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Infant Radiation for Enlarged Thymus Gland 1940's & 1950

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RE: Infant Radiation for Enlarged Thymus Gland 1940's & 1950

by paulazplace on Fri Mar 21, 2014 06:59 PM

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My radiation treatments were delivered when I was less than one week old (1945).  At the age of 13 I discovered a lump in my neck which was misdiagnosed and treated as goiter.  By the time I was 19 the mass had wrapped itself around my windpipe causing major breathing problems and warranting surgery.  I am now 69 and dealing with my second bout of basal cell on my face.  Years ago I read an article stating that radiation of the thymus in infants destroys the immune system.  In addition to my life being plagued with maladies one of my grandsons was diagnosed at 5 months with CGD (Chronic Granulomatos Disease).  Basically, he has no immune system.  I have wondered; has this been visited on him through me (his mother is my daughter)?  One of my 7 children was born with a "rattle" or "weaze" which problem was alleviated using an air purifier. 

RE: Infant Radiation for Enlarged Thymus Gland 1940's & 1950

by erbsen on Fri Mar 21, 2014 07:34 PM

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Just a short reply to your narrative.  I'm 73-my post must be there somewhere.  Had the thymus radiation as an infant.

I always have my physician palpate thyroid when I'm in.  Just had three squamous cell lesions removed but are unralated to thymus-sun damage 50 years ago.  Have an excellent immune system I believe.Haven 't had flu in many years and do not get the flu shot-many years.  I'm a dentist so not like I'm not exposed to people although always wear a mask and gloves.

    I'm very healthy and take no drugs.  Good healthy food, some home grown, and much exercise.  Lasst thought-one of my favorite expressions   Pick your parents carefully!

Barry E

RE: Infant Radiation for Enlarged Thymus Gland 1940's & 1950

by grammacarol on Sat Mar 22, 2014 04:04 AM

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I have an update. In June 2012, my thyroid was removed. I was diagnosed with a goiter wrapped around and 4 cysts that had grown. My throat was damaged in surgery and was 3 months before I could talk above whisper. I take replacement thyroid. I believe the irradiation is a factor in all our problems.

RE: Infant Radiation for Enlarged Thymus Gland 1940's & 1950

by mafish on Mon Mar 31, 2014 01:14 AM

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Brenda,I was born in Beaver Falls,Pa in 1951.They radiated all newborns thymus glands routinely  after birth.  I have 3 Older siblings and 5 younger. NONE of us have ever had any thyroid issues or cancers of any kind.   I have three daughters,and my middle one has Hashimoto's Disease  of the thyroid.My siblings are ages 70 down to51. I have mentioned this to physician's over the years,and never got any info.   The young one show are fascinated by this,but have no info on

RE: Infant Radiation for Enlarged Thymus Gland 1940's & 1950

by Jacquie-NJ on Tue Apr 08, 2014 11:31 PM

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Brenda, in case you are still gathering information re infant radiation for enlarged thymus gland, my sister's story is as follows:

My sister was diagnosed with an enlarged thymus as a newborn in 1947, in Riverside NJ.  My parents were advised by a doctor at the hospital of the "new" treatment for the condition that would all but eliminate the possibility of my sister strangling as a result of the enlargement.  She received a number of radiation treatments in the first month or two of her life.  The initial radiation was done while my mother and sister were both still patients of the hospital after delivery.  Additional treatments were done as an outpatient.  I'm sorry, I don't know exactly how many treatments she received or how frequently.

In 1961, at the age of 14, my sister died of a malignant brain tumor, after several years of illness related to the cancer.

RE: Infant Radiation for Enlarged Thymus Gland 1940's & 1950

by lvarhola on Wed Apr 16, 2014 08:07 PM

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To all of us who have been exposed to the radiation treatments for the thymus gland. I have written before about this. It sickens me to think of how many of us who have had so many health issues from the radiation treatmenrs. It seems no one in the medical community cares  what they did to us. We were just babies!! As I have written before I have had thyroid cancer in 1981 and right breast cancer in 2003. I was told by my oncologist that it was due to the radiation treatment. No one else in my family has had all the medical problems I have been dealing with. I am now 64 years. I have great faith in God that is why my am still here, fighting every new issue that comes along. I have my first grandchild who I want to see grow up. To like knowing people are still comments on this article.  Thanks Linda V.

RE: Infant Radiation for Enlarged Thymus Gland 1940's & 1950

by dsmith254 on Wed Apr 16, 2014 10:02 PM

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I posted my thymus history earlier, but after reading Linda's post, other things seems to click. I'm male and age 65. I had lung cancer in the right upper lobe, skin cancer on my right temple, Shingles in my right shoulder at age 26, and asthma at an early age. I have tinnitus in my right ear and had chronic allergies all my life. I am just waiting for the next thing to crop up to my upper right chest and head area. I'm sure the doctors in the 40's would say they were just doing the best they knew how and were keeping us alive. I just want to know if all these things I have dealt with are related. David

RE: Infant Radiation for Enlarged Thymus Gland 1940's & 1950

by MichaeleLux on Mon Apr 21, 2014 07:20 AM

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On Feb 03, 2011 9:23 PM BAguirre wrote:

Hello, my name is Brenda and Im researching Infant Radiation for Enlarged Thymus Gland in 1940's & 1950's. I have some questions for anybody who was radiated during these times for enlarged thymus gland.

What were your symptoms?

Were your parents given a different diagnosis?

How did your parents discover the actual diagnosis?

How many radiation treatments were given? Every how often?

 

My name is Michaele. Early one morning, when I was an infant in 1945, my mother got out of her bed and looked into my crib and discovered to her horror that I was not breathing. She picked me up and started running around the house screaming because she thought I was dead. I finally started to breathe, but the family rushed me to the hospital in Birmingham, Alabama where I was diagnosed as having an enlarged thymus. I was given several treatments of deep x-rays until they were able to sufficiently shrink the thymus. Well, today, I am waiting for the results of a "thin needle biopsy" that was performed on my thyroid last week to see if the nodules that were detected on my thyroid are malignant or not. These nodules/lesions were actually discovered accidentally because I had gone to an orthopedist because of my chronic back pains, and she ordered an MRI of my entire spine. When she looked at it, she said that she was glad that it included part of my neck area because she noticed that I had some spots on my thyroid that needed looking into, She recommended I see an ear, nose, and throat doctor right away. I saw him, and he ordered an ultrasound of my thyroid and a nuclear test whereby I had to swallow a radioactive iodine tablet and wait six hours and then have a scan made. I was told that if the nodules were able to absorb the radioactive iodine, they would be considered "hot," and that would be normal. If, however, the nodules did not absorb the iodine, they would be considered "cold," and that would mean they could be malignant. They were "cold." I then had the thin needle biopsy made on my thyroid, and now I am waiting on the results, which I hope are not that they are cancerous. If they are, I guess I will have to have some or all of my thyroid removed. I am so afraid that if it is cancerous, has it spread? Many years ago, when I was about 20, I had a scan of sorts because one of my doctors told me that since I had the deep x-ray treatments as an infant, I was a high risk for thyroid cancer. The results of that test was okay, but now it is a different story.It really upsets me when I read about all the "baby boomers" like me, who have had these radiation treatments on their enlarged thymuses as infants and are now facing thyroid cancer. I'm sure the doctors had no idea of the damage they were doing and the dire futures these infants would face. I wonder what they do now for enlarged thymus glands in babies.

RE: Infant Radiation for Enlarged Thymus Gland 1940's & 1950

by MichaeleLux on Wed Apr 23, 2014 08:21 AM

Quote | Reply

On Apr 21, 2014 7:20 AM MichaeleLux wrote:

On Feb 03, 2011 9:23 PM BAguirre wrote:

Hello, my name is Brenda and Im researching Infant Radiation for Enlarged Thymus Gland in 1940's & 1950's. I have some questions for anybody who was radiated during these times for enlarged thymus gland.

What were your symptoms?

Were your parents given a different diagnosis?

How did your parents discover the actual diagnosis?

How many radiation treatments were given? Every how often?

 

My name is Michaele. Early one morning, when I was an infant in 1945, my mother got out of her bed and looked into my crib and discovered to her horror that I was not breathing. She picked me up and started running around the house screaming because she thought I was dead. I finally started to breathe, but the family rushed me to the hospital in Birmingham, Alabama where I was diagnosed as having an enlarged thymus. I was given several treatments of deep x-rays until they were able to sufficiently shrink the thymus. Well, today, I am waiting for the results of a "thin needle biopsy" that was performed on my thyroid last week to see if the nodules that were detected on my thyroid are malignant or not. These nodules/lesions were actually discovered accidentally because I had gone to an orthopedist because of my chronic back pains, and she ordered an MRI of my entire spine. When she looked at it, she said that she was glad that it included part of my neck area because she noticed that I had some spots on my thyroid that needed looking into, She recommended I see an ear, nose, and throat doctor right away. I saw him, and he ordered an ultrasound of my thyroid and a nuclear test whereby I had to swallow a radioactive iodine tablet and wait six hours and then have a scan made. I was told that if the nodules were able to absorb the radioactive iodine, they would be considered "hot," and that would be normal. If, however, the nodules did not absorb the iodine, they would be considered "cold," and that would mean they could be malignant. They were "cold." I then had the thin needle biopsy made on my thyroid, and now I am waiting on the results, which I hope are not that they are cancerous. If they are, I guess I will have to have some or all of my thyroid removed. I am so afraid that if it is cancerous, has it spread? Many years ago, when I was about 20, I had a scan of sorts because one of my doctors told me that since I had the deep x-ray treatments as an infant, I was a high risk for thyroid cancer. The results of that test was okay, but now it is a different story.It "" target="_blank" rel="nofollow">http://story.It " target="_blank" rel="nofollow">story.It really upsets me when I read about all the "baby boomers" like me, who have had these radiation treatments on their enlarged thymuses as infants and are now facing thyroid cancer. I'm sure the doctors had no idea of the damage they were doing and the dire futures these infants would face. I wonder what they do now for enlarged thymus glands in babies.

Hi, Brenda. I just wrote a message a couple of days ago, but after reading some other posts and especially the post from David, I would like to add some comments. It appears to me that those of us who have had the deep x-ray treatments on our thymus glands have not only had issues with our thyroids, but also had bad health issues throughout our lives. I remember my mother said that after I received the treatments as an infant in 1945, she asked the doctor if I could get some side effects from the treatments, and she was told "perhaps during puberty." Well, starting at age 13, I had an extremely bad case of cystic acne that lasted until I was well into my twenties. It left deep scars, and I have had two dermabrasions in a dermatologist's office and several chemical peels to make them appear smoother. I also had issues with excess hair on my face at this time and had extremely heavy periods. I also suffered many allergies during my youth and teenage years, and I was generally sickly as a child. I missed much school because of my health issues. I just wanted to say that besides the fact that now I am awaiting the results of the biopsy on my thyroid that I received last week, due to the fact that an MRI and ultrasound revealed several lesions/nodules on my thyroid that turned out to have a "high possibility of being malignant," I also have had other issues with my health all during my young life. Perhaps the acne and other problems like allergies were connected to the x-ray treatments I had as an infant.

RE: Infant Radiation for Enlarged Thymus Gland 1940's & 1950

by MichaeleLux on Wed Apr 23, 2014 08:21 AM

Quote | Reply

On Apr 21, 2014 7:20 AM MichaeleLux wrote:

On Feb 03, 2011 9:23 PM BAguirre wrote:

Hello, my name is Brenda and Im researching Infant Radiation for Enlarged Thymus Gland in 1940's & 1950's. I have some questions for anybody who was radiated during these times for enlarged thymus gland.

What were your symptoms?

Were your parents given a different diagnosis?

How did your parents discover the actual diagnosis?

How many radiation treatments were given? Every how often?

 

My name is Michaele. Early one morning, when I was an infant in 1945, my mother got out of her bed and looked into my crib and discovered to her horror that I was not breathing. She picked me up and started running around the house screaming because she thought I was dead. I finally started to breathe, but the family rushed me to the hospital in Birmingham, Alabama where I was diagnosed as having an enlarged thymus. I was given several treatments of deep x-rays until they were able to sufficiently shrink the thymus. Well, today, I am waiting for the results of a "thin needle biopsy" that was performed on my thyroid last week to see if the nodules that were detected on my thyroid are malignant or not. These nodules/lesions were actually discovered accidentally because I had gone to an orthopedist because of my chronic back pains, and she ordered an MRI of my entire spine. When she looked at it, she said that she was glad that it included part of my neck area because she noticed that I had some spots on my thyroid that needed looking into, She recommended I see an ear, nose, and throat doctor right away. I saw him, and he ordered an ultrasound of my thyroid and a nuclear test whereby I had to swallow a radioactive iodine tablet and wait six hours and then have a scan made. I was told that if the nodules were able to absorb the radioactive iodine, they would be considered "hot," and that would be normal. If, however, the nodules did not absorb the iodine, they would be considered "cold," and that would mean they could be malignant. They were "cold." I then had the thin needle biopsy made on my thyroid, and now I am waiting on the results, which I hope are not that they are cancerous. If they are, I guess I will have to have some or all of my thyroid removed. I am so afraid that if it is cancerous, has it spread? Many years ago, when I was about 20, I had a scan of sorts because one of my doctors told me that since I had the deep x-ray treatments as an infant, I was a high risk for thyroid cancer. The results of that test was okay, but now it is a different story.It "" target="_blank" rel="nofollow">http://story.It " target="_blank" rel="nofollow">story.It really upsets me when I read about all the "baby boomers" like me, who have had these radiation treatments on their enlarged thymuses as infants and are now facing thyroid cancer. I'm sure the doctors had no idea of the damage they were doing and the dire futures these infants would face. I wonder what they do now for enlarged thymus glands in babies.

Hi, Brenda. I just wrote a message a couple of days ago, but after reading some other posts and especially the post from David, I would like to add some comments. It appears to me that those of us who have had the deep x-ray treatments on our thymus glands have not only had issues with our thyroids, but also had bad health issues throughout our lives. I remember my mother said that after I received the treatments as an infant in 1945, she asked the doctor if I could get some side effects from the treatments, and she was told "perhaps during puberty." Well, starting at age 13, I had an extremely bad case of cystic acne that lasted until I was well into my twenties. It left deep scars, and I have had two dermabrasions in a dermatologist's office and several chemical peels to make them appear smoother. I also had issues with excess hair on my face at this time and had extremely heavy periods. I also suffered many allergies during my youth and teenage years, and I was generally sickly as a child. I missed much school because of my health issues. I just wanted to say that besides the fact that now I am awaiting the results of the biopsy on my thyroid that I received last week, due to the fact that an MRI and ultrasound revealed several lesions/nodules on my thyroid that turned out to have a "high possibility of being malignant," I also have had other issues with my health all during my young life. Perhaps the acne and other problems like allergies were connected to the x-ray treatments I had as an infant.
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