any survivors stage 4 colon cancer metastasis liver

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RE: any survivors stage 4 colon cancer metastasis liver

by jinane on Fri Jan 20, 2012 01:32 AM

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i have sent a philip his blood tests results and the last scans to my inlaw, he is a family dr. living in usa...and each time he takes the files to doctors in "sloan kattering"(not sure abt the spelling) and we he had a meeting with doctor "philipe salem" he is a lebanese doctor as well... and they all agreed over this proceedure, chemo is much better now than liver operation,  since it will not remove cancer ! it will only remove a "part" of it. so cancer wil stay there... and abt the tumor in z colon, since it is not blocking z colon, he will not operate on ity, cos he will have to stop avastin for 1 month,then operation then 1 more month without treatmen... this is too risky!!! my husband skipped 1 treatment of avastin and he got all this complications!!! all his blood tests rocketed like crazy!!!!

RE: any survivors stage 4 colon cancer metastasis liver

by Shitulpatel on Fri Jan 20, 2012 06:49 AM

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On Jan 20, 2012 1:32 AM jinane wrote:

i have sent a philip his blood tests results and the last scans to my inlaw, he is a family dr. living in usa...and each time he takes the files to doctors in "sloan kattering"(not sure abt the spelling) and we he had a meeting with doctor "philipe salem" he is a lebanese doctor as well... and they all agreed over this proceedure, chemo is much better now than liver operation,  since it will not remove cancer ! it will only remove a "part" of it. so cancer wil stay there... and abt the tumor in z colon, since it is not blocking z colon, he will not operate on ity, cos he will have to stop avastin for 1 month,then operation then 1 more month without treatmen... this is too risky!!! my husband skipped 1 treatment of avastin and he got all this complications!!! all his blood tests rocketed like crazy!!!!

Hi, Sorry fir the late response. Thank you all those who gave me suggestions. As you know I have descending colon tumour with extensive mets to the liver - all segments. Dx on 31 dec 2011. Docs preferred to start chemo first rather than resect the primary tumour to stop it from further spreading and also because the obstruction in bowel was not life threatening at this time and can be handled with low residue diet. Chemo regimen is FOLFOX4 and erbitux added last week. First chemo started 7 jan 2012. As per suggestions , I had then taken some second opinions including in USA through some friends and relatives and it seems the Docs in USA seem to concur with wht the Docs in India have prescribed currently . So, I guess there is nothing much I can do till at least 3 months of chemo of FOLFOX4 and erbitux is over and they evaluate the response. I would like to know what I have to expect in these 3 months so I can prepare myself mentally and my caregivers also know what they will be going through in this short term. The Docs here don't really tell u much and prefer to keep u in the dark. They have no suggestion for diet etc other than do what u r doing but avoid crowded infection bearing places and also avoid air travel. On my own through researching the net I have done changes to my diet ,taken up juicing , and also started on some walking exercise -30 mins daily other than chemo days , taking some immunity building herbs like aloe Vera juice, wheat grass juice , some turmeric and also manuka honey on a daily basis. No matter what I try and eat my weight is going down by 1lb or half kg daily. Is it due to the exercise ? How do I gain weight ? I have cut down drastically on sugar, salt , and White bread, refined flours, Etc. Any recommendations or suggestions would be most helpful to me at this stage. Thanking you all in anticipation. S P

RE: any survivors stage 4 colon cancer metastasis liver

by jocook on Sat Jan 21, 2012 01:43 AM

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I can feel your frustration through thelines.itcertainly is difficult when one partner wants to fight and the other is giving up. Does he have the opportunity to join a support group or see a counselor. You really need some support yourself and you are shouldering so much with your large family, is there any one there for you. I think i would want to know what the odds are of his survivial. My husband was given four percent odds and he is still here four years later. Yes, the cancer is back but four years would give him more time with your kids. Try and involve the older children if you can. Email me if you need help sincerely jo

 

RE: any survivors stage 4 colon cancer metastasis liver

by jinane on Sun Jan 22, 2012 05:01 PM

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well there is a problem now...

in 2 weeks my husband will start chemo again plus avastin...

thw onc told us he could give him 5 fu or xeloda + smthg else (instead of eloxatin, but i cant recall the name!)... i ve searched the web, but i found no difference between xeloda and 5fu!!! so which we should choose and why?!??

RE: any survivors stage 4 colon cancer metastasis liver

by sguerra47 on Sun Jan 22, 2012 05:47 PM

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On Jan 22, 2012 5:01 PM jinane wrote:

well there is a problem now...

in 2 weeks my husband will start chemo again plus avastin...

thw onc told us he could give him 5 fu or xeloda + smthg else (instead of eloxatin, but i cant recall the name!)... i ve searched the web, but i found no difference between xeloda and 5fu!!! so which we should choose and why?!??

I think there is a big difference between Xloda and 5FU.  The other drug may have been Erbitex/Cetuxmab.   These types of drugs work against your KRAS gene.   5FU works against the tumors directly.   Avastin should be given with either one  your choose.  Most of the time Xloada and Erbitex are used as third line treatments after FOLFOX which is the first line treatment.  Unles Irrenetican was the one you are thinking of.   5FU with Irrenetican is a second line treatment with Erbitux being added sometimes if the 5FU is not working on shrinking the tumors.

If my husband has to go on again and they recommend 5FU that is what I think we will choose to see first it can work, along with Avastin or either along with Erbitux.

Hope this helps.

Sorry you have to do this, I think we are not far behind you.

Love Sandy

 

 

RE: any survivors stage 4 colon cancer metastasis liver

by sguerra47 on Sun Jan 22, 2012 05:49 PM

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On Jan 20, 2012 1:32 AM jinane wrote:

i have sent a philip his blood tests results and the last scans to my inlaw, he is a family dr. living in usa...and each time he takes the files to doctors in "sloan kattering"(not sure abt the spelling) and we he had a meeting with doctor "philipe salem" he is a lebanese doctor as well... and they all agreed over this proceedure, chemo is much better now than liver operation,  since it will not remove cancer ! it will only remove a "part" of it. so cancer wil stay there... and abt the tumor in z colon, since it is not blocking z colon, he will not operate on ity, cos he will have to stop avastin for 1 month,then operation then 1 more month without treatmen... this is too risky!!! my husband skipped 1 treatment of avastin and he got all this complications!!! all his blood tests rocketed like crazy!!!!

You just have to remember that sugery still remains the only cure for colon cancer.   Getting it out of the colon and lymph nodes should be a priority.   Then deal with the tumors in other areas after that.   I learned that things do grow when on a break but not getting it out of the colon can only complicate your treatment and your survival options.

RE: any survivors stage 4 colon cancer metastasis liver

by jinane on Sun Jan 22, 2012 06:25 PM

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hi sandy

i can understand the doc when he said that there is no need t operate on z colon, bcs there is no oclusion... and to operate he has to stop avastin before the op and after,which means 2 month without avastin and without any treatment, well my husband travelled for 1 month, so he skipped only 1 treatment of avastin and all his blood tests became a mess ! and there is a gr8 possibility that the nodules spread to the lungs !!!! chemo is our only choice now ( bcs liver is unoperable) and when we finish chemo we will operate z colon, and if the liver becomes op we will do it...but the onc thinks that after z chemo we may not need operation for the liver, bcs the nodules now are very small, (we will make sure of there size on tuesday,maybe the grew within the last 2 months) but on our kast pet scan 4 months ago, the biggest nodules on the liver was less than 1 cm... (it was 9 cm before treatment) --- u can follow my posts---

my only fear now is the side effects of this chemo cycles !!!! i pray god to make everything go smoothly...

i guess thats it...best luck for you kisses

RE: any survivors stage 4 colon cancer metastasis liver

by livingbyfaith on Sun Jan 22, 2012 11:29 PM

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On Jan 19, 2012 10:52 PM sedonaskip wrote:

That is going to be a weak part of the body and think the cancer will be drawn there more than any other place.  My opinion. 

 That is why Stage 4 cancer patients, like myself, can't recieve or donate organs for transplants.

You may want to seek out a second opinion.

were you talking about the liver stent?  I was concerned but they say they can keep redoing them. 

RE: any survivors stage 4 colon cancer metastasis liver

by sedonaskip on Mon Jan 23, 2012 02:37 AM

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I was on 5FU when I had a power port, it's hard on the veins.  Now I'm on Xeloda which is the same as 5FU only in tablet form.  I take 1000 mg in the morning and 1000 mg at night, 4 tablets per day.

I also get a I.V. of Avastin when I start the week long Xeloda treatment.  Xeloda is much easier on me than 5FU and I don't have to carry that nasty pump for 2 days.  I get a little nausea for about 2 hours after each dose then I feel fairly good.  I have to take a mild stool softener with each dose because of my Colon surgery.

He's on the right path!

RE: any survivors stage 4 colon cancer metastasis liver

by jinane on Mon Jan 23, 2012 04:57 AM

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On Jan 23, 2012 2:37 AM sedonaskip wrote:

I was on 5FU when I had a power port, it's hard on the veins.  Now I'm on Xeloda which is the same as 5FU only in tablet form.  I take 1000 mg in the morning and 1000 mg at night, 4 tablets per day.

I also get a I.V. of Avastin when I start the week long Xeloda treatment.  Xeloda is much easier on me than 5FU and I don't have to carry that nasty pump for 2 days.  I get a little nausea for about 2 hours after each dose then I feel fairly good.  I have to take a mild stool softener with each dose because of my Colon surgery.

He's on the right path!

hi skip

when my husband was on xeloda on his first chemos, he had 4000 mgs a day, 4 tabs in z morning ,4 tabs on z evening for 2 weeks... he took em with eloxatin and avastin...

he had diarrea (sudden ones) with cramps,hard cramps before the "attacks" ,his hands were numb, and they became dark (we dont know if it is from eloxatin or xeloda)...so after 2 weeks like this, he used to wake up in z morning, take immodium, spasfon, omeprazol and one ore drug ...then he took his breakfast then xeloda, and it was ok...but the numbness increased, with the cold weather it hurted him...

he told me he will take xeloda again for these treatments, bcs he is already familiar with the side effects, he is affraid to try smthg new i guess!!

on feb 14th (his birthday, valentine, and 1 year "cancer anniversay") i will invite all his friends and have a big party, he would have started chemo as well so they will entertain him, but i wish the side effects or these rounds of chemo r "easy and smooth" on him

on tuesday we have mri so the docs can tell us how many rounds of chemo we will have...im so affraid!!!

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