Mom was diagnosed with BAC now it's Adenocarcinoma!?!

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Mom was diagnosed with BAC now it's Adenocarcinoma!?!

by HowardW on Wed Apr 13, 2011 03:46 AM

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My mom was diagnosed with bronchioloalveolar carcinoma stage IV on Feb3 3, 2011. She needed another biopsy for EGFR mutation or insurance company would not pay for Tarceva.

Her oncologist received the results today and now they tell her she doesn't have BAC but adenocarcinoma.

Just as she was actually going about a semi-normal life,(working reduced hours) she is told she will soon need chemo every three weeks with Alinta.

Needless to say the emotional rolloercoaster ride has started again and she will most likely no longe be able to work.

A friend of a friend who is an oncologist questioned why she was not being treated with frontline drugs cisplatin (sp?), and going straight with Alinta. I have to call mom's oncologist and ask tomorrow.

We had high hopes for the Tarceva-now she is depressed again as she fears her body cannot withstand the beating from chemo for a prolonged amount of time.

Are these two cancers similar and can be misdiagnosed one for the other?

I guess it's a blessing in disguise that the insurance balked at paying. Otherwise she may have been getting worse taking medicine that had no effect at all.

Howard

RE: Mom was diagnosed with BAC now it's Adenocarcinoma!?!

by thebyrdsfriend on Mon Apr 18, 2011 04:42 PM

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Hi Howard, I was diagnosed with adenocarcinoma with BAC features.  My oncologist says I'd had it many years, and that it started out as BAC, but morphed or mutated into the adenocarcinoma.  It showed up on my x-ray as "ground glass" or "sand particles".  Anyway, I've also read about and talked to many others who have the same.  I was treated with 4 treatments, 3 weeks apart with cisplatin and alimta, for a total of 12 weeks.  I also had an upper right lung lobectomy.  As far as I've read, tarceva is like an end stage drug (my words) after all other chemo's have been used.  So, I'm thinking you shouldn't be upset she isn't getting treated with that yet.  As far as tarceva not working when you don't have the egfr mutation, that just isn't true.  They do use it, and it's been successful, even without the mutation.  If you private message me, I will give you a good website where lots of discussions are held on BAC.  But, with the adenocarcinoma diagnosis, I'm saying that is what to research for now - it is the more serious cancer rather than the BAC.   God bless you all, Helen

RE: Mom was diagnosed with BAC now it's Adenocarcinoma!?!

by HowardW on Mon Apr 18, 2011 10:44 PM

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Hi Helen,

Thank you for the information. I would love to get the wesite with bac discussion. Thank you. Thank you.

Howard

RE: Mom was diagnosed with BAC now it's Adenocarcinoma!?!

by thebyrdsfriend on Wed Apr 20, 2011 01:09 PM

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Hi Howard, I've sent you a private reply with the web sites on it.  You'll find it above if you look at My Notifications at the top of this page.  Helen

RE: Mom was diagnosed with BAC now it's Adenocarcinoma!?!

by egrow on Sat May 21, 2011 02:43 AM

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Hi Howard,

Very sorry to hear about your mother.  My wife has Stage IV adenocarcinoma and she did test positive for EGFR.  So, as her FIRST line of defense, she start Tarceva on Dec 22, 2010.  Along with the other changes in her life, the Tarceva has worked very well.  In the first three weeks her lymph nodes stop showing any activity.  Her last checkup in April show an uptake value of 1.2 (SUV), it was initially over 13.  Of course, everyone is different and respond differently too.  But, I would get her tested - if positive, you could get some real blessings.  May God bless and comfort you, I will pray for you.

Ernie

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