how long before you taste comes back??

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RE: how long before you taste comes back??

by jwilson on Wed Apr 01, 2015 04:59 PM

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On Apr 01, 2015 4:46 PM augustus wrote:

I meant to add that many of us on here watch cooking shows. The diners drive in and dives shows are my favorites. Watching a big greasy cheesburger with rings is torture. 

Oh my yes.  I never watched DD&D before, now some nights I binge watch it drooling at everything I see.  My mind says those things taste great and I want them.  Then I put a bite of something in my mouth and it takes all my will power not to spit it out.

I'm just over two months past treatment.  Right now I can eat pudding, and I add some whipped cream for added calories, some cereal with milk and bananas, and I recently ate some canned cream of chicken soup to which I had added some orzo.  So there are a few things I can get down.  But the ist of things that don't taste completely awful is very small.

RE: how long before you taste comes back??

by jwilson on Wed Apr 01, 2015 05:06 PM

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On Apr 01, 2015 4:44 PM augustus wrote:

I am three and a half months out and had my tube removed yeserday. Food is tasting slightly better today than it was a month and a half ago. I read on here to use maple syrup on food and that has helped, especially eggs and mild sausage. I used to love hot peppers, but I am now too sensitive for anything spicy.  My wife makes smoothies that have a ton of calories that insure I am getting enough to maintain my weight. Her current recipe is a boost plus, a container of the formula we used to put in the feeding tube, one Bolthouse Blue Goodness, some fresh strawberries, one instant breakfast, 2/3 cup plain Greek yogurt, and sports whey powder. She sometimes add 4 tblps of whipping cream that gives another 200 calories. This makes 2 smoothies for the day. I am sick of them, but will continue on them until I am able to gain or maintain without them.

My taste buds are "accepting" vanilla and strawberries first and are now expanding to sausage, sour cream, chicken and a few more things each week. Freash asparagus and veggies from the garden and are about the only thing yet that taste "good", but the other items I listed are becoming acceptable. Where you are sounds about where I was, so I think you have a lot of hope. I also developed a food aversion due to the bad tatste, but I am starting to overcome that. It sounds like you are doing good. I still have no saliva production and that makes eating difficult as much as the damaged taste buds, but biotine has helped a lot. I still take a swallow of water with each bite. 

I forgot to ask - which Biotene product(s) do you use?

RE: how long before you taste comes back??

by augustus on Wed Apr 01, 2015 05:48 PM

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I use the small spray bottle. I carry with me some. And I carry a bottle of water. I drink a lot of water. Dry mouth is a constant. 

RE: how long before you taste comes back??

by cancerposse on Wed Apr 01, 2015 05:52 PM

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My tastebuds came back gradually after chemo and two wks. after, I was fine.  However, I would like everyone reading this to know about my research into creating the optimal anti-cancer/cancer recovery diet.

First and foremost the Food Industry is POISONING US with pesticides, fungicides, antibiotics, etc. through the food chain.  Genetically engineered foods (GMO) allow farmers to apply even more herbicides than they otherwise would, including Monsanto's Roundup containing glyphosate, a teratogen (causes DNA damage and severe birth defects/mutations). Also, many of the food additives are carcinogenic.  So I have adopted 100% organic diet.  Yes, it's expensive but cancer treatments, even with insurance,are even more expensive.  To me, it's worth it to forego a movie or dinners out, etc., to afford organic.  I also suggest you go to this website: kriscarr.com and buy the video and one of Kris' books + a cookbook.  Kris Carr is a cancer patient with numerous "untreatable" liver and lung lesions but she's been alive and healthy since her diagnosis about 13 yr. ago due to her optimal diet.  I have adapted hers (which is plant-based, no dairy, no meat, no sugar, no coffee, v. little salt) to be 100% organic and I have a little lean meat (grass-fed, organic, pasture raised), a little org. dairy, org. sugar for occasional baking only but for tea, pancakes, etc. I use real maple syrup, honey, agave nectar, etc. I also allow myself 1 cu. coffee/day and drink lots of green tea (all organic).  Benefits of green tea for cancer are well known.  I am also a registered mmj patient and mj is beneficial for some cancers, see this for starters:

 http://www.cancer.gov/cancertopics/pdq/cam/cannabis/healthpr

I'm a Stage 4 CRC patient with surgery Jan. '14 and chemo ended Sept. '14.  So far so good on this diet, no recurrence. If you can only stand liquids, make your own organic fruit and veg. juices and smoothies.  I am shuddering when I read what some people are putting in their smoothies onn this board!  Mine are just nut milk and lots of raw fruit and if the fruit isn't sweet, add some stewed dates---all organic.  I did very well recovering from a huge surgery and chemo on this diet and right now am 100% healthy. Good luck but please, to truly take care of yourself/a patient, you need to get rid of/cut way down on the bad stuff (sugar, salt, fats, bad oils), eat a lot of raw foods and go 100% organic. The bad stuff including agricultural chemicals through the food chain is deadly and is likely how many of us got cancer in the first place.

RE: how long before you taste comes back??

by gr0619064 on Thu Apr 02, 2015 09:49 AM

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Augustus

Happt to see that you are starting to eat. I am three years out this month. It does get better but so far it has NOT returned to NORMAL? I miss my hot peppers too. But it does get better over time. The food aversion thing does finally subside with time but so far has not disappeared. I chew sugarless gum it does help with saliva prodution during the day. Hang in there

gary

RE: how long before you taste comes back??

by gr0619064 on Thu Apr 02, 2015 09:53 AM

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Yes-watching those cooking shows is torture-but I tried going out to those buger places and cheesesteaks(philly here) just to try and force my self to eat them but they never tase as good as it looked on TV. But it does get better slowly

gary

RE: how long before you taste comes back??

by Channing on Thu Oct 20, 2016 11:25 PM

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Hi my name is Channing, I went through cancer back in February went through 8 weeks of radiation and every Friday for 8 weeks chemotherapy it was rough,after my 3rd week I crashed could not eat either everything tastes Bland or the same or like metal, I totally went on the liquid diet also. I lost my muscle control to swallow that was the hardest part for me you have to push to swallow food down hard without clearing your throat. You will go through a swallow study therapy. It will help you my taste buds are not completely back but I am cancer-free and I'm eating 100% now. So keep your head up work hard you'll come back out of it and push yourself to swallow hard stay away from anything with acid because you have to make sure your mouth has saliva to swallow and you might lose it like I did. Your luck I'm praying for you

RE: how long before you taste comes back??

by Channing on Thu Oct 20, 2016 11:30 PM

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Hi this is Channing again, you must make sure your husband is on some vitamins and supplements to use Dr that's important. I learned  this though  my Drs. And you must get him into a physical therapy for a swallow study it will help him learn how to swallow again it's hard but you have to retain that muscle. I got home in May and it is now October and I couldn't swallow I had to relearn but I did it

RE: how long before you taste comes back??

by JRToronto on Thu Dec 29, 2016 10:48 PM

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I also set-up an account specifically to reply to this and maybe give people some hope. I am a 32 year  old female who was otherwise in good health. I had 36 radiations and 6 chemo for base of tongue cancer.  I had a feeding tube and lost my sense of taste completely.  I could not eat anything, not even water, for the last few weeks of treatment. I am now about 5 weeks post treatment and my taste is back to about 80 or 90%. Some things still taste bad or just different, but every day is an improvement.  My gtube came out a week ago, or 4 weeks post treatment. Everyone is vastly different so please don't panic that you will take months or years to recover. You may not.  

Anyone is free to contact me if they'd like. I'm more than happy to answer any questions about my experience. 

RE: how long before you taste comes back??

by jalind on Fri Dec 30, 2016 06:28 PM

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On Dec 29, 2016 10:48 PM JRToronto wrote:

I also set-up an account specifically to reply to this and maybe give people some hope. I am a 32 year  old female who was otherwise in good health. I had 36 radiations and 6 chemo for base of tongue cancer.  I had a feeding tube and lost my sense of taste completely.  I could not eat anything, not even water, for the last few weeks of treatment. I am now about 5 weeks post treatment and my taste is back to about 80 or 90%. Some things still taste bad or just different, but every day is an improvement.  My gtube came out a week ago, or 4 weeks post treatment. Everyone is vastly different so please don't panic that you will take months or years to recover. You may not.  

Anyone is free to contact me if they'd like. I'm more than happy to answer any questions about my experience. 

Glad you're improving from treatment effects. It will take a while. Chemo, depending on what it was, can also affect taste. The time needed for mine to substantially return wasn't far off from yours. How is your salivation? That usually takes a hit. How severe depends on the individual, and the specific radiation plan with its radiation field. Treating radiation induced xerostomia is well understood, usually with daily Salagen (Pilocarpine), but don't expect to get back to where you were. In conjunction with that, take very, very good care of your teeth to prevent the need for oral surgery of any kind. Keep track of your TSH with annual or semi-annual blood tests as one of the very common late effects is hypothyroidism that appears a few years after the radiation. There are other threads on the message board about various temporary and permanent treatment side effects, some of which emerge immediately during treatment and some of which emerge later, sometimes a number of years later (thyroid damage is one of them).

I'll be celebrating 7 years of H&N SCC, and 4 years of Melanoma survivorship in January. Best Wishes and have a great New Year!

John

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