Infant Radiation for Enlarged Thymus Gland 1940's & 1950

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RE: Infant Radiation for Enlarged Thymus Gland 1940's & 1950

by TomSca on Fri Nov 06, 2015 01:29 AM

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I was irradiated during the first few days of life in March of 1943.  Having read many of the posts here, I am thankful that I have not had a more dramatic impact on my life and pray for healign for each and everyone of you.  I am now 72.  It was done becasue I had an enlarged thymus.  My mother was a medical technologist in `the hospital and knew everything that happened.  She only hsared that it was done to shrink the thymus. Not sure if/how all this is connected, but these are my experiences:

2 mohs procedures on my face

Many allergies 

Asthma

Hypothyroidism

Problem with one vocal cord

Constant and persistent bronchitis over many yearswhich has now gone away.

RE: Infant Radiation for Enlarged Thymus Gland 1940's & 1950

by erbsen on Fri Nov 06, 2015 02:03 AM

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Hi

I had the radiation probably a year or two before you for same tproblem-enlarged Thymus.

I had/have asthma, allergies as a child and have lung problems now in my 70s.  I'm a dentist still practicing.

I personally wouldn't connect most of those problem-mine or yours to the radiation.  If we come down with thyroid cancer that's another story.  That's my main concern and so far so good.  My MD always palpates my throid and recently had an ultrsound of thyroid.  Nothing unusual-few nodules.

That's my thoughts.

Barry

RE: Infant Radiation for Enlarged Thymus Gland 1940's & 1950

by Joheff on Fri Nov 06, 2015 03:17 AM

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Thanks Barry, Have been on Synthroid now for five weeks after another ultra-sound found three more (5 total now) nodules, and following discussion with the endocrinologist doctor. I appreciate her monitoring this and making this recommendation of Synthroid despite normal TSH levels. Her "gestalt" as she put it was to make the thyroid gland shut down and hopefully reduce further module formations or growth. I will be monitored again in a week. So far, I am not feeling any big changes overall. But am so glad to have a supportive doctor following me. Thanks for your comments.

RE: Infant Radiation for Enlarged Thymus Gland 1940's & 1950

by ShelbyR on Wed Jan 06, 2016 03:48 AM

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I also had the radiation treatment before I ever left the hospital as an infant. It was in Youngstown, Ohio at Morth Shore Hospital. I am now undergoing biopsies to determine if I have cancer.

RE: Infant Radiation for Enlarged Thymus Gland 1940's & 1950

by suggi on Wed Jan 06, 2016 04:55 AM

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On Jan 06, 2016 3:48 AM ShelbyR wrote:

I also had the radiation treatment before I ever left the hospital as an infant. It was in Youngstown, Ohio at Morth Shore Hospital. I am now undergoing biopsies to determine if I have cancer.

Wondering what you are having biopsies of for cancer.  I had a mastectomy for breast cancer, have thyroid nodules, had severe hyperthyroidism in 2005 and almost died as the numbers were so far off they thought I was going to have a heart attack and was in the hospital for 4 days before having the radioactive iodine pill which did take care of the problem - except I still have the nodules. 

Allergist/asthma doctor blames all my many drug allergies on infant radiation for enlarged thymus gland which they killed off instead of shrinking it and then a few years later they radiated me again to get rid of the scar tissue caused by the first session.  I also have asthma and have developed lung problems and lost part of my nose to skin cancer.

I have a deformed upper palate and can never wear false teeth if needed unless I have the whole bone structure redone.  I have chronic sinusitis and Crohns/colitis and now they found precancerous pancreatic cysts on the head of my pancreas and a precancerous Type Ic choledochocal cyst in my common bile duct.  Since I am only 108 lbs normally, and 5'4" I am not a candidate for the only life saving surgery which is the Whipple surgery as you lose about 50 lbs and the rate of complications is very high.  So at some point - maybe tomorrow, maybe next year it will turn to cancer and since it is a very rare cancer there is not much research on it and the chemo they have is not that effective so once it becomes cancer it quickly spreads to the liver and becomes stage 4 and your prognosis is weeks to a few months to live in a horrible way with bile backup, constant vomiting and you can not eat.  My oncologist at the time of my breast cancer told me they used unmeasured cobalt back then (late 1930's, early 1940's) and also I found out that Thorotrast(?) was also used and actually causes bile duct and liver cancer many years later so I do not know if that was also used on us besides the unmeasured cobalt.

Good luck to you ShelbyR and let us know what type cancer they are looking for.  Back then no one questioned doctors but today I believe we are more aware and get different opinions, etc. before we go ahead with procedures.

RE: Infant Radiation for Enlarged Thymus Gland 1940's & 1950

by erbsen on Wed Jan 06, 2016 05:18 AM

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When were you born-what year?   I'm 75 now, born 1940.

My MD always palpates my throid on exams for lumps but so far so good.  Throid cancer is certainly a risk.

RE: Infant Radiation for Enlarged Thymus Gland 1940's & 1950

by erbsen on Wed Jan 06, 2016 05:25 AM

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WOW     You've been thru allot.  Briefly, I had/have asthma since childhood, off and on, but never tought was result of radiation, etc.    I'm back with lung problems, onand off for some years butstill very functional.  I mountain bike, lift weights, etc. and ran 20 marathons including Boston   (3).

So it hasn't curtailed my life too much.

RE: Infant Radiation for Enlarged Thymus Gland 1940's & 1950

by suggi on Wed Jan 06, 2016 05:25 AM

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On Jan 06, 2016 5:18 AM erbsen wrote:

When were you born-what year?   I'm 75 now, born 1940.

My MD always palpates my throid on exams for lumps but so far so good.  Throid cancer is certainly a risk.

I was born in 1938 - am 77 now but really would like to live a while longer.

My old endo retired and the new one does not seem as concerned about the nodules since they have not changed in the last couple of years, however........

The tech at the hospital who used to do my scans had thyroid cancer from infant radiation - he died a few years ago.  Don't you just love being a guinea pig?

RE: Infant Radiation for Enlarged Thymus Gland 1940's & 1950

by robinlynn5 on Wed Jan 06, 2016 05:35 AM

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For all of you who have had cancer or do now, I cannot recommend enough:

thetruthaboutcancer.com

https://www.youtube.com/user/ thetruthaboutcancer

RE: Infant Radiation for Enlarged Thymus Gland 1940's & 1950

by erbsen on Wed Jan 06, 2016 05:56 AM

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realquick-Are you in Europe-time difference??

Hey, we've lived this long, keep on fighting, etc.

Who's a pig?   Just kidding!

Barry

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