Neuroendocrine Carcinoid Cancer & mood swings/memory lapses

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RE: Neuroendocrine Carcinoid Cancer & mood swings/memory lapses

by jarsclay on Fri Oct 21, 2011 06:51 PM

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Thanks Jen ... it really is a horrible disease. He had to have a pace maker put in a couple of years ago and now we know why. My Dad was such an active vibrant person before this, even though he's 74. Now he can't do anything. Just cleaning the cat litter box wipes him out. I know it's because they caught it so late, but it's very hard to watch.

I'm so sorry to hear about your husband - they just found a melanoma above my Dad's left eye this last week and want to take it off.

I will keep you and your family in my prayers as well - you're going through so much.

Shelley

RE: Neuroendocrine Carcinoid Cancer & mood swings/memory lapses

by RedKat68 on Fri Oct 21, 2011 06:54 PM

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Eric is actually getting his liver mapped next week for the Y90 SIRS treatment here in Louisville. We are blessed to have some of the finest hospitals in the world here and when we met with the carcinoid team down at Oschner they referred us to Dr Scoggins here at UofL.

I can't imagine the out of pocket expense if we had to go to Switzerland. His appointments are 2 and 4 weeks apart with a total of 3 (1 liver mapping, 1 procedure for each liver lobe) procedures and multiple folowups.

I am sorry to hear about your husband. I don't know about you; but, 2011 has certainly been a mixed bag of ups and downs. I think I shall declare 2011 to be the year of the Roller Coaster!

RE: Neuroendocrine Carcinoid Cancer & mood swings/memory lapses

by jarsclay on Fri Nov 25, 2011 02:36 PM

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my Dad's mood swings and irritability seem to be getting worse, but the entire disease is progressing, so I guess it's not suprising.

I have to say that this is one of the worst parts of the disease. I worry about my Mom because she's the primary caregiver and takes the brunt of things. The emotional side is really wearing her down.

Does anyone know of anything they can do besides the Sando shots? He's already getting those twice a month and they've upped the doses as well. Unfortunately, the last scan showed that the liver mets have grown and his symptoms just seem to be getting worse.

we have a meeting with the Support and Palliative Care Dept Monday and I'm hoping they can help in some way. I think I'm just as concerned about my Mom as I am my Dad at this point.

RE: Neuroendocrine Carcinoid Cancer & mood swings/memory lapses

by Jenholm25 on Fri Nov 25, 2011 04:32 PM

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Maybe your dad needs to see a counselor?  It's possible that he's going through the stages of grief and stuck in the anger stage.

Part of handling these mood swings is realizing that we have them, therefore we have to be careful not to take it out on those around us.  If he's not trying to hold back or tone it down, maybe he needs to see someone.

RE: Neuroendocrine Carcinoid Cancer & mood swings/memory lapses

by jarsclay on Sat Nov 26, 2011 05:21 PM

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problem is, I don't know that my Dad realizes there's a problem. It's not even rationale and everything gets blown out of proportion. he gets mad at things like people laughing and he's actually mean to my Mom. he's said some mean things to me as well, but I just try and let them roll off my back.

from what I've read, I'm assuming it's the excess serotonin in his body. if it's striclty a hormonal thing, I wonder how much good counseling would do. I'm thinking of just how emotional and irrational I could be during my cycle growing up and think that must be multiplied by 100 for him.

he also is not one for talking or counseling or anything of the sort. but since we have that appt with the support dept Monday, I think I'll ask about their counseling services while he's there in the room. maybe it'll spark a conversation.

RE: Neuroendocrine Carcinoid Cancer & mood swings/memory lapses

by Jenholm25 on Sun Nov 27, 2011 04:05 AM

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I'd recommend printing off some information about "carcinoid rage" and let him know it's part of the cancer - not a personal flaw.  They might be able to get better control over it with a mild dose of an anti-depressant.  Someone has to let him know how mean he's being to everyone and that he needs to get a handle on it.  Otherwise he's going to drive everyone away.  No one deserves to be someon's emotional or verbal punching bag.

Counseling can help by making him more aware of the anger, give him anger and stress management skills, and help him deal with other issues that might be magnifying the things that irritate him.

Someone definitely needs to talk to an outside support resource AND to him about it.  It sounds like it's out of control.

RE: Neuroendocrine Carcinoid Cancer & mood swings/memory lapses

by Jenholm25 on Sun Nov 27, 2011 05:59 PM

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Here's a good medical journal article that talks about it:

http://www.psychosomaticmedicine.org/content/66/3/422.full

RE: Neuroendocrine Carcinoid Cancer & mood swings/memory lapses

by RedKat68 on Sun Nov 27, 2011 11:20 PM

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Excellent Article, Thanks for the link!

RE: Neuroendocrine Carcinoid Cancer & mood swings/memory lapses

by jarsclay on Tue Nov 29, 2011 09:23 PM

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I found that same link this week and shared it with my Mom!

We actually met with the Support and Palliative Care Dept. Monday and part of their services is counseling for the patient and caregiver. We were there 2 & 1/2 hours and it was really helpful, especially for my Mom. She now has a resource with getting counseling and dealing with all of this. And my Dad talked more than I thought he would.

This is definitely something that seems very unique to this cancer and a very big challenge. But talking about it is the first step. Thanks for your support and advice!

RE: Neuroendocrine Carcinoid Cancer & mood swings/memory lapses

by Jenholm25 on Wed Nov 30, 2011 03:08 AM

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That's fantastic!  :)  I hope things continue to get better.

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