Polycythemia Vera

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RE: Polycythemia Vera

by sabar on Wed Mar 18, 2015 01:27 PM

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On Mar 17, 2015 7:55 AM nksood wrote:

Hi

I was diagnosed PV JAK 2 detected about 2 yrs now.I have undergone phlebo roughly every 2 month.I got very interested to read about graoefruit and am surprised that the study was done in 1988 but no follow up.Grapef "" target="_blank" rel="nofollow">http://up.Grapef " target="_blank" rel="nofollow">up.Grapef ruit is nowadays not in season here so I have started taking its juice.I wanted to thank you.Please "" target="_blank" rel="nofollow">http://you.Please " target="_blank" rel="nofollow">you.Please keep posting such helpful links.Hope "" target="_blank" rel="nofollow">http://links.Hope " target="_blank" rel="nofollow">links.Hope your wife is feeling better.

Hi nksood,

Thank you for thinking my wife.  You don't need to eat grapefruit seeds to get the benefits when they are out of season.  You can get the naringin extract from Amazon: http://www.amazon.com/100%25-Natural-Naringin-500-Caps/dp/B0 $8.  I am not surprised there is not any followup with naringin - there is no money for pharmaceutical companies to make money on something that is natural and not  patentable.  If you are JAK2 positive, you might want to research butterbur or something similar. 

 

RE: Polycythemia Vera

by nksood on Thu Mar 19, 2015 07:02 AM

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Hi

Thanks for your reply.I shall start taking Naringin extract soon in the meantime I am drinking its juice.Can you tell me how long one has to take Naringin extract?I shall do research on Butterbur too.I am from India & am taking our Ayurveda & Naturopathy treatment too.Once again a big thank you!!!

RE: Polycythemia Vera

by bobstar on Fri Mar 20, 2015 10:44 PM

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Hello Flan this video is a must if you want a sure understanding of how cancers  ( acids eating cells) develops it saved many of my friends from the horrors of chemo and radiotherapy and toxic meds that have no curitive value just tretaing the symptoms  please watch and spread the truth happy healing x 

https://www.youtube.com/watch?v=RTxSnQbn--E

RE: Polycythemia Vera

by sabar on Mon Mar 23, 2015 11:17 AM

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Hi nksood,

I wish I could be more help but I am not sure how long or how much Naringin you need to take.  It is guess a guessing game to us.  My wife takes it in the middle of the night so it does not interfere with the other herbs she is taking. 

RE: Polycythemia Vera

by nksood on Tue Mar 24, 2015 07:53 AM

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Thanks Mr Sabar,how long she has been taking it and any improvement in PCV?If you do not mind I suggest she should take it in daytime because fruits are better if taken during daytime.

RE: Polycythemia Vera

by mokey on Thu Mar 26, 2015 12:22 PM

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dear chelle3 I have had pv for two years. Live in North Jersey and have been treated at HUMC and given hydroxyurea varying doses depending on blood reports. Recently went to well known expert at JohnsHopkins in Baltimore. He reviewed my blood test for the past 10 yrs and said I should get off hydroxyurea and not take vitamins or supplements and should just have phlebotomy monthly until I get to 42 percent . Then ass needed. He could only recommend Dr. at NYU or Dr. at Cornell. Would like to find doctor in North Jersey who uses phlebotomy . Do you know of any? Thanks for any information. My Hemotologist left while I was in Florida for two months. Rob

RE: Polycythemia Vera

by sabar on Thu Mar 26, 2015 04:17 PM

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Hi Rob,

I am guessing your hematologist is recommending that you are to get off hydoxyurea due to the long term affects or the increase risk of getting some type of luekemia.  As for suppliments, anything with high iron or vitamin C will make your bone marrow increase the production of red blood cells.  Vitamin C increases your absorption of iron.  If you take Vitamin C or eat citus fruit and worried about too much iron, take it 4 hours absent of iron rich foods.  Vitamin C exits the bloodstream within 4 hours. 

Phlebotomies are the way to go (low risk), if one's iron does not get too low.  Iron seems to be a double edge sword for Polycythemia patients.  Obviously it is a balancing game.  For those who phlebotomize frequently, then you may need to increase your iron levels.  For those who do not, you may want to decrease your iron levels. 

RE: Polycythemia Vera

by StaceyMcCann on Mon Mar 30, 2015 02:55 AM

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Hi. My doctor thinks I have PV. I noticed no posts about their lab results. Can someone with PV give me an idea how high their red and white cells are. Thanks, Stacey

RE: Polycythemia Vera

by nksood on Mon Mar 30, 2015 06:36 AM

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Hi Stacey

Are you JAK 2 detected?

My Hb is aound 12.5Gm & PCV 49 WBC around 19,0000 with Neutrophils 86%. 

RE: Polycythemia Vera

by StaceyMcCann on Mon Mar 30, 2015 09:46 PM

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On Mar 30, 2015 6:36 AM nksood wrote:

Hi Stacey

Are you JAK 2 detected?

My Hb is aound 12.5Gm & PCV 49 WBC around 19,0000 with Neutrophils 86%. 

Thanks so much for responding. Hb is 16.600, WBC 16.800, NE% is70.9%. I see the hemotogolist on Thurs. My Doc tells me it's not blood cancer? So scared:( I'm sure I will have a lot more testing on Thurs.

THANKS!

Stacey

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