Infant Radiation for Enlarged Thymus Gland 1940's & 1950

225 Posts | Page(s): Prev 12...16 17 18 19 20 ...2223 Next 

RE: Infant Radiation for Enlarged Thymus Gland 1940's & 1950

by waffen41 on Mon Sep 14, 2015 05:48 AM

Quote | Reply

Dear Anita and all who are part of this group who were subjected to Radiation when a young child for an Enlarged Thymus. As you probably have seen I have had most of my Thyroid removed when I was 28 in 1968 because of precancerous tumors. I have had several uncomfortable biopsies of what is left of my thyroid because of nodules growing.  I am due for another biopsy later this month.

I also have had at least 24 skin cancer operations from tiny to large enough to take 5 stiches. My Dermatologist told me that the skin cancer was most likely caused by the massive radiation I was subjected to as an infant.

The reason I am replying is because I really appreciate all who have thanked me for my  input and all who are sharing their personal, some very personal stories. Thank You.

I sincerly wish the best and will pray for you all.

RE: Infant Radiation for Enlarged Thymus Gland 1940's & 1950

by chattyjack on Tue Sep 15, 2015 02:53 AM

Quote | Reply

I am wondering if they really DID figure it out not too far down the road when medical problems started to show up.  My reasoning is when one of us wrote in and mentioned about a fire destroying the records. Hmmmmmmmmm...this has been procedure for too many years for too many reasons. No matter what the truth really is, this was the treatment of that Era. We now can voice it out to each other and become one. It is up to us to support each other. Let us begin the Support of those that were INFANT RADIATED.  

RE: Infant Radiation for Enlarged Thymus Gland 1940's & 1950

by Joheff on Tue Sep 15, 2015 04:42 AM

Quote | Reply

On Sep 15, 2015 2:53 AM chattyjack wrote:

I am wondering if they really DID figure it out not too far down the road when medical problems started to show up.  My reasoning is when one of us wrote in and mentioned about a fire destroying the records. Hmmmmmmmmm...this has been procedure for too many years for too many reasons. No matter what the truth really is, this was the treatment of that Era. We now can voice it out to each other and become one. It is up to us to support each other. Let us begin the Support of those that were INFANT RADIATED.  

Interesting how many times now I have heard about records being lost in fires. My sister deals with this with the government and VA system when it comes to her husband with Alzheimers!!

RE: Infant Radiation for Enlarged Thymus Gland 1940's & 1950

by smoothmtlion on Tue Sep 15, 2015 08:42 PM

Quote | Reply

i was born 8-8-1953 and on that day had 9 straight hours of radiation, straight out of the womb, my father was in korea, they knocked my mother out, and she never knew until i was 50 that i was irradiated, lol, when my present endocrinologist, told me my name was on the list, so, so far, i am 62, have had no kidding 60 surgeries, for,,,,,,,,,,, thyroid cancer, full blown stage 6 end stage due to a complete thyroidectomy, on 10-15-01 and then feb 1, 02 had a lvad, or, an artificial heart basically installed, wore it or 89 days, and then may1, 2002, i recieved a complete heart transplant, i also contracted lung cancer, had top of my right lung, removed 1-8-13, i am now no evidence of cancer, my heart is great had it for almost 14 years, now, and my heart when they took it out was as big as a nfl football the valves wouldnt even close and it is supposed to be big as your right fist, my was football, not exagerating, and yes when removed it had radiation burns all over it, then endocrinologist found the name, there is a list, they did this heavier in some areas than others, i have broken my arms 18 times 5 legs, mostly lower, no femurs, knock on wood, i broke my jaw, of course it was a motorcycle wreck so would broken it anyway, but my feet were broken many times most fractures occurred by the eight grade, so, at times in my life, i have been the incredible hulk, and then cant walk all the way to the bathroom with out resting, and now with 60 surgeries, eveything has been fixed, have osteopenia mostly in wrists but maybe that is an evolution as my arms are shoulder heighth mostof my life, as i don't know if it helped or hut, but my intelligence has always been off the charts, i am top 1% national sat's have many degrees, i am a registered mensa, and have had offers to attend mit, and many other high profile schools, so blessed with hellacious brain my head is even bigger that most, try to find a cowboy hat no way lol. but i have been up and down all my life, i had weird stuff like me knees seventh grade, had osgood schlatters disease so bad they had to break them both at the knees and put in pins they are all fine, now, i went from 318 pounds down to 138 no typos, i power walked 289 miles every 9 days slept and ate like a pig on day 10, then slowed that down after i lost so much weight my heart had healed itself, i lifted weights got into such massive and disappropiate, shape that i played, college football on scholarship at a prestigeous technical college, only 3 of every hundred that start graduate, they almost all go to a state college to make they degree, so don't know maybe i would be smarter if no radiation or did it do something to make me different,  i don't like some of the 'gifts" i have attained, i have had my last rights 12 times 7 times during the artificial heart experience 89 days, then real heart i died 5 more, during jan 2013 i had a little tiny piece of lung cancer, and had to have the top of my right lung cut out, it was discovered i had an ileus blockage in my intestine, so make a long story short, they did the first surgery on lung jan 8 13, and it leaked air and blood so the 10th 02 they opened me back up, fixed the leak they had to take the lung out through the back, twice in forty eight hours, the second time they accidently ruptured a bunch of my intestines and colon, i lost my sigmoid colon, part of my colon and 7 feet of intestines, lol not funny but had then perontinitis really bad they left me open put a diaper like thing over the hole that went from chest down past my naval and would open me up, every 2 to 5 days and knock me out take my intestines, out, and clean them yep with sterile water, so had 11 surgeries, in 66 days, was npo for 72 days not even a drink of water all iv,was in icu for 68 days, in critical condition...........but, they told me i would be not able to do anything for 14 months minumum well in 10 weeks i was back to lifting light weights and now i work out every day, can bench press a fire truck and chase down a deer, not exagerating that much i am in better condition now that my late twenties and early 30's it is crazy as hell i don't try to make sense of it, i just know one thing i can say, do the few things you have to, to stay healthy, diet, don't temp it, and frequent trips to the doctor, the key to survival and actually cure, i am cured of cancer at this point, is early detection, don't put your head in the sand and think it will go away, a little discomfort a longer life, what it is all about, and listen to the doc, get the best doctor you can find, and listen do everything he tells you, everything and fight, fight like the devil, i have a saying that FIGHT TILL HELL FREEZES OVER, THEN FIGHT ON THE ICE, my motto, and  hey i am writing you this huh? the transplant ruined my career i had in medicine, but back to the smarts lol i am a prodigy musician,i could play songs on the guitar, before i was in the first grade, i wasnt hendrix or hose feliciano but hey i rocked for a pup, and by 12 i was professional making money by high school i made about twice a week what the teachers did, so the didn't care much for me, the ones who really took the time to know me, told me then i will go far, and i have and will keep getting better than MYSELF tomorrow than i am today, hope that helps you out mam to much info huh. but ask me anything almost am like reid on criminal minds, one of them but looking no not till i start to talk, lol good luck

RE: Infant Radiation for Enlarged Thymus Gland 1940's & 1950

by robinlynn5 on Wed Sep 16, 2015 04:24 AM

Quote | Reply

It's unbelievable that you are still alive and what you've been through.  I consider you a miracle.  Your positive attitude is also extraordinary.  You have no anger what the doctors did to you and that they did so without informing your parents?  Do you believe there may be some truth in that doctors knew all infants have enlarged thymus glands and that the radiation was covertly researching for SIDS?  You mentioned your doctor found you were on a 'list'.  I think all or most of here would like to know more about this list.  Can you provide any information about it?

RE: Infant Radiation for Enlarged Thymus Gland 1940's & 1950

by robinlynn5 on Wed Sep 16, 2015 04:36 AM

Quote | Reply

I found this article which might be of interest to all participants in this thread:

Ending of the Era of Radiation Therapy for Enlarged Thymus

at http://www.ratical.org/radiation/CNR/PBC/chp11F.html

RE: Infant Radiation for Enlarged Thymus Gland 1940's & 1950

by suggi on Sun Sep 27, 2015 04:46 AM

Quote | Reply

Hi - I had radiation for enlarged thymus as an infant and again when I was about 7 to "get rid of scar tissue" as I could not eat.  I only weighed 50 lbs.  I have had breast cancer, thyroid nodules, severe hyperthyroidism which almost killed me that I had the radio active iodine pill for, basal cell carcinoma and NOW precancerous IPMN pancreas cysts and precancerous bile duct cysts - both I am told I am not a candidate for surgery so I just have MRCP MRIs and wait for them to turn to cancer and/or the bile duct one to grow and block the common bile duct.   I also have a lot of drug allergies and the allergist said he believes it has something to do with the radiation I had as the thymus gland has something to do with the immune system at birth.

Here is an article I read:

"Exposure to Thorotrast - A radioactive substance called Thorotrast was used as a contrast agent for x-rays until the 1950s.  It was found to increase the risk for bile duct cancer, as well as some types of liver cancer, which is why it is no longer used."

How nice!!  My mother told me that the pediatrician had said I would be dead by 16 and if I did live I should not have children as they would be deformed -- after he found out how bad it was and what he did to us kids.  Well, I am 77 and I have 2 children and they are not deformed.  However, I think a lot of my problems come from that radiation.

As others have asked - isn't there some kind of compensation we can get for this horrible thing they did to us?  I don't know how long I will survive now with the pancreas and bile duct which are the worst cancers going with just about zero life expectancy.  I also had a friend who recently died from thyroid cancer from infant radiation - where is the justice.

RE: Infant Radiation for Enlarged Thymus Gland 1940's & 1950

by Joheff on Sun Sep 27, 2015 05:09 PM

Quote | Reply
Hi Suggi, As I now wait on thyroid nodules status to be revealed; following hyperparathyroidism, ovarian tumor, stomach lining and colon polyps (all revealed in the past four years; I wonder what will come next, and will one of these become the cancer that kills me too. I can commiserate with the injustice of it all. After living life with the goal of optimal health into my senior years-I feel betrayed. My sceptcim of health care providers and modern western medicine makes me want to go to another country for treatments if a cancer emerges. Despite my my mother, my sister and myself all being involved in the health care industry in thre different forms; I may just "know too much" about how decisions are made for a patient. I am simply lamenting here on a reflective Sunday morning. Feeling sad to hear of your prsent course of health and wellness; and sharing with you the sense of outrage at the injustice of what was done to us a mere infants. Hang in there. Know you are not alone. We sisters and brothers in this history of notched medicine are here for you. Sending a sisterly love out to you this day. JoAnn

RE: Infant Radiation for Enlarged Thymus Gland 1940's & 1950

by smoothmtlion on Sun Sep 27, 2015 08:38 PM

Quote | Reply

On Sep 27, 2015 4:46 AM suggi wrote:

Hi - I had radiation for enlarged thymus as an infant and again when I was about 7 to "get rid of scar tissue" as I could not eat.  I only weighed 50 lbs.  I have had breast cancer, thyroid nodules, severe hyperthyroidism which almost killed me that I had the radio active iodine pill for, basal cell carcinoma and NOW precancerous IPMN pancreas cysts and precancerous bile duct cysts - both I am told I am not a candidate for surgery so I just have MRCP MRIs and wait for them to turn to cancer and/or the bile duct one to grow and block the common bile duct.   I also have a lot of drug allergies and the allergist said he believes it has something to do with the radiation I had as the thymus gland has something to do with the immune system at birth.

Here is an article I read:

"Exposure to Thorotrast - A radioactive substance called Thorotrast was used as a contrast agent for x-rays until the 1950s.  It was found to increase the risk for bile duct cancer, as well as some types of liver cancer, which is why it is no longer used."

How nice!!  My mother told me that the pediatrician had said I would be dead by 16 and if I did live I should not have children as they would be deformed -- after he found out how bad it was and what he did to us kids.  Well, I am 77 and I have 2 children and they are not deformed.  However, I think a lot of my problems come from that radiation.

As others have asked - isn't there some kind of compensation we can get for this horrible thing they did to us?  I don't know how long I will survive now with the pancreas and bile duct which are the worst cancers going with just about zero life expectancy.  I also had a friend who recently died from thyroid cancer from infant radiation - where is the justice.

i to have all these issues only i have pancreatic insufficiency, and i have had stage 6 thyroid cancer. lung cancer squamos cell carcinoma he bad one ,they found less the size of half pea in my right upper lung and am now cancer free, still insuficient pancreas, and for sure, the cure and the thing that stops this shit in its tracks are ready for this. CBD oil from pot, no fooling it is made from indica marijuana and is legal in all 50 states, it has been shown time after time to prevent and shrink cancerm, time to think of it as medicine not a party drug, that some use it for same with any substance, but i had stage 6, that is end stage, lots of surgery and really good doctors really good ones and also i had radiation burns on my heart which was transplanted 14 years ago, hell yes 60 surgeries `18 with less than 50/50 chance, in fact at first i has less than 2% of chance of survival for seven months, now, i am back to lifting weights, i walk miles and miles, and do things no other 62 can do, i am like biologically 39 and my heart is 31, have it for 14 years. never felt better but, you need a group, a real endocrinoligist, real good one, hard to find but they are out there, carol wysham is mine in spokane was, not all my surgeries were heart and cancer related, some were from a medical mistake, none from these docs and they just fixed everything inside, even my feet were rebuilt after i got over the ostopenia from calcium supplements, prolia, and lots and lots of unhuman hard work but straight into life if you want to get healthy get the right doctors, specialists for all body systems i did this not reading you a newspaper article, but educate yourself and find out all there is to know, it is true that the feds couldn't turn a blind eye to the effects of cbd oil for so many things, cancer prevention, and cure, and ptsd, all kinds of mental and emotional conditions including epilepsy and many other thins, lots of ways to use it you don't have to smoke it..........but that is what i do, so, flushing out with a ton of water, and with all those systems on the blink you are sure to have mineral retention/loss, blockages of ducts and remember that all those conditions are caused by inflamation, diet, it is true, so lots of water i mean lots and then make sure your sodium and potasium is correct and balanced, but i for one am more than lucky i worked my guts out at one time i power walked 289 miles ever ten days then rested and ate like a pig the 11th day went back at the 12th, for 3 years then weights, so good luck to you, and study and learn all there is, ask your doctor he/she works for you, don't take any that is it for an answer they told me that, and hey, i play hard rock guitar for hours all over the place, dance and jump and raise all kinds of hell, and i can because of how i live my life, no smoking but cbd no alcohol no other drugs and no couch potato off and running the body is made to move, it hurts and is very uncomfortable but if you dont you will go down, that is what your body thinks you are doing getting ready to die, you can pm me if you have questions i am always a giga byte of info, and went to college and am an infectious disease specialist as well so ask those doctors you don't like what you hear get a different bunch of doctors there are some very good ones and there are some not so good just like everhthing else .

RE: Infant Radiation for Enlarged Thymus Gland 1940's & 1950

by robinlynn5 on Mon Sep 28, 2015 11:06 PM

Quote | Reply

I say this having never had a cancer diagnosis, however loved ones have.  If you have cancer, had cancer, concerned about getting it, you owe it to yourself to watch the Truth About Cancer series.  You can find most episodes of it on Youtube, plus other interested videos by the Truth About Cancer people: https://www.youtube.com/user/thetruthaboutcancer

You'll meet many cancer survivors, some including the physicians themselves who did not go the chemo/radiation route, although some did initially with poor results.  You owe it to yourself.  BTW the early recommendation about cannibis oil is a good one.

If the day comes when I receive a cancer diagnosis, I will follow the suggestions in these series.  My brother suffered with side effects of chemo terribly, and finally his immune system was destroyed from it and he died from what, for anyone else, would have been a common & treatable respiratory infection.

225 Posts | Page(s): Prev 12...16 17 18 19 20 ...2223 Next 
Subscribe to this message board discussion

We care about your feedback. Let us know how we can improve your CancerCompass experience.