Infant Radiation for Enlarged Thymus Gland 1940's & 1950

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RE: Infant Radiation for Enlarged Thymus Gland 1940's & 1950

by robinlynn5 on Tue Apr 11, 2017 05:39 AM

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On Apr 11, 2017 3:53 AM singe wrote:

childhood x-ray exposure- in 1947 at the age of 2 months I was given x-ray treatments to shrink my supposed enlarged thymus. My grandmother had lost two children in the early 20th century to respiratory diseases (pneumonia, flu, etc. who knows?) and so when she perceived me to be breathing funny off her and my mom went to some quack who zapped me. I was unaware of this until at age 42 I had a high calcium level on a blood test and my parents told me about the treatments (they did not want me to worry so they never told me about them). After some scary times a radiologist at Cornell Medical in NYC found a benign parathyroid tumor 4 cm long by 1 cm thick under my left clavicle. It was removed and i have been seeing an endocrinologist every 6 months for the past 25 years. So far all is well and he does have me taking thyroid replacement pills as he feels chilling out my thyroid decreases the chances i will delvelope nodules. I do not have all the information you are looking for about how many treatments i was given.

I'm glad for the most part, you haven't experienced any serious problems. My endo told me that at my age now (65), I'm not likely to develop a thyroid tumor but I do routinely have it checked once a yr. Have you experienced obesity during your life?  If yes, were any of your parents or grandparents significantly overweight?

RE: Infant Radiation for Enlarged Thymus Gland 1940's & 1950

by jan121980 on Sat May 13, 2017 10:17 PM

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I was diagnosed with an enlarged thymus when I was born in 1948.  I didn't have any symptoms of a problem but was given three radiation treatments to shrink the thymus. Since 1987 I have had two surgeries on my cervical vertebrae, one for degenerated discs and one for massive bone spurs.  I have a condition called primary hyperparathyroidism which affects the thyroid glands.  This has caused me to lose all of my lower jaw bone and most of my upper jaw bone, which naturally caused me to lose my teeth while in my 40's.  The teeth began loosening one by one and after numerous partials to add teeth, my dentist recommended full dentures. The dentures loosen and have to be refitted as more bone deteriorates.  I have always had very thin, straight hair.  I don't know if this could be related but both of my sisters have wavy hair and so did my parents.  Primary hyperparathyroidism can lead to (obviously) bone spurs, kidney stones, stomach ulcers and bone loss due to improper disbursement of calcium.  I wonder how much of this is related to the radiation treatments.

RE: Infant Radiation for Enlarged Thymus Gland 1940's & 1950

by robinlynn5 on Sun May 14, 2017 05:28 AM

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I'm so sorry you've gone thru all this. I also had 3 treatments in late 1951 as an infant, haven't experienced what you have.

RE: Infant Radiation for Enlarged Thymus Gland 1940's & 1950

by Usedtobe1 on Tue Aug 22, 2017 06:50 AM

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I just saw this message board. I'm a 71 year-old male born in September of 1945 in Springfield, Mo., with an enlarged Thymus gland. I was over a 9 pound baby and evidently would turn blue when trying to eat and was losing weight. My family was about to charter a flight to St Louis for me when they were told of a similar case being resolved with radiation. Bottom line, I was lit up like a Christmas tree for 2-3 radiation treatments before I was 2 weeks old. I grew up without many health issues. I was athletic and very active throughout my life. In April of '16 I was diagnosed with a Klatskin's Tumor (bile duct cancer) which is a form of cholangiocarcinoma. It's a very rare form of cancer and one of the causes is people who received radiation before 1950. I've chosen to believe early radiation was my cancer trigger. I'm not bitter. I look it as I would likely have died as an infant without the radiation. I may have lost a few years on the back end but I have a great wife, 3 kids, and 4 grandsons. I've had a good life I was given 12 months to live 16 months ago. I haven't gotten cheated. I'm lucky enough to live in Houston and get treated at MD Anderson. I'm also stronger today than I was a year ago.

RE: Infant Radiation for Enlarged Thymus Gland 1940's & 1950

by robinlynn5 on Tue Aug 22, 2017 08:00 AM

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On Aug 22, 2017 6:50 AM Usedtobe1 wrote:

I just saw this message board. I'm a 71 year-old male born in September of 1945 in Springfield, Mo., with an enlarged Thymus gland. I was over a 9 pound baby and evidently would turn blue when trying to eat and was losing weight. My family was about to charter a flight to St Louis for me when they were told of a similar case being resolved with radiation. Bottom line, I was lit up like a Christmas tree for 2-3 radiation treatments before I was 2 weeks old. I grew up without many health issues. I was athletic and very active throughout my life. In April of '16 I was diagnosed with a Klatskin's Tumor (bile duct cancer) which is a form of cholangiocarcinoma. It's a very rare form of cancer and one of the causes is people who received radiation before 1950. I've chosen to believe early radiation was my cancer trigger. I'm not bitter. I look it as I would likely have died as an infant without the radiation. I may have lost a few years on the back end but I have a great wife, 3 kids, and 4 grandsons. I've had a good life I was given 12 months to live 16 months ago. I haven't gotten cheated. I'm lucky enough to live in Houston and get treated at MD Anderson. I'm also stronger today than I was a year ago.

Unless you're the type who considers what is traditional,  please don't solely rely on what mainstream doctors tell you.  www.cancertutor.com and https://thetruthaboutcancer.com/.

RE: Infant Radiation for Enlarged Thymus Gland 1940's & 1950

by robinlynn5 on Tue Aug 22, 2017 08:02 AM

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Unless you're the type who considersonlywhat is traditional

RE: Infant Radiation for Enlarged Thymus Gland 1940's & 1950

by suggi on Tue Aug 22, 2017 01:38 PM

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I have posted before - radiated as an infant and again a litttle older because I could not eat.  They radiated me to get rid of the scar tissue from the first round so that I could eat..  Besides the breast cancer, thyroid nodules,precancderous lesions on my pancreas, severe case of hyperthyroidism (had tohave radioactive iodine pill to reverse it), I now have developed severe scoliosis from a degenerating spine and osteoporosis and having trouble swallowing, breathing.  Not a candidate for surgery as the screws would not hold and can not stop the progression.  I am looking at  a feeding tube and a trachea down the road a bit.  Makes it hard when you can't swallow food, water, etc. - aspiration pneumonia.  My left lung is now half the size of the right lung due to the diaphragm pushing up into my lung and also across (S shaped scoliosis).  Also am allergic to most medications as I use them including antibiotics and have only a choice between 2 that are left and they expect me to become allergic to them also.

What they did to us is terrible and I would not wish the consequences on anyhone. A friend of mine passed away a few years back from thyroid cancer due to infant radiation.  And then I got the breast cancer.   We thought at our ages we would be 2 of the lucky ones who escaped the evils of infant radiation but I guess in the end it will get you one way or the other.  I am now 79.

RE: Infant Radiation for Enlarged Thymus Gland 1940's & 1950

by Usedtobe1 on Tue Aug 22, 2017 04:33 PM

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On Aug 22, 2017 8:00 AM robinlynn5 wrote:

On Aug 22, 2017 6:50 AM Usedtobe1 wrote:

I just saw this message board. I'm a 71 year-old male born in September of 1945 in Springfield, Mo., with an enlarged Thymus gland. I was over a 9 pound baby and evidently would turn blue when trying to eat and was losing weight. My family was about to charter a flight to St Louis for me when they were told of a similar case being resolved with radiation. Bottom line, I was lit up like a Christmas tree for 2-3 radiation treatments before I was 2 weeks old. I grew up without many health issues. I was athletic and very active throughout my life. In April of '16 I was diagnosed with a Klatskin's Tumor (bile duct cancer) which is a form of cholangiocarcinoma. It's a very rare form of cancer and one of the causes is people who received radiation before 1950. I've chosen to believe early radiation was my cancer trigger. I'm not bitter. I look it as I would likely have died as an infant without the radiation. I may have lost a few years on the back end but I have a great wife, 3 kids, and 4 grandsons. I've had a good life I was given 12 months to live 16 months ago. I haven't gotten cheated. I'm lucky enough to live in Houston and get treated at MD Anderson. I'm also stronger today than I was a year ago.

Unless you're the type who considers what is traditional,  please don't solely rely on what mainstream doctors tell you.  www.cancertutor.com and https://thetruthaboutcancer.com/. "" target="_blank" rel="nofollow">https://thetruthaboutcancer.com/. " target="_blank" rel="nofollow">https://thetruthaboutcancer.com/.

I'm being aggressive with my treatment of bile duct cancer. I was stage 4 because it spread to my stomach lining. I'm in a clinical trial at MD Anderson and have taken chemo for 14 months now. My tumors have shrunk and I'm doing well. I did have a bout with sepsis and at 6'2" my weight dropped down to 153 but I'm back to 185 now. I carried 200-210 before cancer. I didn't mention that I had prostate cancer back in 2010 which I treated successfully with radiation. I didn't mention it before because I didn't think it had anything to do with pre-1950 radiation. I also developed Afib. I gave up refereeing HS basketball because of it after officiating over 3000 games. Ironically, I had an ablation and no longer have Afib. I didn't think that had anything to do with early radiation either.

RE: Infant Radiation for Enlarged Thymus Gland 1940's & 1950

by deavon on Sat Aug 04, 2018 12:44 AM

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On Jun 10, 2013 8:47 PM KauaiNancy wrote:

Does anyone know of a Registry online for this? If not, it would be very interesting to see how many of us there currently are who are aware of having our thymus radiated as infants. I'm not sure how to go about creating an official Registry but in the interim, let me know if you would be comfortable with joining an online email list where we could post informative info. I just met another doctor who was aware of this study before I brought it up. That's only 2 docs in fifteen years of treatment for 4 different primary cancers, lung disease and heart failure. Finally they understand the devastation of radiation shown on my chest X-rays. While it was a terrible medical misjudgment in the 40's I must credit all the docs who have managed to keep me up and about since. I would be happy to set up a form in a PDF that we could use to enter our basic info as to where we were radiated, when, etc. Once we see how many people respond I would be willing to seek out and talk to the appropriate people regarding a formal registry. (I am on one for Bronchiectasis) If you're interested please email me at nancy100@nancygrantham.com. Aloha, Nancy

Go to "yahoo groups" and search for "thymus gland irradiation" - a group began in 2000, but has only 19 members as of today (Aug 2018).

RE: Infant Radiation for Enlarged Thymus Gland 1940's & 1950

by deavon on Sat Aug 04, 2018 01:44 AM

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Scanning is more radiation. Ask your doctor about ultrasound.

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