Trace IGG monoclonal band present

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RE: Trace IGG monoclonal band present

by CindiA on Fri Nov 16, 2012 05:03 PM

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Hello Maureen~

I know that these posts are over a year old but I would like to know what your outcome was. Would you mind sharing?

I have Complex Mixed Connective Tissue Overlap Disease. This includes Lupus, Scleroderma, Raynauds, Sjogrens and a host of problems associated with it. One of the health issues is neuropathy. While visiting the neurologist on a related neuropathy issue, he did some lab work and one of the tests came back with a trace of protein in my blood. It was the immuno globulin (I think) test and he advised it could be MM, so he sent the report over to my hematologist (of which I see for my anemia).

The hematologist did not want to wait for my appointment in a few weeks but rather immediately took more blood and I had to do a 24 urine. I see him this afternoon and I must tell you I am freaking out over the possible dx.

I am trying to remain calm and have peace but I am so overwhelmed. I have an aneurysm on my spleen that the vascular surgeon wants to remove (both the aneurysm and spleen) and now I am wondering how that will affect my treatment if I do have MM.

Can I just say that enough is enough? I need some positive reinforcement here. I am a pretty positive person but every time I go to the doctor, I am getting bad news and from what I read about MM, it is pretty hopeless. Please someone, give me hope!

Thank you. Looking back over this post, I really do not mean to be negative or a downer. :(

~Cindi

RE: Trace IGG monoclonal band present

by Maneen on Fri Nov 16, 2012 06:06 PM

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Hi Cindi-

I actually just came back from my Onc/Hematolgist today for an appointment.  She has had me on 3 month bloodwork followup.  My last two blood draws with followup on serum immunofixation and quantitative proteins (hope I am saying that correctly) all came back within the normal range.  They have also stated no monoclonal proteins found....Needless to say I am praying todays says the same.  If it does, I will go back to my 6 month normal followup.   Now, what could have caused the protein to begin with?  Don't know for sure.  I posed the questions of menopause, autoimmune, stress and while she doesn't know for sure, I suppose nothing can be ruled out??? She said the word MGUS...I hope all goes well with with your bloodwork today...I know the feeling, I was freaking out too as you can tell from my previous posts.   Please let us know how everything turns out....my thoughts and prayers are with you....and you aren't being negative or a downer, you are fearful and overwhelmed by what has been thrown at you.  I totally get that. 

Maureen :)

RE: Trace IGG monoclonal band present

by CindiA on Sat Nov 17, 2012 05:30 PM

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Maureen~ So happy for your good report. I also received great news yesterday from my oncologist. He feels very comfortable and confident that I do not have myeloma or lymphoma. However, he wants to repeat the labs in 6 months to be sure. If they remain the same, he will repeat in another 6 months. If they go higher then he will perform further testing.

At this time he advised that he thinks it is all my autoimmune issues. He said that something is going on in my body that has caused a major flare and that he is forwarding the report to my rheumatologist for further evaluation. My family physician and my rheumatologist had already told me I was in a flare so that did not come as a surprise.

I can not tell you thank you enough for your reply. It helps knowing someone else has been going through this.

Maybe you should see about having some blood work done to rule out an autoimmune disorder?

Best of luck. Again, so thrilled for you too!

~Cindi

RE: Trace IGG monoclonal band present

by Cally on Sun Nov 18, 2012 03:41 AM

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Maureen,

My doc discovered my mgus in 2009. My Igg kappa is high and I have bence jones proteins in both my blood and urine.  However, my bone marrow biopsy that I just had in October was negative for myeloma and other cancers.  I don't know the other specifics because my doc just called me on the phone to give me the good news right away.  I don't know why my other labs are so abnormal but it just goes to show you that what I thought I had, (MM), I don't.  I still have to report for blood work every 3 months because it is possible that I can convert to MM at any time.     But maybe I never will.  Keep informed but stay positive.

RE: Trace IGG monoclonal band present

by Maneen on Sun Nov 18, 2012 03:18 PM

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Cindi-So happy you got great news! What a relief...I did read somewhere that autoimmune disease and other things can affect your bloodwork--I did have testing before re: autoimmune stuff but nothing ever came back indicating I had anything..?? I don't know--a mystery of sorts. Good luck also and keep us posted on how things continue to go for you!

Take Care!  Maureen :) 

RE: Trace IGG monoclonal band present

by Maneen on Sun Nov 18, 2012 03:25 PM

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Cally--so happy you got good news from your doc.  Such a scary thing to go through and the waiting of results.  Do you have any autoimmune issues?  I read that all that wonderful stuff can affect your bloodwork etc.  I always wondered that myself although my bloodwork in the past never indicated any factors showing anything.  Yes you are right, stay positive!  Makes you appreciate living in the moment.  Keep us posted on how things go!  Take Care!

Maureen :)

RE: Trace IGG monoclonal band present

by jglove on Thu Aug 23, 2018 08:28 PM

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I just found this thred and I am going through all of this very same stuff.  It's so scary! I had a blood clot in May and because of that, I've had a lot of blood work done.  This came up in my most recent blood work.  They say I have to wait a month to get the blood work done again.  I'm not a fan of the waiting game..

RE: Trace IGG monoclonal band present

by Gcostandy1 on Wed Jan 16, 2019 08:26 PM

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Hi i have IgG monoclonal band present and m spik 0.6 and paraprotein in urine going to onc Dr does any body know what this means please 

RE: Trace IGG monoclonal band present

by stevem57 on Tue Mar 05, 2019 07:58 PM

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Welcome to MGUS, it just means you'll have to keep an eye on it now. It may or may not become MM. I have had MGUS and now smoldering MM for over 10 years and I'm still going. You'll be OK.

RE: Trace IGG monoclonal band present

by Majolica on Wed Mar 13, 2019 01:25 PM

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Hi Steve,

  I posted way back with you.  I just wanted to say.  I am too  still going strong with mgus and acquired von willebrand for over 13 years now.  Some bone pain now and then.  Low sodium at times.  But still kicking.

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