Infant Radiation for Enlarged Thymus Gland 1940's & 1950

225 Posts | Page(s): Prev 12 3 4 5 6 ...2223 Next 

RE: Infant Radiation for Enlarged Thymus Gland 1940's & 1950

by annkennon on Fri May 24, 2013 05:59 PM

Quote | Reply

I am so relieved to find this message board. Finally, people who even know about radiation treatments for infants in the '40's.  I received the treatments in Rochester in 1947 as in infant. My mother said she took many bus trips for these treatments that she was told would help my projectile vomiting and breathing difficulties by shrinking the thymus. Thru the years, I've received notices from the U R group to check thyroid etc.  Anytime that I mentioned the treatments to a dr. they didn't feel that it was an issue.  At age 38 I went to a surgeon for my breast lumps and he literally laughed at me, saying I couldn't have breast cancer.  But I did. It was multi-focal, malignant tumors throughout the breast. Later at Emory in Atlanta,  they advised me to have the other breast removed also. The thinking being, if conditions were right in one breast, they would be in the other breast as well.   As they followed me thru the years, I would mention the treatments but no one took it seriously.  I pointed out that my neck was getting larger.  One oncologist said that I could forget the early radiation treatments because if it were going to cause thyroid cancer, I would have had it years ago. But I did. The thyroid was huge.  One side a huge cluster of benign tumors, the other side was one massive benign tumor.  However, inside the cluster of tumors was cancer and by this point had spread to the lymph nodes.That was 14 years ago, I am now 66. I can't help but wonder what  other cancers I am at risk for. I wish there were  an informed doctor who could follow us, advise us, and be aware of our risk.  I rarely mention it because drs. think you're being neurotic. By the way, a friend of mine received the same treatments for acne in the 40's and she also has had thyroid and breast cancer probably due to the exposure.

RE: Infant Radiation for Enlarged Thymus Gland 1940's & 1950

by JUDIANNE on Sat May 25, 2013 01:07 AM

Quote | Reply

I am beginning to believe that the medical community is really pulling the wool over our eyes. Can you imagine the law suits that would result from all of these problems we are experiencing? So I think they are all disputing the fact that these treatments indeed cause tumors and cancers of various body parts from the chest up simply because if the S--T hit the fan on this insurance rates would skyrocket even more than they currently are. There is to much evidence of all these problems we have all experienced as a result of these treatments. I would like a lawyers perspective on this for a possible class action suit. Anyone know one?

 

RE: Infant Radiation for Enlarged Thymus Gland 1940's & 1950

by annkennon on Sat May 25, 2013 07:28 PM

Quote | Reply

I agree.  I recognized that look that drs. get.  It says "Let's don't go there, I don't want to open that can of worms". Litigation phobia.  I just would like the medical community to acknowledge what was done to these infants and offer some kind of help to us.  Some recommended screenings etc. After my 2nd cancer, I asked the oncologist what else I could expect.  He reluctantly said possibly salivary glands.What really worries me is that after both of my cancers I was bombarded with more radiation!  Now, I politely refuse further body scans, etc.  What awaits us down the road?  Leukemia?  lymphoma? 

RE: Infant Radiation for Enlarged Thymus Gland 1940's & 1950

by lindacoleman on Wed May 29, 2013 10:54 PM

Quote | Reply

I was born in 1948 and radiation was used sometime during my infancy to treat a so-called enlarged thymus.  I have no further info about the diagnosis or the extent of treatment.  I was born at home, in southeast Kansas, so I don't even know where the treatment might have been administered, name of doctor, etc.  I just remember my mother telling me when I was a kid that I had the condition as a baby and was treated with radiation.  (She also told me that I had a very serious bout of pneumonia and to never take penicillin because of my reaction to it as a baby.  I don't know if this is in any way connected to the other diagnosis and treatment.)   My parents have been dead since I was a young adult and there are no living family members to ask about any of this.

At age 48 I was diagnosed with stage 2 right breast cancer, had a lumpectomy, chemotherapy and radiation.  There was no family history.  I have had other cancers since then that don't appear to be related to receiving radiation as an infant.

I was very glad to see your message and the reponses from others, since I have wondered for years if radiation during infancy played a role in my breast cancer or other health concerns.  There doesn't appear to be much written info  about side effects or how to discuss this with one's primary care physician.  It is frustrating and I feel like I could better take care of myself if health care professionals were tuned into this issue.   I look forward to whatever info other writers may be able to supply.

RE: Infant Radiation for Enlarged Thymus Gland 1940's & 1950

by jkliman on Thu May 30, 2013 02:26 AM

Quote | Reply
Just curious if you still live in Rochester. I had radiation treatments in the early 50's in Rochester and still live here. I am 2 years out from breast cancer treatment. I do think there should be some sort of class action lawsuit. I have found that most doctors don't know much about thymus radiation and don't treat it as if there is a serious health issue. Have a whole file box of information on the subject. There is a doctor at the U of R who has been involved in the follow up study and is quite knowledgable.

RE: Infant Radiation for Enlarged Thymus Gland 1940's & 1950

by JUDIANNE on Thu May 30, 2013 05:25 AM

Quote | Reply

JK,

IF YOU WILL READ THE POSTS I SAID PRETTY MUCH THE SAME THING ABOUT A WEEK OR TWO AGO. I FEEL THIS IS BEING PUSHED UNDER THE CARPET BECAUSE OF THE POSSIBILITY OF A VERY LARGE LAW SUIT INVOLVING THOSE OF US WHO HAD THOSE UNNECESSARY TREATMENTS IN THE 40'S AND 50'S. I WOULD BE WILLING TO LOOK INTO DOING THIS IF I WOULD GET ENOUGH SUPPORT FROM OTHERS. AND WHO IS THE DOCTOR YOU REFERENCE AT U OF R, SO THAT WE WOULD BE ABLE TO CONTACT HIM IF NEED BE. THANKS!

RE: Infant Radiation for Enlarged Thymus Gland 1940's & 1950

by annkennon on Thu May 30, 2013 04:27 PM

Quote | Reply

No, I don't live in the Rochester area now.  My family was from Fairport and we moved to Georgia in the 50's.  The letters continued to follow me from the U of R.  I believe that they have had an ongoing study of these infants for many years. I think that the reason the information they have garnered has not been shared with the medical community is because of the fear of an immense law suit. The last research survey that I completed for them was in 2007. Here is a name:

Jacob Adams MD PHD

Dept of Community and Preventive Medicine

U of R School of Medicine and Dentistry

PH  585-275-5951

If they would at least share our records about the treatment, we could give this information to our oncologists, endocrinologists, etc. Radiation exposure is just now becoming  regarded as something that we should limit and keep a record of.

RE: Infant Radiation for Enlarged Thymus Gland 1940's & 1950

by JUDIANNE on Thu May 30, 2013 05:01 PM

Quote | Reply

 THANKS SO MUCH! I WILL DO MY BEST IN TRYING TO CONTACT THIS DOCTOR TO SEE WHAT HE HAS TO TELL ME. LET'S HOPE ITS ALL GOOD FOROUR GOOD!

RE: Infant Radiation for Enlarged Thymus Gland 1940's & 1950

by grammacarol on Thu May 30, 2013 05:50 PM

Quote | Reply

I originally posted over a year ago. I had radiation on thymus in the 40s as an infant. My mother kept the paper showing the hospital, doctor's name, date, etc.

I have had breast cancer, lumpectomy, and thyroid removed with goiter and 4 cysts.

I have done research over the years, but have since lost that research.

RE: Infant Radiation for Enlarged Thymus Gland 1940's & 1950

by jkliman on Thu May 30, 2013 06:13 PM

Quote | Reply
I did contact Jacob Adams and he did share a great deal of information. The follow up study is not currently active but it was about a 40 plus year study.
225 Posts | Page(s): Prev 12 3 4 5 6 ...2223 Next 
Subscribe to this message board discussion

Latest Messages

View More

We care about your feedback. Let us know how we can improve your CancerCompass experience.