Squamas Cell Carcinoma and Agent Orange

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RE: Squamas Cell Carcinoma and Agent Orange

by Slowlane on Sat Aug 06, 2016 02:29 PM

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I am getting very close to 900 days out on a Notice of Disagreement.  In order to get an appeal hearing you need a Form 9 and a statement of case just to get into the BVA que.  Still waiting on those 2 items.

I am never going to stop this appeal and have plans to keep it going if I die.

I am also voting for Trump.  He probably wont help but, I know Hildabeast wont.

GET A LAWYER.....Period.

Slowlane

RE: Squamas Cell Carcinoma and Agent Orange

by SandyDurst on Wed Aug 10, 2016 10:19 AM

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Slowlane I agree with you , I also am going to fight this because i work for the VA and see the waste everyday and it seems like the men and women who should get thier benifits are not getting them but every drug addict and drunk out there gets it immediately, this is so wrong on so many levels..If they take 5 years that is 5 years of back pay they will have to pay me but i am in for the long haul. Best wishes to you.

RE: Squamas Cell Carcinoma and Agent Orange

by Roxmcander on Mon Sep 11, 2017 11:23 PM

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On May 03, 2014 9:08 AM smfhvac wrote:

On May 01, 2012 10:10 PM jacqlyn46 wrote:

Phil,

Thank you for writing.  You will remain in Les and my thoughts and prayers.  PLEASE keep in touch so we know how things are going with you and yours.

GOD is soooo good even when we don't understand the whys in life.

Hugs.

Jacki

Phil,

I know this late but wanted to reply.  I too am a survivor of SCC of the base of tongue and tonsil on the left side.  When diagnosed in March 07, found it was stage 4 and metastasized to 1 lympnode, T4N1.  Served I-Corps 68-70 USMC.  Treated with 35 high doses radiation, 8 treatment Chemotherapy, 55 hyperbaric dives.  Chemotherapy type was for Colon Cancer.  Check advanced study conducted by Moffitt Cancer Center,Tampa.

VA has denied my claim.  I am currently working on finding info to support appeal.  Any and all assistance will be greatly appreciated.  One more note, recently spoke with primary doctor at VA Clinic and he found reference to SCC and Agent Orange on VA's "UpToDate" medical reference site.  I had him print a letter with copy of paragraph on VV letterhead.  I will gladly scan and email to any and all that can use.

God Bless,

Semper Fi,

Bill

Hello Phil,

Reading all of these posts in total dismay.  My husband is a VN Veteran ('68-'69) and received his denial today for Stage 4 Metastatic Squamous Cell Carcinoma Head & Neck. From throat to lymph glands in neck to bones (pelvis, rib & vertebra). Before denial he was asked to submit articles or other proof from his oncologist that SCC was caused by AO but he was no help at all.  How can I get a copy of the letter you recived per your post from May 3, 2014?  It's my understanding I can't leave me email address on this post and we are desperate.  Thank you so much and although 3 years have past since your post, I hope you are ding well.

God Bless You & Yours,

Roxann

RE: Squamas Cell Carcinoma and Agent Orange

by dearlee on Fri Jan 25, 2019 10:03 PM

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On May 18, 2016 10:29 PM Slowlane wrote:

The VA will deny any cancer not on the presumptive list and deny most any cancer on the list.

You need to file a claim anyway.  Heck, even the VA dont know what they are going to do.

They have DQB's which are a kind of a form that you get your doc to fill out.  Try and connect Agent Orange in any way that you can.  It may end up like a court trial down the road.

Good luck and welcome home.  Slowlane

In March, 2017, I lost my dear sweet husband to oropharyngeal squamous cell carcinoma at the back of his tongue. Three months before his death I filed a claim with the VA, never expecting the claim to go through, because I knew his cancer was not on the list.To my surprise, shortly after Lee's death I received notification that the claim was accepted and that I would be getting Widow's Pension. 

I believe that the claim was accepted because of some research done by Lee's wonderful chemo and radiation doctors at Zablocki VA Hospital in Milwaukee. They sent a letter that included this:

Sang- Wook Yi and Heechoul Ohrr found an increased risk for HPV-associated squamous cell carcinoma in veterans with high exposure to Agent Orange (Cancer 2014;120(23):3699-706).

Given these facts, in our oinion, it is more likely than not that the patient's oropharyngeal squamous cell carcinoma is linked to Agent Orange. 

It is my hope that this information can help those of you who have struggled with this horrible cancer, and it makes me so sad to know that your claims have been denied over and over again.

Please know that you and your care-givers are in my prayers.  May God bless you.

RE: Squamous Cell Carcinoma of Tonsil

by Gary1950 on Wed Mar 20, 2019 12:05 AM

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On Aug 09, 2006 12:00 AM Carla_Rae wrote:

Bill: Oh my gosh. Just read your message on message board. YES YES YES, Phil has the exact same thing. He was in Nam in 68 and 69. He just had the same surgery one year ago. Did you ever have to use the black acid to remove growths on your arms during Nam? Phil said these growths looked like little hands/fingers coming out of his skin. We know for sure now that was from agent orange. But back to the tonsil... The VA just denied him for benefits. Believe it or not but squamous cell is not one that they compensate for. What the heck?????? We have put in an appeal. What is helping us the most is the local VA chapter where we live. There is so much I want to ask you. My email is --- Message edited by CancerCompass staff: for personal protection, email address removed. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html ---- If you wish to communicate directly, please do so. If you don't want to, I will keep writing on the message board. Take care, and congrats on your 4 year Great Check up!!!! Carla.

I was a helicopter door gunner in Vietnam '69-'70 stationed at Bien Hoa. I had squamous cell carcinome of the left tonsil and left lymph node. I couldn't have surgery because the cancer on the lumph node was attached to the carotid atrery to the brain. So, had 9 weeks of chemo, 4 days a week, followed by radiation, 7 weeks, 3 days a week. THAT damn near killed twice. Now, VA is saying that squamous cell carcinoma ONLY applies to skin cancers. What the hell is the difference if the squamous cell carcinoma is on the skin or more more internal? So, I'm in the process of getting an appointment with my oncologist to get a more definitive answer. 

RE: Squamous Cell Carcinoma of Tonsil

by PopPop on Sat Mar 30, 2019 01:05 AM

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Gary 1950,

I did a quick search on the VA Board of Appeals site and found this Appeal from a case settled in Feb. 2018. You can search for some more, but this case relates to Tonsil cancer and Squamous Cell Carcinoma. Service Connection was Granted. 

Like most cases that win, Expert Opinions are very important. 

https://www.va.gov/vetapp18/files2/1806479.txt

Semper Fi

RE: Squamous Cell Carcinoma of Tonsil

by HarleyGrandma80 on Sat May 18, 2019 05:07 AM

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On Mar 30, 2019 1:05 AM PopPop wrote:

Gary 1950,

I did a quick search on the VA Board of Appeals site and found this Appeal from a case settled in Feb. 2018. You can search for some more, but this case relates to Tonsil cancer and Squamous Cell Carcinoma. Service Connection was Granted. 

Like most cases that win, Expert Opinions are very important. 

https://www.va.gov/vetapp18/files2/1806479.txt "" target="_blank" rel="nofollow">https://www.va.gov/vetapp18/files2/1806479.txt " target="_blank" rel="nofollow">https://www.va.gov/vetapp18/files2/1806479.txt

Semper Fi

Thank you so much for this information!  I am dealing with the VA trying to get survivor benefits for my late husband who passed from Squamous Cell Carcinoma Oropharynx. He served on an LST which is known to have been full of asbestos, and he served 68 - 70 in Vietnam being exposed to agent orange.  We have been denied 3 times already.  I have my first hearing on Monday with VA in Minnesota and am looking for any and all cases and info that I can take with me that were won.  

I also have a letter from my husband's doctor stating that he believes that his cancer could have been caused by either agent orange or the asbestos, but I was still denied.  

Thank you all again for any and all help you can give.

HarleyGrandma808 

RE: Squamous Cell Carcinoma of Tonsil

by dearlee on Sat May 18, 2019 04:40 PM

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HarleyGrandma, I wrote about my husband back in Jan., 2019; you might want to go back and read it.

I hope you can win at the hearing. Although my husband's cancer was at the back of his tongue, we were also told that it was not on the "list," and I was probably wasting my time. However, Lee's doctors at the VA hospital were able to find ONE case that had been accepted and approved. They were able to state that case and said Lee's cancer may or may not have been related to Agent Orange.  When that occurs the ruling goes in favor of the vet. I also believe that the fact that he had died because the cancer had spread throughout his body, was a factor in my husband's case.  

I am praying that you can win this case. It was horrible watching my husband die. If it had not been for Agent Orange, I really believe we could have had several more years together. The hole in my heart will never go away.

I am so sorry for your loss and hope you can find some way to go on with your life, knowing that you tried your best to get what your husband and you so deserve.

RE: Squamas Cell Carcinoma and Agent Orange

by VNVet72 on Sun Jul 07, 2019 07:03 PM

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On Jun 23, 2012 9:53 PM jacqlyn46 wrote:

Hi all.  Well, this pit bull has found the Pot Of Gold at the end of the Rainbow...I hope.  We just had our VFW and Ladies Auxiliary State Convention here in Montana AND I met the gentleman Mr. Foster who the folks at Senator Testers office were going to hook me up with.  He is with the VA...and when I was done talking to him about Les and all of you....I was more frustrated and beaten than I've felt in a long time.  I felt like the potatoe in the old kids game Hot Potatoe.  No one wants to touch this subject.  Well, guess what....I prayed and prayed some more.....and really just talked to GOD about it too...saying if HE meant for me to give up my fight for all of you, then let me know, or show me where to go that will do some good.

When I got home...I was extra 'cited...can't explain it, but there were key words running thru my aging head that didn't come from people at the same time, but they seemed connected and when I typed them in to my trusty computer....wala...I found exactly where WE all need to go, but IF it's okay with you, I'd love to lead the charge.

His name is Colonel Craig David Shriver, MD.  He is the head of research for THE VA in Cancers.  I have begun a letter to him.   As I told everyone who would stand still and listen to me last week....I don't care how many first names such as Breast, Prostate, Pancreatic, Lung, Squamous Cell Carcinoma, etc. etc., it has, they all have just one last name and it is CANCER.  AND...if the VA is going to recognize of of the Cancer Family Members connected to Agent Orange, then they'd better recognize them all, or NONE at all.   I'm taking that message to Colonel Shriver for you all and Les if you will let me.

Thank you for your time. 

Love and Hugs always to you and yours.

Your buddy in Montana.

Jacki

Dear jacglyn46, Ma’am... I have been searching for a very long time now for any information or reference to this dreadful decease, SCC-Cancer...at times I had wanted to just give up due to reading the sad state of affairs regarding the VA and their constant road blocks in ignoring and acknowledging this Cancer for VA assistance... I am in the hope I have finally found something that will give Us Veterans badly needed hope... I am a Vietnam Veteran who served 3 long tours back to back from 1969-1972...I flew C-123K aircraft and AC-119K Gunships with SpecOps .. I am not complaining, I am proud to have Served...I had considered myself very lucky to have come out of the war mostly in one piece, physically but not mentally or emotionally...but I managed to make through all these yrs., until about two yrs ago when I was diagnosed with Squamous Cell Carcinoma of the lower jaw... since was operated on, they removed my perfectly healthy teeth along with a portion of the jaw, and all neck lymph nodes, a bone on my lower leg was used along with a skin graft for reconstruction, then got put through 36 sessions of Radiation, had a peg tube installed in my stomach which was only recently removed...then was operated again to separate the new gum from the inner lip...All was well after the first op, but not the second, now I am being returned to the hospital for further treatments and who knows what else!... ALL this I am throughly convinced is due to me being exposed to Agent Orange... I initially tried to get help and assistance from a VA certified rep from the VFW, but he did not seem to care and thought I was, as was put ‘a burden’...simply because I wanted answers and would not give up... who can help Us VN Veterans?... so I am humbly asking for some input, and suggestions from anyone ‘out there’ with experience with this... anything is very much appreciated...Thank You so very much and all the Best to All.

RE: Squamas Cell Carcinoma and Agent Orange

by PopPop on Tue Jul 09, 2019 01:19 AM

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VNVet72,

First, "Welcome Home". To make a long story short as far as who can help us Vietnam Veterans, a lot of the leg work falls on us once again. Yes, there are Veteran Service Officers (VSO) out there and like anything, there are those that put their heart and soul into helping while some go thru the motions. We have to find the good ones. We also have to provide "Expert Opinions" from our Doctors which in itself can be a task. 

I just tried searching the VA.gov site on the Board of Appeals section for you, but the site is not working at the moment. You can try searching another time for cases that were "Granted" and see what was done to win the claim. I was unable to pull up any cases tonight so I am not able to help at the moment with that part.

Another avenue you may try is another Veterans Organization such as the Vietnam Veterans of America, DAV, American Legion. They might have a knowledgeable (VSO). Also, most Federal Congressmen/women have a (VSO) in their local office to help with Veterans issues. You can try there as well. 

It took a lot of leg work on my part, the support and help of my wife and roughly 6 years before my claim was finally Granted. 

Semper Fi

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