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Infant Radiation for Enlarged Thymus Gland 1940's & 1950

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RE: Infant Radiation for Enlarged Thymus Gland 1940's & 1950

by jkliman on Mon Jul 08, 2013 12:53 PM

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On May 30, 2013 9:53 PM JUDIANNE wrote:

WOULD IT BE POSSIBLE TO SHARE WITH ALL OF US THE FINDINGS OF HIS STUDY?

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3080025/ This is a link to an article Thyroid Cancer risk 40+ Years after Irradiation for an enlarged Thymus. Jacob Adams is one of the researchers from the U of R. The U of R sponsored the largest follow up study in the world about the effects of irradiation. I believe 2500 pairs of siblings were followed for 40 years. My brother and I were part of the study. I was irradiated and he was not. I did not develop any issues until I was in my late 50's. Will post a link to another study. Joyce

RE: Infant Radiation for Enlarged Thymus Gland 1940's & 1950

by jkliman on Mon Jul 08, 2013 12:58 PM

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On Jul 08, 2013 12:53 PM jkliman wrote:

On May 30, 2013 9:53 PM JUDIANNE wrote:

WOULD IT BE POSSIBLE TO SHARE WITH ALL OF US THE FINDINGS OF HIS STUDY?

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3080025/ "" target="_blank" rel="nofollow">http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3080025/ " target="_blank" rel="nofollow">http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3080025/ This is a link to an article Thyroid Cancer risk 40+ Years after Irradiation for an enlarged Thymus. Jacob Adams is one of the researchers from the U of R. The U of R sponsored the largest follow up study in the world about the effects of irradiation. I believe 2500 pairs of siblings were followed for 40 years. My brother and I were part of the study. I was irradiated and he was not. I did not develop any issues until I was in my late 50's. Will post a link to another study. Joyce
http://www.ncbi.nlm.nih.gov/pubmed/20056622 This is a link to the study Breast Cancer Risk 55+ years after irradiation for an enlarged thymus and its implications for early medical irradiation today.

RE: Infant Radiation for Enlarged Thymus Gland 1940's & 1950

by JUDIANNE on Mon Jul 08, 2013 01:25 PM

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THANK YOU SO MUCH!

RE: Infant Radiation for Enlarged Thymus Gland 1940's & 1950

by Lindanna on Tue Jul 09, 2013 03:44 AM

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I had radiation "treatent" for an enlarged thymus gland in the early 1940s, too, at the hospital where I was born in Monroe, Louisiana.  When I discovered this message board I was stunned to learn there are so many of us, and so few efforts to study the phenomenon.  Does anyone know where and with whom the practice began?   I can understand how it might have started as an innovation at a large research-oriented medical center, but how and why was it "popularized" so quickly that it was being practiced in places like rural Louisiana by the 40s, if not earlier?  Was it promoted at AMA conferences and by state medical societies, or teaching hospitals, or the X-ray equipment industry? And when did it start to be questioned and to fall out of favor?

RE: Infant Radiation for Enlarged Thymus Gland 1940's & 1950

by jkliman on Tue Jul 09, 2013 12:22 PM

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my understanding of the treatment and how it gained popularity was that it was believed that an enlarged thymus was the cause of crib death. Joyce

RE: Infant Radiation for Enlarged Thymus Gland 1940's & 1950

by woodkc1 on Sun Aug 04, 2013 12:36 AM

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Thanks so much for sharing. I have had minimal issues compared to so many who have posted - thyroid and schwannomas. I met another woman in Atlanta this week who had multiple issues all on one side - thyroid, heart, colon. ovary and bladder. I had 6 treatments in 1948 in Pembroke, Ontario, Canada.

RE: Infant Radiation for Enlarged Thymus Gland 1940's & 1950

by janmarieob on Wed Aug 14, 2013 03:08 PM

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Dear Brenda,

I am now 62 years of age.  I received rounds of radiation for an enlarged thymus gland in 1952 at a Washington DC Hospital.  I was only recently told.  

I have had a variety of health problems throughout my life.  I was diagnosed with Rheumatoid arthritis at abt age 21 but the problems started when I was a young teen.  I am also very infection prone.  unfortunately I had to go on disability a few years ago.  I am certain these problems with my immune system are related to the radiation therapy underwent as an infant.  I hope this info helps you. I am interested in what you learn from others.  thanks.  jan lynn

RE: Infant Radiation for Enlarged Thymus Gland 1940's & 1950

by GaDancer on Wed Sep 11, 2013 04:26 PM

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I turned 68 last week, and both my older sister and I had radiation treatments as infants.  My sister was born in 1941 and received more treatments than I did; however, my mother did not remember the number each of us had.  This was done supposedly for a "chest rattle" from an enlarged thymus.  My mother called us after hearing about the cancers to the thyroid to tell us this happened to us, about 1970's, and we went to Beth Isreal Hospital in Newark for imaging.  We both had nodules.  

Interesting how this treatment is suddenly no longer needed for infants.

My sister died at 57 after a lifetime of Juvenile Diabetes from age 12 and Hashimoto's Thyroiditis with nodules and later had Lupus.  Her death was from respiratory failure.

I had Hashimoto's since my thirties, my son died at age 2 from Lymphosarcoma, and I have Multiple Sclerosis, psoriasis and occular rosacea and non-stop sinus infections since 2005.  I have had sinus surgery, 2 PICC lines with IV antibiotics, and now have kidney failure due to the truckload of antibiotics that haven't helped.  I have been diagnosed with Common Variable Immunodeficiency and get IVIG infusions once a month.

I have been accepted in a study at NIH for thyroid disease and fungal infections.  In addition to tons of fungal infections in my sinuses, I have also had Candida biopsied from my esophagus.

I have informed my doctors multiple times about the radiation, but I wonder if they really believe it was actually done because they are too young to know about this treatment.  The radiation released from those old machines was massive.  I also remember the x-ray machine at the shoe store, it was always on and we played in it when our sisters were being fitted for shoes.  

RE: Infant Radiation for Enlarged Thymus Gland 1940's & 1950

by erbsen on Fri Jan 10, 2014 06:05 AM

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Hello:

    My name is Barry.  was born 1940 in Los Angeles.  What I know about my enlarged phymus was told to me by my mother many years ago.   She passed away over 10 years ago at age 88.

   She had told me long ago that when I was an enfant I had an enlarged thymus which she discovered when I had been crying in my crib and stopped suddenly.  She returned to check me and I was turning blue from not breathing. She supposedly picked me up and whatever she did I started breathing again.

I supposedly had radiation to shrink the phymus and it was no longer a problem that I've known.

  I had alway thought it was very near to the throid so I;ve always thought I might be a candidate for thyroid cancer.   So far so good.  I'm 73 years old.  My physicians have alway palpated the thyroid to feel for lumps.  Also couple years ago had a scan of thyroid and nothing unusual was found-some nodules but not significant I was told.

That's where it stands now.

Barry

RE: Infant Radiation for Enlarged Thymus Gland 1940's & 1950

by dsmith254 on Wed Mar 12, 2014 11:21 PM

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My name is David and my thymus was radiated at Hillcrest Hospital in Waco, TX in 1948. I was told they felt I was chocking, near death, and was given last rights. I was concerned in the mid-70's and was x-rayed to see if there was any problem. According to the radiologist, none detected. In 2005 I was diagnosed with Stage 1B lung cancer (adenocarcinoma) and had a lobectomy of the right upper lobe. No problems since. I remain concerned / worried. I am still under the care of an oncologist and have annual checkups.     

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