What's your Oligodendroglioma story?

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RE: What's your Oligodendroglioma story? Work!

by KerryAJ on Mon Sep 28, 2015 03:02 PM

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Oh my, I could never have returned to work after 30 days after surgery!  I was working full time days in a very physical job for 4 years, but that was years after my surgery  I quit; and am now working half days - 23.5 hours per week.  I am quite tired at the end of the day even though I only worked 4 hours.  Saturdays are hard on me everyone works a full day 10 - 5:30, so I hear you Canuque on being tired, keep in mind there is such a thing as Chemo brain, my friend had breast cancer and she is the same.  I am on Dilantin 350 mg per day with one day 300 mg.  I had to go up to the 350 just recently my levels were down, so they are going up now thankfully.  I go for another blood test in Oct or Nov to see if it is still working.

RE: What's your Oligodendroglioma story?

by TaraMac on Mon Sep 28, 2015 09:47 PM

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Hi Kerry,

That's an awesome story, thanks!! I was 29 when diagnosed, I'm 33 now, and I've got big hopes for the future. Ive been through 2 surgeries (2 separate tumors) radio & chemo, and one feeling super positive :-) 

RE: What's your Oligodendroglioma story?

by cazwinn on Wed Sep 30, 2015 10:16 AM

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Hi there my name is Wini, i live in Wellington Nz and had surgery last year sep 6.  Found out i had a grade II oligodendroglioma.  Had Mri scan a week after surgery then another in March.  It showed tumor had spread across my communication area to the right side.  Doctor said i need radiotherapy.  I am going to give the ketogenic diet a go, its an alternative method of starving cancer cells of sugar, instead of doing radiotherapy.  My Dr said to give it a go coz shes heard the ketogenic diet particularly improves brain function however the Dr said i can have a scan end of nov then go back and talk with her on Dec 9.  Not giving me too much time.  I wish i could help with the stats all i know is i may have 15yrs or so to live coz eventually the tumor will take over but i have 7 children and a husband to live for.  Im 50 now so im hoping to survive at least 30more years???? cheers for asking what my story is thnx for the opportunity to share...

RE: What's your Oligodendroglioma story?

by shariv on Wed Sep 30, 2015 03:02 PM

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On Sep 30, 2015 10:16 AM cazwinn wrote:

Hi there my name is Wini, i live in Wellington Nz and had surgery last year sep 6.  Found out i had a grade II oligodendroglioma.  Had Mri scan a week after surgery then another in March.  It showed tumor had spread across my communication area to the right side.  Doctor said i need radiotherapy.  I am going to give the ketogenic diet a go, its an alternative method of starving cancer cells of sugar, instead of doing radiotherapy.  My Dr said to give it a go coz shes heard the ketogenic diet particularly improves brain function however the Dr said i can have a scan end of nov then go back and talk with her on Dec 9.  Not giving me too much time.  I wish i could help with the stats all i know is i may have 15yrs or so to live coz eventually the tumor will take over but i have 7 children and a husband to live for.  Im 50 now so im hoping to survive at least 30more years???? cheers for asking what my story is thnx for the opportunity to share...

Hi Wini!

I'm sorry your tumor has spread, but I'm excited that you decided not to do radiotherapy and are going to change your diet instead! I found out in 2008 that I had an oligo II. I've had 2 surgeries, I did chemo/radiation after the 2nd surgery in 2009. Finished chemo in June 2010. The tumor started growing again in May 2011. I went on a hard core, whole food, plant based diet and juiced vegetables etc. Instead of starting a new chemo at my next MRI appt in Aug 2011, the tumor was stable. It has been stable since Aug 2011!

There is so much information out there for you to read/watch. I love the movie Forks Over Knives. Joel Fuhrman has some good books (Eat to Live; Super Immunity etc). Chrisbeatcancer.com has a lot of videos with people who have healed their cancer naturally without chemo and radiation. Chris "overdosed" on raw vegetable salads and juice and got rid of his cancer.

Good luck to you! Let me know how your MRI goes in November! If you have any questions or need more information I will do my best to answer them!

Shari

 

RE: What's your Oligodendroglioma story?

by cazwinn on Thu Oct 01, 2015 03:48 AM

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Hi Shari

Thanks so much for that information and support in my quest for fighting cancer.  I believe I can do this and beat it even though my doctors and husband want me to have it and I understand their concern but I want to fight it with food.  My cousin who is doing chemo for breast cancer has lost all of her hair and I know that next on the list for me will be chemo too. 

Love your support and know that you have been thru both yourself but glad ur alive and here talking to me coz thats a success story in itself...Good for you shari.

I will look up the info you gave and will let you know the outcome of my MRI scan too.

Take care

Wini

RE: What's your Oligodendroglioma story?

by cazwinn on Thu Oct 01, 2015 04:27 AM

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hey Shari

thanx so much for giving me the site to chrisbeatcancer.com its fantastic!!!!

RE: What's your Oligodendroglioma story?

by shariv on Thu Oct 01, 2015 11:54 AM

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On Oct 01, 2015 3:48 AM cazwinn wrote:

Hi Shari

Thanks so much for that information and support in my quest for fighting cancer.  I believe I can do this and beat it even though my doctors and husband want me to have it and I understand their concern but I want to fight it with food.  My cousin who is doing chemo for breast cancer has lost all of her hair and I know that next on the list for me will be chemo too. 

Love your support and know that you have been thru both yourself but glad ur alive and here talking to me coz thats a success story in itself...Good for you shari.

I will look up the info you gave and will let you know the outcome of my MRI scan too.

Take care

Wini

I'm so happy you have a positive attitude! You have to believe that what you are doing is going to work! What you choose to do is your decision. If you decide to fight it with food, it will be hard if your family/friends and doctor are all trying to talk you into doing radiation/chemo. Try not to let them get you down or stressed. Stress will lower your immune system. Show them all of the information you find on others who have healed their bodies with a good diet etc. Show them the information about why chemo/radiation doesn't work on most cancers, lowers your immune system and causes other cancer. I have learned not to talk about alternative methods with my doctors. They can't talk to you about it even if they believe it. I know Chris has a video about what to do if family & friends don't support your decision. He does have a lot of information. Glad you liked his website!

I have juice recipes and a list of what to eat/not to eat from a naturopath in CA. Let me know if you want the info. You can also call a guy in TX. His daughter had a brain tumor, had surgery and radiation - maybe chemo? Anyway, it didn't work and the doctor told them to go home, call hospice and enjoy the rest of her life. Instead they called the same naturopath I called and did what he told them to do. She got healthy, the tumor disappeared and she's still healthy today. He would love to tell you about it. Here's her website:

http://nicolemarcos.com/bennunez/healingjosie/healingjosie/J

Looking forward to hearing about your next MRI! Take care!

RE: What's your Oligodendroglioma story?

by cazwinn on Thu Oct 01, 2015 09:13 PM

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Hi Shari

What do you think of the Ketogenic diet.  I chose this diet because it was the only one out of all the options like Gerson therapy which also works, that I could do, but I want to know what you think?  I also want to know if the first thing you did was go to Dr Majalca whom by the way is totally awesome is there a possibility for me to be able to use him somehow or do I need to see someone over here.  Money is tight in our home right now with a mortgage and all the other bills so it would need to be something doable and within my means.  I know Im placing a lot of trust in your judgement and I don't know you but feel You understand what Im going through.  I dont have anyone helping me except my computer which can be good and bad ahe! But I feel like I need guidance and I also do feel somewhat pressured by my husband and the Dr's but am determined to stick to what I believe to be beneficial for me. 

I will take on board your advice of showing my husband information on others who have healed their bodies with a good diet.  I would appreciate any other advice you may have to offer.  I am a Mormon and my faith and belief in God is strong.  I use the Lord in all the decisions i make because I need him.  I know that I need help I cant do this on my own.  I feel the Lord is helping me through having this conversation with you and for that I'm grateful. 

Thanks

Wini

RE: What's your Oligodendroglioma story?

by shariv on Fri Oct 02, 2015 09:13 PM

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On Oct 01, 2015 9:13 PM cazwinn wrote:

Hi Shari

What do you think of the Ketogenic diet.  I chose this diet because it was the only one out of all the options like Gerson therapy which also works, that I could do, but I want to know what you think?  I also want to know if the first thing you did was go to Dr Majalca whom by the way is totally awesome is there a possibility for me to be able to use him somehow or do I need to see someone over here.  Money is tight in our home right now with a mortgage and all the other bills so it would need to be something doable and within my means.  I know Im placing a lot of trust in your judgement and I don't know you but feel You understand what Im going through.  I dont have anyone helping me except my computer which can be good and bad ahe! But I feel like I need guidance and I also do feel somewhat pressured by my husband and the Dr's but am determined to stick to what I believe to be beneficial for me. 

I will take on board your advice of showing my husband information on others who have healed their bodies with a good diet.  I would appreciate any other advice you may have to offer.  I am a Mormon and my faith and belief in God is strong.  I use the Lord in all the decisions i make because I need him.  I know that I need help I cant do this on my own.  I feel the Lord is helping me through having this conversation with you and for that I'm grateful. 

Thanks

Wini

I have a strong faith in God too. I gave all of this to Him and He has helped me so much. I wouldn't have been able to get through this without Him. He gave me the signs to eat this way.

I'm not telling you what to do. I'm telling you what worked for me and others I researched online. Most cancer survivors ate like I eat, had a strong faith in God & believed He (and his food/water/sun/fresh air) would heal them, exercised, took supplements, detoxed, reduced their stress etc.

I don't know enough about the ketogenic diet to give you an opinion, but Chris has a video on his site and he is against it.

http://www.chrisbeatcancer.com/dr-gonzalez-dismantles-ketoge

I called Dr. Majalca about 3 months after I was diagnosed. Unfortunately, he died a few years ago. You might be able to call and get information from the people that worked for him? I understand why you would want to see a professional. If you can find a good naturopath near you, definitely go. I didn't have anyone helping me other than Josie's dad. He was awesome! He told me if they could do it again, they would not have done chemo/radiation. I didn't want to do it, but I did. Now I wish I hadn't! I was eating eggs and beef/chicken with no hormone/antibiotics even though the list said not to eat them. Once I stopped eating all animal products, the tumor stopped growing.

Until you can see a naturopath, I would only eat what's on the list. My advice is to eat and juice as many raw vegetables as you can. I juice and drink about 35 oz/day (more would be better-gerson drinks 104 oz/day). I eat raw vegetables, cooked vegetables in homemade soups, seeds/nuts, oatmeal and whole grains. The list says only eat green apples, lemons and avocados. I would stick to those and maybe eat berries too. Warm water with real lemon juice is great for detoxing. Organic is best if you can afford it. When I first started eating this way, I was starving! If you are, just eat/drink more vegetables. They won't make you gain weight. Once your body is used to it, you won't be hungry all the time.

Do not eat animal products, processed food, or sugar. Sugar makes the cancer cells grow faster.  

If you don't have a juicer, I would get one. You will get a lot more vegetables and enzymes into your body and will be able to absorb the nutrients quicker. I have a very good Omega juicer, but it takes more time to juice. I also have a Breville juicer. It's cheaper, faster and works really well. It's about $135 on Amazon and I think you can buy it in stores too.

http://www.amazon.com/gp/product/B003R28HWQ/ref=pd_lpo_sbs_d

I've had some problems with the private messages on this site, but if you want to send me your email address, I will email the juice recipes and list of foods to eat/don't eat that Dr. Majalca sent me.

Let me know if you need anything else! Hope this helps!

RE: What's your Oligodendroglioma story?

by shariv on Sat Oct 03, 2015 03:02 AM

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Wini, I think you tried to send a private message. When I opened it, I got an error. I'll try to send a message to CancerCompass so they can fix it.
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