these practices for me and he said some of the thinking at the time was that radiation actually improved a person’s intellect! Melted skin is a good way to describe these treatment areas, I always tell people they look like burns, but probably melted skin is a more accurate description. Good luck with finding your medical records, over here in the UK I hit a brick wall when I approached the hospital where I had the treatment. It is like a guilty secret over here, they are obviously hoping we will all die and this scandalous period in history will die with us. Good luck and I hope you will continue to be cancer free.
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