Lessons learned and tips on using Efudex or Carac

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RE: Lessons learned and tips on using Efudex or Carac

by VEGASLOU on Mon Nov 19, 2018 02:26 AM

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Wowee!

1 - - That is heavy - Does this alternating of the two creams NOT bring on a rash? Is that what they are saying?

2 - - I was considering (now that I have finished my 14 days on the face) just applying Efudex on nose and forhead creases every weekend, and not more than that. A Kaiser doc once told me it "keeps the AK at bay".

Anyone have thoughts on these two (2) CONCEPTS?

RE: Lessons learned and tips on using Efudex or Carac

by Estcstkitty on Fri Feb 01, 2019 02:08 AM

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Hello, I’m sitting here in tears, fed up and in excruciating burning pain... I’m into my 22 nd day, and still have 2wks and 6 days left ... My face is a mess and it hurts so bad I can barley wash it .. I’m trying to get the nerve up to apply my night treatment ... please tell me it’s normal... I’m beside myself ?????? No relief... it’s all over my face the cracked dry dead skin ,I have oozing blisters ..and raw skin bright red under it all ... The medicine just keeps burning ... please anyone with tips I would appreciate it ... ( mine is 2xs per day for 6 Wk’s for skin cancer all over my face ... 5 surgeries in same place just keeps coming back sooner and a little higher.. it’s up almost to my tear duct... I had another surgery on the corner of nose with skin graft from my neck ... Thank you for listening to my whining ... I’m really trying but I just can’t put the night application on .. Elizabeth

RE: Lessons learned and tips on using Efudex or Carac

by DianeAurit on Fri Feb 01, 2019 02:45 AM

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Estcstkitty,

There is no doubt that this process is brutal, especially at your stage. Unfortunately what you are going through is normal.  It sounds like you are at the erosion stage which means you might not need to go the entire 6 weeks but that is your doctor's decision.  Have you seen your doctor since you started the treatment?  You might make an appointment.

At night I would use a cold pillow and try to flip sides as it warms up.  Keeping it cold is about all you can do to make it feel better other than some sort of pain killlers like Tylenol.  

Hang in there.  We have all been through this which is why this group is so great.  I am sure others will have more suggestions too.  It truly is worth it!

Diane

RE: Lessons learned and tips on using Efudex or Carac

by melanomaremedy on Fri Feb 01, 2019 03:11 AM

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Ms Elizabeth...I think you have arrived at erosion / climax stage. Your provider should have an appreciation of the suffering you're experiencing (  most of us who benefit from Efudex might go 18 - 24 days on face & up to 6 weeks on arms & legs ) and should fit you in for observation now.  If it takes a couple of days to schedule any benefit you might lose by not applying  would be miniscule.

Someone remarked about treatment utilizing combo Triamcinolone Acetonide :  I did not use in combo but after Efudex for comfort / recovery and if male watch out ( checked Google afterword & they warned ) - I used over neck, shoulder area for not more than 5 days and resulted in incredible burn on back of scrotum - Beware

just now remission 9 yr metastatic melanoma; many clinical trials, surgeries & half dozen Efudex sessions thrown in there... Cheers

RE: Lessons learned and tips on using Efudex or Carac

by redintheface on Fri Feb 01, 2019 03:42 AM

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Hi Elizabeth, I agree with Diane, it sounds like you're just where you should be at 22 days and what's happening is what's supposed to be happening. If you mean you're applying the cream 2X a day I'm wondering if you mean once in the morning and once at night as that's the typical way to apply it. I'm also wondering if you mean the cancer spreading is going near the corner of you eye as you're not supposed to apply this cream into the orbit space of the eye. Wash you face gently in the morning and blot dry with a clean wash cloth. Wait 10 minutes and very gently rub/blot the cream on and rub. Same thing at night. Do not go into the sun as this will intensify the effect of the cream. Try putting a clean piece of plastic on your skin and let a bag of frozen peas cool the area down. My first treatment was for 6 weeks which is a real killer. Call your doctor and ask if he/she can look at your progress. If you're suffering this badly and you have almost 3 weeks to go he/she might suggest you only apply one time, but might extend the application process. Ask if he can prescribe something for the burning/itching. Some doctors will say Aquaphor is Ok to use, but ask first everyone's case/severity is different. We all understand your pain as we've all been through it and some of us numerous times. If this is your first time to go through this you don't know what to expect, but with your history of surgeries and pain you're experiencing I'd ask to be seen ASAP to make sure all is going according to plan.

Hang in there it really is worth it. Best wishes to you.

RE: Lessons learned and tips on using Efudex or Carac

by Estcstkitty on Tue Feb 05, 2019 04:40 PM

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Thank you .. I appreciate you replying... Liz

RE: Lessons learned and tips on using Efudex or Carac

by Estcstkitty on Tue Feb 05, 2019 04:56 PM

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My Dr. didn’t explain anything about erosion stage or climax... I made appointment and received topical lanocaine .. My face is crusting peeling and still seems burned under neath ... The pain is awaful .. more so on raw skin .. I have had to slow down application to 1 time every other day and twice on others .. ( morning and evening) ... Thank you for letting me know the cooling tips .. I’ve been using green pea bags and putting a wet cool cloth across my face setting the bags on top. It helps .. My eyes are so swollen ... I have no idea why other than guessing when I do actually sleep maybe with the night sweats it goes to my eyes ... I’m counting down the weeks Friday is the forth week.. only 2 left ..thank Goodness...

RE: Lessons learned and tips on using Efudex or Carac

by Estcstkitty on Tue Feb 05, 2019 05:07 PM

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Hi Diane , My dr gave me the option to let this all heal and restart and finish the last weeks, but I know me I won’t be able to restart this.. so basically I’m just trying to pull my big girl panties up and deal with it... The Dr. did give me lanicaine to apply.. Could you explained the stages of it... The Dr. never said there was an erosion/ climax point.. I appreciate your information... Elizabeth..

RE: Lessons learned and tips on using Efudex or Carac

by redintheface on Tue Feb 05, 2019 07:39 PM

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Hi Liz, I'm not surprised your doctor didn't explain what would happen to your skin once you started treatment. Sounds like you're right at the erosion stage which for most people that's when you stop treatment, but not always. My first time around I had to go 6 weeks and thought my face was going to burn off. When using the frozen peas make sure you're using a barrier, plastic wrap, so that you're not exposing your skin to others who have handled the peas as well as you're not putting the medicine on the outside of the peas. This medicine is poision. When you made an appointment did you see your doctor? At that point I would have thought he would have told you how you're coming along and whether or not to stop treatment. Also, were your eyes swollen at the time. You should not be applying this medicine into the orbit of the eyes, above the cheek bones. You don't want to let this cream get into your eyes at all. Whether you're having night sweats at night or not change your pillow case frequently, even double your pillow cases so it doesn't get on the pillow itself. Are you seeing a board certified dermatologist for your treatment? You can Google a search "images of erosion using Effedex cream" and you will see lots of faces. Some of the people also have blogs you can read about. Your skin will be very red, itch like crazy, ooze/weep liquid, crack open, bleed, and peel all at once. Don't be tempted to help peeling skin. If you peel it and it's not ready it will hurt badly and bleed. I was always told to wash/gently blot dry with a clean wash cloth each time, in the moring, wait 10 minutes, then reapply. Same thing at night. I never applied new cream over old. Wash your hands well after applying. Don't let anyone used your towel. Stay away from people with colds or who are sick. Your skin is open to infection right now so be very careful. Don't go into the sun or sit in the sun at home. 

Hang in there, you're going to get through this....

RE: Lessons learned and tips on using Efudex or Carac

by DianeAurit on Tue Feb 05, 2019 08:52 PM

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Hi,

My husband is doing his face right now and his doctor had him go two weeks on and two weeks off then two weeks on again.  He healed quite a bit during the two weeks so that might be easier in the long run.  I have never gone over 4 weeks so I can't imagine how hard this is for you!

I am not an expert on the stages but if you read enough of the comments on this very long post you will learn a lot about them.  All I know is that you start with the red and the more and more scabs and sores start to appear.  If you look erosion up online you will get a definition but I feel it is when your scabs/sores are opening, sometimes bleeding and oozing.  I wish we could share photos on this site!

I hope this helps,  Diane

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