Lessons learned and tips on using Efudex or Carac

940 Posts | Page(s): Prev 12...86 87 88 89 90 ...9394 Next 

RE: Lessons learned and tips on using Efudex or Carac

by VEGASLOU on Sun Nov 18, 2018 08:53 PM

Quote | Reply

As I look back on pictures, I find that each time was DIFFERENT!

I can't figure out just why that is. Anyhow, I have known more people that died from cancer than any other method (I keep track) and so am glad to put up with the discomfort. Still wondering if 6 months is too soon for delicate face skin?

RE: Lessons learned and tips on using Efudex or Carac

by redintheface on Sun Nov 18, 2018 09:08 PM

Quote | Reply

I am not a doctor, but a patient. With that being said my thoughts are every 6 months might be a little aggressive and I'd worry about damaging that sensitive areas we talk about. This time it took months for the pink in those areas to go away. The damage to your skin is not just on the surface, it's deep so you might want to give it time to rise to the surface. I have actinic keratosis, if that's what you have too you might want to look into the sun block that was introduced this year specifically for people with AK. It's called ISDIN ACTINIC CARE, Eryfotonia Actinica. It's a broad spectrum sunscreen with DNA Repairsomes and antioxidants . Helps to prevent actinic damage. It's a 100% mineral sunscreen. It's not thick or greasy and best of all it does not leave "white" marks on dark furniture, counter tops or on your car seats if you have black interior. 

It's sort of like weeds, you pull a weed, that same weed might pop up again because you didn't get all the root. You have to keep on pulling them (using Efudex) and in my experience the same areas become clear and you'll have less and less. It sounds like you have lots of damage and deep damage, but don't give up or over treat. Maybe it's time to take with your doctor before you treat again.

RE: Lessons learned and tips on using Efudex or Carac

by dpsteven on Sun Nov 18, 2018 09:15 PM

Quote | Reply

I would like to know if you people experience an overall drop in total functionality of the body as you're going through the treatment. I don't have my usual zip :(

RE: Lessons learned and tips on using Efudex or Carac

by redintheface on Sun Nov 18, 2018 09:32 PM

Quote | Reply

I personally haven't experienced this, but I know some people do. If it becomes excessive and you're not able to function I'd give your doctor a call.

Good luck to you....

RE: Lessons learned and tips on using Efudex or Carac

by dpsteven on Sun Nov 18, 2018 10:51 PM

Quote | Reply

I saw this study cited and apparently used by that person:

Noninflammatory Destruction of Actinic Keratoses by Fluorouracil

Thomas Breza, MD; J. Richard Taylor, MD; William H. Eaglstein, MD

Arch Dermatol. 1976;112(9):1256-1258. doi:10.1001/archderm.1976.01630330026006

• Sequential topical application of fluorouracil and 0.5% triamcinolone acetonide cream is as effective in the treatment of actinic keratoses as fluorouracil alone, but the combination obviates the unpleasent irritation caused by fluorouracil. Diluted (0.1%) triamcinolone acetonide cream preparations are ineffective in the suppression of the associated inflammation. There is no detectable difference in the number of new actinic keratoses between the combination therapy and fluorouracil alone.

These findings demonstrate that the degree of success with fluorouracil therapy in actinic keratosis is not related to the degree of inflammation associated with the treatment and are consistent with a chemotherapeutic explanation of fluorouracil's effect on actinic keratosis.

(Arch Dermatol 112:1256-1258, 1976)

Does anybody know why this isn't more commonly used to avoid heavy-duty side effects from treatment?

RE: Lessons learned and tips on using Efudex or Carac

by RealMckoy on Sun Nov 18, 2018 11:54 PM

Quote | Reply

On Nov 18, 2018 9:15 PM dpsteven wrote:

I would like to know if you people experience an overall drop in total functionality of the body as you're going through the treatment. I don't have my usual zip :(

I did 2x per day for 21 days, had a significant response and had very little systemic affect on my body. In fact, I had watched dozens of videos, was prepared for significant discomfort and in the end mostly it just felt like a sunburn apart from a few days where I had itchiness etc.

Also I see no point in not treating the side effects of the cream which is dermatitis during the treatment phase. You dont need to put up with the inflammation, dryness etc as it has nothing to do with the effectiveness of the treatment. 

If you feel you need Aquaphor, anti-biotic or cortizone ointment or moisturiser during treatment use it. Just ensure its removed before the next application. I used a very soft microfibre cloth with very gentle cleanser. No issues removing despite very sensitive skin.

Also from this thread I took the advice to use 1% cortizone ointment (rather than a cream) a few times during treatment phase to settle irritation and then post treatment 2-3 times per day which was the worst phase. it was fantastic. It settled the irritation and provided a moisturising barrier. Its soothing effect was instant after a shower. The ointment was so good I didn't even need Aquaphor.

From what I read, a lot of people are following instructions that are decades old, such as not using anything on the face to reduce the irriation during the treatment phase. Research has indicated cortizone ointment does not reduce the effectiveness of the treatment.

All in all it wasn't that bad. You can watch too many horror story videos. 8 weeks post treatment and I'm continually being told that I look years younger. My skin looks amazing so at this stage very glad I did the treatment

RE: Lessons learned and tips on using Efudex or Carac

by RealMckoy on Mon Nov 19, 2018 12:01 AM

Quote | Reply

There is another thread running on this site regarding different treatment protocols for Efudex especially for those with ongoing issues, high risk etc. Some are doing it 1x PW for a year for apparently the same effect with none of the redness, iritation of the intensive treatment protocol.

One person who was high risk was prescribed to use it 1x PW for the rest of their life

RE: Lessons learned and tips on using Efudex or Carac

by redintheface on Mon Nov 19, 2018 01:01 AM

Quote | Reply

I've seen this article before along with the doctor's names attached. I called the manufacturer and asked questions, but they are very non committal in giving information. However, I was told that they did not do testing adding other drugs to it. They only test their drug. If we're not seeing this combination used maybe it gives us cause to rethink this. I looked up the drug, it's use and side effects, but couldn't put the link here.  Google: 0.5% triamcinolone acetonide cream

RE: Lessons learned and tips on using Efudex or Carac

by DianeAurit on Mon Nov 19, 2018 01:58 AM

Quote | Reply

This is very interesting.  As a said a while back I have been doing this treatment periodically for over 20 years.  I have had 2 excellent dermatologists and I follow their instructions as to when and how long etc. As you said, afterwards it is like I had new baby skin and it has been this way with my face ever since my first application which was very severe according to my doctor.  I think most of these questions are best answered by a doctor but no matter what I encourage the use of the treatment as the results are execellent and worth the pain etc.

RE: Lessons learned and tips on using Efudex or Carac

by VEGASLOU on Mon Nov 19, 2018 02:20 AM

Quote | Reply

I lift weights and swim for time. But I just don't have the urge to do them when treating. Normal enough, I imagine.

940 Posts | Page(s): Prev 12...86 87 88 89 90 ...9394 Next 
Subscribe to this message board discussion

Latest Messages

View More

We care about your feedback. Let us know how we can improve your CancerCompass experience.