ct scan w/contrast and one kidney

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RE: ct scan w/contrast and one kidney

by Minimartin on Fri Mar 08, 2019 04:28 PM

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I had a kidney removed in 2016 for Stage IV RCC. I have a CAT scan every six months, w/o contrast. I also have decided to refuse a colonoscopy after speaking with my gastro doctor and reading medical information on the affect of the prep on my remaining kidney. My gastro doctor said he's never had anything go wrong in the 25 years he's been doing the procedure, but I didn't expect to discover Stage IV RCC and a 6.2 cm tumor surrounding my right kidney, having no symptoms at all. I refuse to compromise my one remaining kidney. I have enough health situations going on without adding dialysis to the mix. I would also suggest that you find an oncologist that is familiar with rcc and get another opinion. Or two. Take care and God bless. 

RE: ct scan w/contrast and one kidney

by starkwood on Sat Mar 09, 2019 04:46 PM

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Good thinking.  Your tumor likely took 12 years or more to develop.  Most RCC tumors are found incidental to some other reason for the scan because most people are asymtomatic before discovery.  I had one that measured close to 7 cm - all within the right kidney - and never knew it until an MRI of my back for lower back pain from bulging discs was completed.  It's a relatively rare cancer type and often progresses into other areas of the body before people know they have it.  By then, it is often a matter of delaying the inevitable.  I had my right kidney removed entirely in 2014 and nothing else showed up for 2.5 years.  Then it was in my lungs which was removed surgically and then nothing for 18 months.  Now it's back in the lungs.  Thank God, it's nowhere else...yet.  Prayers and good wishes for recovery.

RE: ct scan w/contrast and one kidney

by donsmrs on Wed Mar 13, 2019 03:11 PM

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On Oct 21, 2010 8:59 PM jane99 wrote:

Hello,

I have stage 4 RCC.And am on sutent. My kidney was removed in 6/09 and then a retroperitoneal mass in 4/10.

I had an mri with contrast yesterday and am scheduled for a ct scan with contrast next week. I was told when I had my kidney removed that I should not have contrast witout having a kidney fuction test first. For these scans, I am basically being told that the kidney function test is no longer needed. I went ahead and had the one yesterday, but am concerned about having another scan so soon. Is it true that over time one doesn't need to worry about the contrast anymore. My oncologist is a generalist and does not have experience with rcc. My insurance company refuses to let me see the specialist at our local cancer hospital because he is out of network. Should I be worried about the contrast or am I making a big deal out of nothing? Thanks for any replies.

Jane

 

 

You need a board certified nephrologist to be your voice. They may have to preadmit you for hydration and for premedication. There is a drug used for respiratory patients that can reduce potential injury.  In the 7 years since his kidney was removed, my husband had 2 CTs with contrast, both done with all the preps I outlined. After that, under advice from two other specialists, we got a nephrologist on board to follow my husband (yes, with all the other docs), and while he still had CT's, suddenly no more CTs with contrast were found to be necessary. Go figure. You would benefit from having a nephrologist to help preserve the integrity and function of the remaining kidney. GP,s, Family docs, cardiologists, internal medicine specialists, and oncologists- not one knows as much about keeping a kidney healthy as a nephrologist. I only wish we had known that from the very onset of the RCC.And I am an RN. Just sayin......

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