Lessons learned and tips on using Efudex or Carac

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RE: Lessons learned and tips on using Efudex or Carac

by redintheface on Sun Sep 29, 2019 09:53 PM

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In the beginning it might be Ok to use paper towels, but as you progress I think the paper towel might tend to stick. I was told to use Efudex twice a day, once in the morning, and once at night. When ever I used Efudex I washed the towel I never used it twice for fear of germs and not wanting anyone else to accidently use it. 

Good luck to you.

RE: Lessons learned and tips on using Efudex or Carac

by DianeAurit on Mon Sep 30, 2019 12:58 AM

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Candy, What your doctor said is true although I find that even after years of use whenever I apply it and wherever I apply it I get a reaction.  I assume I still have damage in those areas but it does seem to react no matter what on my face.  Other areas not as much.

RE: Lessons learned and tips on using Efudex or Carac

by leonavonhasling on Thu Oct 03, 2019 10:34 PM

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On Sep 29, 2019 9:53 PM redintheface wrote:

In the beginning it might be Ok to use paper towels, but as you progress I think the paper towel might tend to stick. I was told to use Efudex twice a day, once in the morning, and once at night. When ever I used Efudex I washed the towel I never used it twice for fear of germs and not wanting anyone else to accidently use it. 

Good luck to you.

Thanks for your reply. I'm in day 6 so still in the early phase without too many symptoms. To make matters worse, I had a basal cell carcinoma surgically removed last month. Upon rechecking, he took a new sample of a suspicious area under my eye. Now my eye is swollen and I look horrible with sores and the cream starting to do its thing. He said it is okay to put the Efudex on a scar. Someone had asked about that. But I was told he stay clear of eye area, mouth, and creases by nostrils. Interesting how one doesn't want to "live life in the moment" during these times. We are definitely living for the future. But thanks, Guys, I'll hang in there.  Appreciate your support!!!  Really.

RE: Lessons learned and tips on using Efudex or Carac

by leonavonhasling on Fri Oct 04, 2019 12:11 AM

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Did Efudex make you tired? I find I just don't have the same energy and tire easily.

RE: Lessons learned and tips on using Efudex or Carac

by DianeAurit on Fri Oct 04, 2019 01:35 AM

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On Oct 04, 2019 12:11 AM leonavonhasling wrote:

Did Efudex make you tired? I find I just don't have the same energy and tire easily.

It definitely made me feel "off" but I didn't realize how much until I finished the treatments and then I suddenly felt like myself again.

RE: Lessons learned and tips on using Efudex or Carac

by redintheface on Wed Oct 09, 2019 06:33 PM

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I have a male friend that will soon be starting the use of Efudex. I told him about this site and how helpful it can be. His question is, what does he do about shaving? Do we have any men here and what did you do about shaving?

Thank you in advance.

RE: Lessons learned and tips on using Efudex or Carac

by leonavonhasling on Wed Oct 09, 2019 11:36 PM

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Thanks for your answer.  It's awesome to have this support group.  You just don't have to feel ALONE in this. Friday will be my 2-week entry and I expect the bomb to drop after that. Hope I can help someone along the way.

RE: Lessons learned and tips on using Efudex or Carac

by leonavonhasling on Sat Oct 12, 2019 02:03 PM

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On Sep 29, 2019 9:53 PM redintheface wrote:

In the beginning it might be Ok to use paper towels, but as you progress I think the paper towel might tend to stick. I was told to use Efudex twice a day, once in the morning, and once at night. When ever I used Efudex I washed the towel I never used it twice for fear of germs and not wanting anyone else to accidently use it. 

Good luck to you.

Hey, Everyone, thought I would post my experience starting Week 3.  It is true that the pain really starts after 2 weeks. My face definitely looks like a burn victim and I got a cold sore by the side of my mouth.  The good news is that the pain is really intense for only 10-15 minutes and I found that using a fan really helps. Go to Dollar Tree and get a $1 hand fan like those Japanese fans.  The cool breeze you create will give you some comfort 'til you pass that short period of time. Then things will calm down. 

RE: Lessons learned and tips on using Efudex or Carac

by DianeAurit on Sat Oct 12, 2019 06:46 PM

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Keep up the good work!

RE: Lessons learned and tips on using Efudex or Carac

by Michael65Rosol on Fri Nov 15, 2019 05:06 AM

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On Feb 01, 2019 3:11 AM melanomaremedy wrote:

Ms Elizabeth...I think you have arrived at erosion / climax stage. Your provider should have an appreciation of the suffering you're experiencing (  most of us who benefit from Efudex might go 18 - 24 days on face & up to 6 weeks on arms & legs ) and should fit you in for observation now.  If it takes a couple of days to schedule any benefit you might lose by not applying  would be miniscule.

Someone remarked about treatment utilizing combo Triamcinolone Acetonide :  I did not use in combo but after Efudex for comfort / recovery and if male watch out ( checked Google afterword & they warned ) - I used over neck, shoulder area for not more than 5 days and resulted in incredible burn on back of scrotum - Beware

just now remission 9 yr metastatic melanoma; many clinical trials, surgeries & half dozen Efudex sessions thrown in there... Cheers

YOu said you Google Searched about your scrotum burn ? Can you tell me what you found as I couldn't find anything about that side effect, and I was going to bring the article about the combo/after use of Triamcinolone Acetonide ?

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