SIRS pheres

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SIRS pheres

by PARFOUR on Sat Aug 27, 2011 01:08 AM

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I have had the SIRS  treatment about 18 months ago.  The treatment was fairly dificult and the outcome was a wash.  Some tumors were reduced in size and some grew.  Right now I'm getting 40 mg of Sandostatin LAR every three weeks and at a standstill.  Using opium tinchert with Imodium and still have diarrhea.  My Oncoligist does not have any thoughts that would make my life better. 

My question is if anybody else has reached this position and decided to have a second SIRS treatment and if they did,did it do any good (?)

RE: SIRS pheres

by lloyd1 on Sun Aug 28, 2011 01:33 AM

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My husband has not had this treatment,but he had to go to 40 mg of sandostatin every 14 days. It did make a big difference!

RE: SIRS pheres

by jarsclay on Fri Oct 21, 2011 04:05 PM

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my Dad just had this done last week - the doctor said it was a last resort for him. before the procedure, he had terrible flushing (daily) and very bad diarrhea that was not being controlled by the Sandostatin. The good news is that (so far), he hasn't had a flushing episode since he had the procedure. Can't say the same with the diarrhea, but we'll see once he gets farther out from the treatment.

I'm curious to hear if anyone else has had this treatment and how effective it was. We have no idea what to expect as he really far advanced with this cancer and he was willing to try anything that might help.

RE: SIRS pheres

by bignorske2001 on Tue Dec 20, 2011 03:39 AM

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I had the Sirspheres treatment in May, 2010 and it reduced my liver tumor load from 70% to 40 % when scanned by MRI 6 months later and my labs for tumor load all trended in the right direction. My diarrhea and flushing receded considerably, and I would guess that , based on reduction of symptoms, my tumor load may have receded even more since the MRI. I did develop a small gastric ulcer, which was easly treated with PPI's.  I will see Dr. O'Dorisio at U of Iowa ( my carcinoid specialist) in March, 2012 for follow-up. I'm obviously hoping for a good report at that time. The interventional radiologists  at Abbott-Northwestern in Minneapolis, where I had my Sirspheres procedure performed, said that I could have the procedure repeated in the future if necessary. I highly recommend the care that they give there.

RE: SIRS pheres

by jarsclay on Mon Dec 26, 2011 07:11 PM

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Turns out this really didn't do a thing to help my Dad. Last CT scan showed the tumors have grown in his liver. It was a last resort anyway, but we were hoping it would at least alleviate his symptoms.

They also put my Dad on tincture of opium recently and it HAS helped the diarrhea (only thing that has), but the downside is that he's even more tired and now he can't drive.

He's just continuing to go downhill. He's very miserable all the time and I don't know how much longer he can hold out. They've referred him to support and palliative care and my wish at this point is that he doesn't suffer for a long time.

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