Pain on Temodar

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RE: Pain on Temodar

by Mack1994 on Fri Jan 12, 2018 01:21 AM

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On Jan 12, 2018 12:58 AM Supportliz wrote:

We’re currently using CBD oil (a very high dosage) but that is not working well. Do you mind telling me the kind of inhaler you have? Did you also try the oil first with no prevail?

i USE A t-pEN, SET ON 3.5V, THE CBD IS 500MG ISOLATE. I started to use the oil as soon as I started to experience pain. I did not want to go to opiods or other synthetic pain meds. I have a friend who's sister has pancreatic cancer and she recommended to me.

I'm sorry I don't have any other suggestions, perhaps a pain specialist, if you can find one, as pain management is an emerging field. I wish you the best.

RE: Pain on Temodar

by weAre1 on Sun Jan 14, 2018 09:24 AM

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My husband also has been experiencing severe leg pain, little relief from oxycodone, but nuerontin has done the trick!!  And nuerontin(gabepentin) is a seizure drug as well!!  It works more on nerve pain so is beneficial with GBM and all it entails. I'm a RN as well as the wife of a GBM 4 patient.  I reccommend trying the nuerontin.  Good luck.

Dawn

RE: Pain on Temodar

by golfall on Sat Feb 02, 2019 03:27 AM

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You probably have tried this but I just used extra strength tylenol 2 pills every 6 hours. This greatly reduced my discomfort in lower back hips and legs. After about 4 and half hours the discomfort would start to return. I would wait till 6 hours and take anoterh dose.

It helped.  Drink lots of water. I also did not take the tylenol on an empty stomach.  Good luck.

RE: Pain on Temodar

by stevew7000 on Fri Mar 01, 2019 04:35 PM

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Just for anyone's information, there is a warning on the Tylenol maximum daily dose:

https://www.medicalnewstoday.com/articles/231915.php

RE: Pain on Temodar

by Buster00 on Thu Mar 07, 2019 03:38 PM

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hi all done 4 sessions of tezolomide , lucky me no pain but mri shows more bright areas so its not working for me !!! anyone the same ? so whats next ?

RE: Pain on Temodar

by ottoh on Thu Mar 07, 2019 04:36 PM

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Hi Buster,

My wife had a glio tumor and has been clean for the last three years. I believe that a big part of the reason is we keep her on CBD and tHC oils. GW pharacuticals has a couple of clinical trials going on right now and they are showing much promise. Do a little research on the oils and google GW pharacuticals and read up on their trials. There are many clinical trials going on and they have better drugs and trials all the time. I would start with the oils and see if you can get into a clinical trial. Good luck and just so you know, there are a lot of people who are beating this! God bless you.

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