RAI... how many times have you done it?

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RAI... how many times have you done it?

by BigFootMama on Thu Sep 29, 2011 12:34 AM

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After reading so many encouraging posts to me... THANK YOU ALL... I have been wondering:

1. How many times you have had RAI?

2. Is it routine to have it every so often or only if your Tg goes up or they find something on a scan?

I guess I'm a total blonde because of the "97%" cure rate I thought it was kind of a one time thing. Maybe I don't understand what the 97% means.

Mama

RE: RAI... how many times have you done it?

by dec3kids on Thu Sep 29, 2011 03:17 AM

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1. How many times you have had RAI?

I have just completed my second round of radiation.  First one was in March 2010 (100 mci) and the second one was last week (150 mci). Had one year WBS in April which revealed some "trouble" spots.

2. Is it routine to have it every so often or only if your Tg goes up or they find something on a scan?

My endo told me that I would have yearly scans of 4 mci to determine is additional treatment is needed.  At this time, they will also check my tg levels to see if there as been a change.  Once I have three clean yearly scans, then I will go every other year for a few years and hopefully will continue to remain clean. 

I think they refer to a high cure rate because there is a course of treatment.  However, for some, RAI is either not needed at all or a one time treatment.  For others, it can take several times for the treatment to fully take effect. 

Hope my experience/answers help.

Bobbie

RE: RAI... how many times have you done it?

by MrsCK on Thu Sep 29, 2011 07:49 AM

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1. How many times you have had RAI?
My hubby had 2 rounds of RAI. The first dose was very low (50mCi) because his right thyroid was still in tact. We were also told that his complete tratment will consist out of 2 or 3 doses, depending on his results after the 2nd RAI. 2nd dose was 150mCi.

2. Is it routine to have it every so often or only if your Tg goes up or they find something on a scan?
Only when new cancer was found. If TG goes up or something shows on a scan, a FNA will be the first thing to determine if there might be a problem. Should those results indicate cancerous cells, they might choose to do RAI again.
DH's new Endo said that he will not do the yearly RAI-scans if the blood tests are clean.

RE: RAI... how many times have you done it?

by MissCyndie on Sat Oct 01, 2011 03:26 PM

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I"ve had RAI twice.  The Thyrogen is not available to me now..in fact, no one can get it....so my doc is just going to wait until it is...but if not in the very near future, then I'll have to go hypo I guess. It's not too bad...I really don't notice the difference.  Lucky I guess.  So...it's been 2 years post op for me and I guess I'm doing okay.  Just taking the Synthroid, which is being changed almost every 4 months, the dosage.  I don't know why there's a shortage of the Thyrogen.

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